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3 THINGS YOU MUST KNOW IF YOU HAVE DUPUYTREN'S
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09/12/2007 17:18
Sandie1141 
09/12/2007 17:18
Sandie1141 
Re: 3 THINGS YOU MUST KNOW IF YOU HAVE DUPUYTREN'S

Quote:



Thanks Deelyc and Sandie, Yes, I did go to the Dr. today and I do have DD. At first the Dr was going yo give me a cortisone shot in the bottom of my ring finger, I can't have any steroids at all because of a lung desease I have..He then said, well you do have some contractures and thickening in your palm..I won't do anything for it though..I only work on fingers that have fully contracted. I could go to a therapist to squeeze a bll and pick up buttons, I can't afford $25 2 times a week. Im right back where I started and not very happy with my primary sending me to a Dr like that. And yes, when he squeezed my fingers it did hurt. I also have nodules on the back of my knuckles that he just had to squeeze too. Im back to square one.. Any Ideas would be appreciated.. Cathln



Cathln, Did you go to a Dupuytren's doctor, a hand specialist, or your regular doctor? Hopefully, one of the Dupuytren's doctors could help you to work around using steroids. Sandie

    09/13/2007 00:34
    cathlnC

    not registered

    09/13/2007 00:34
    cathlnC

    not registered

    Re: 3 THINGS YOU MUST KNOW IF YOU HAVE DUPUYTREN'S

    Hi Sandie

    I saw a hand sergeon. He only wanted to operate, naturally what else does he do! He said therapy would help.
    I can't afford it and I know it won't work..He just wanted me our. What other dr. could I go to? An orthopedic Dr? A Rhumatologist, I don't have a clue. I just know my hand hurts.

      09/13/2007 03:37
      Sandie1141 
      09/13/2007 03:37
      Sandie1141 
      Re: 3 THINGS YOU MUST KNOW IF YOU HAVE DUPUYTREN'S

      What part of the country are you located? With Dr. Kline, I called and spoke with him over the phone. Then he had me send some digital pics of my husband's hand and he made a diagnosis without us having to travel to see him. We did travel to Boise for the NA.

        09/14/2007 17:49
        cathlnC

        not registered

        09/14/2007 17:49
        cathlnC

        not registered

        Re: 3 THINGS YOU MUST KNOW IF YOU HAVE DUPUYTREN'S

        Hi Sandie, I live in upstate NY and went to a Dr. Wipple. I travel to Denver 3 times a year for another problem already. The dr here did say I have DD but there wasn't anything to be done for it. I know its just one more thing to deal eith and this won't go away by itself. Thanks for your help. cathln

          09/14/2007 20:37
          Sandie1141 
          09/14/2007 20:37
          Sandie1141 
          Re: 3 THINGS YOU MUST KNOW IF YOU HAVE DUPUYTREN'S

          Hi Cathln, We don't have a Dr. here in Denver either. It was really strange flying from a big city to Ontario, Oregon to see a doctor.

          Randy (I hope you're there, you have always been there when I need you) Is there someplace on the forum where there is a list of Dupuytren's doctors? It would be a great tool to have.

          Cathln, you really need to see a Dupuytren's doctor. If for nothing else, just for a diagnosis. Dupuytren's is like a cavity, the worse it gets, the more problems you have and the more treatment you need. It really pays in the long run to get a headstart as early as possible. I'm also talking about a Dupuytren's doctor, not a hand surgeon.

          Hopefully, we can come up with a list of Dupuytren's doctors close to you. Sandie

            09/14/2007 23:18
            cathlnC

            not registered

            09/14/2007 23:18
            cathlnC

            not registered

            Re: 3 THINGS YOU MUST KNOW IF YOU HAVE DUPUYTREN'S

            Thanks again Sandie, I didn't realize there were drs out there that just dealt with Dupuytrens. Ill have to see if there is oner around here, probably not..I know the more Drs. I see the more I dislike them and their arrogance. I go to my primary in Oct. but I honestly think my hand is getting worse by the day. I can still open it but it pulls sooo bad. I can't bend them back at all, I can on the other hand.

            I have found out in the past two years that yoiu really have to look long sand hard before you find as Dr thst even cares at all. Cathln

              09/15/2007 00:06
              Sandie1141 
              09/15/2007 00:06
              Sandie1141 
              Re: 3 THINGS YOU MUST KNOW IF YOU HAVE DUPUYTREN'S

              Quote:



              Thanks again Sandie, I didn't realize there were drs out there that just dealt with Dupuytrens. Ill have to see if there is oner around here, probably not..I know the more Drs. I see the more I dislike them and their arrogance. I go to my primary in Oct. but I honestly think my hand is getting worse by the day. I can still open it but it pulls sooo bad. I can't bend them back at all, I can on the other hand.

