Any updates on this?

I am wondering if it may just halt further progression of the disease and not reverse it...could those taking lecithin for a while elaborate of what stage they are in when they started taking it?

Hubby ran out of Lecithin about three weeks ago and decided to 'take a break from it to see if anything happens'....nothing was different for the first two weeks without the Lecithin, but this week....the pain/stiffness in the morning has returned.

Now I must remind you...hubby's situation is not severe, the stiffness and pain in the morning have never been enough to take medication.

He is going back on Lecithin tomorrow and I will update you if/when the pain/stiffness goes away.

Anon

Hi all,

Hubby's hands are actively curling again. It has been over three years since NA so this is not unexpected. The return of DC produced frustration in hubby so he was not diligent with taking Lecithin regularly so I can not give you a good update. I reminded him of the Lecithin about a week ago so he started taking it again, but I haven't asked him how his hands feel because I know he is disappointed...the nuckle pads are forming again...the callouses are returning and spliting...left pinkie now has a 10% curve and the middle finger looks like it is going to turn right over....the cords in his hands are taught and thickening.

I think that he was secretly hoping the Lecithin would take it away completely. Right from the outset we agreed not to expect that...to just hope for a slight change....I guess he hoped for more....and I can understand that.

Anyways, sad story aside...I think we got what we wanted and what we looked for...a slight change...that being a relief from the morning pain....when he calms down a little I get him back to taking it regularly.

Would I take Lecithin if I were a DC sufferer? Yes, it's just food. Lecithin is not a cure...we all know that...but now that we've done this...I would guard against harbouring a secret hope that Lecithin is the answer. It is not.

What Lecithin is however...is something that for some people might produce a slight change.

Good luck to all.

Anon

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