              I have found out in the past two years that yoiu really have to look long sand hard before you find as Dr thst even cares at all. Cathln



              I understand where you are coming from. I feel like now days, you have to figure out yourself what is wrong, then find a doctor that can help you. I know that the Drs. Eaton and Bishop are very highly recommended. You can get info from Dr. Eaton's website at www.handcenter.org. He is located in Florida. We went to Dr. Kline in Oregon. His website is Dupuytrenscenter.com. The major difference you are looking at, is having a surgeon cut your hand open, then cutting and scraping out the cords and nodules. This comes with a lot of pain and rehabilitation, where the Dupuytren's doctors I'm speaking of perform NA (needle aponeurotomy). They give you a local pain killer in the palm of your hand, then with a small sharp needle, they cut the cords that are causing your fingers to pull into the palm. After cutting the cords (all done under the skin with no open wound) they inject the nodules with a steroid, which causes them to shrink and disappear. Post procedure consists of keeping you hand elevated and iced for 24 - 48 hours and then if necessary to wear a splint to "teach" you fingers to go back to a straight position. They have been doing this procedure for 30 years in France. The reason why we chose Dr. Kline is because he sufferes from DD and went to France for the procedure and then returned to learn the procedure. Dr. Kline was FAR from those doctors who couldn't care less. When you are with him, he makes you feel like you are his only patient and he will take as much time as you need to understand the disease and the procedure. Since he suffers from it also, you know he totally understands what you are going through. His rates are extremely low, compared to what it costs for the surgery. If you can't afford the procedure, maybe they could help by just giving you the steroid injections in the nodules to help with the pain.

              You might want to start researaching the study that is going to start up again. As I understand it, it consist of a drug that is injected into the nodules one day, then you go back the next day and they can straighten the fingers. I think what part of the study is for is the long term effect of the injections. If you can still straighten your fingers out, you could be eligible.

              Either way, I think you need to do your homework and choose a Dupuytren's doctor and at least get in to see them for an initial visit. It could only help.

                09/17/2007 17:18
                taurusthecat 
                09/17/2007 17:18
                taurusthecat 

                Re: 3 THINGS YOU MUST KNOW IF YOU HAVE DUPUYTREN'S

                Hi. I'm new to this forum , I just joined a few minutes prior to posting this. Hi everyone.
                I was going to post a separate message saying "hi", but saw this thread and I had something to contribute to it so I'll do it here.
                With regards this thread, I had no pain until recently, I've had the lump for about a year or so and it was always completely painless. But recently it has started to ache slightly, and the pain gets stronger a little bit when I stretch my finger out. It's a little bit sharper. I just read here about Glucosamine and I'm so happy that I did, I'm a vitamin nut and take many supplements to keep myself healthy. Recently I started taking fish oil to help lower my cholesterol and saw a supplement that had fish oil and glucosamine combined. I have a neck which cracks a bit and my back is sometimes going out, so I thought glucosamine might help me. When my fish oil supplies ran low, I went and bought one with glucomsamine in it as well. Maybe it's my imagination, but my hand has started to hurt a little more in recent weeks, I really noticed it. In fact it's hurting a bit right now. I'm not jumping to conclusions, but I'm going to stop taking the supplement with glucosamine in it and go and buy one with just the fish oil. Just to be on the safe side.

                As far as my "hello" goes, I seem to fit all the criteria for having this thing. What I mean is that I'm a 44 year-old male, my family history is English (probably French or German mixed with the English) and I had trauma to my hand which I think triggered my condition. I broke my metacarpal in my right hand and had hand surgery (it was pinned and put in a cast) and sometime after that, this lump developed. At this stage I only have the lump, it started off being just one spot, and then it progressed to another lump right next to the first one. I have no real restriction of my finger (ring finger) at this stage, though if I close my fingers on both hands and try to open that particular finger, the one on my unaffected hand opens about one centimeter more than the affected hand does. This condition is of a concern for me mainly because I am a pianist and though I don't play much these days, I used to play professionally for a living, and have just gotten back into my music. The problem with this being on my right hand is that the right hand is used for intricate melody lines and I'm a bit scared that maybe sometime in the future I will be unable to play effectively anymore.

                Anyway, glad I found this forum and I'll spend some time checking-out all the previous threads to learn as much as I can.

                As a side note, my GP knew what this was as soon as he saw my hand and told me he advised me to just leave it alone unless it became a problem, as there might be nerve damage if I went for any sort of surgery. From what I have read so far, he was correct. Has anyone here got any stories of surgery "gone wrong"?





                I'm like fake fruit...... I don't bruise that easy.....

                  09/17/2007 18:09
                  Sandie1141 
                  09/17/2007 18:09
                  Sandie1141 
                  Re: 3 THINGS YOU MUST KNOW IF YOU HAVE DUPUYTREN'S

                  Taurusthecat, Welcome!

                  I'm happy to tell you that you are very lucky to have been diagnosed and that you found this forum at such an early stage.

                  You might want to find out as much as you can about radiotherapy or radiation therapy. Dr. Kline feels that this procedure can be very successful if treated early enough. Unfortunately, my husband wasn't diagnosed until his palm was full of lumps and his ring finger and little finger were pulled down almost to his palm.

                  If you have any questions, there are a lot of people who have been through different stages and different treatments, who are willing to share what they have learned.

                  Thank you for being in the forum and please keep us updated on your Dupuytren's journey. Sandie

                    09/18/2007 04:10
                    Wolfgang

                    not registered

                    09/18/2007 04:10
                    Wolfgang

                    not registered

                    Re: 3 THINGS YOU MUST KNOW IF YOU HAVE DUPUYTREN'S

                    Hi taurusthecat, also have a look at the web site www.dupuytren-online.info, it contains a lot of info also.

                    Good luck!
                    Wolfgang

                    Quote:



                    ... Anyway, glad I found this forum and I'll spend some time checking-out all the previous threads to learn as much as I can. ...


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                      surgery   ema=44&page=1   checking-out   fingers   Dupuytrenscenter   dupuytren-online   professionally   Dupuytrens   doctors   practitioners   nodules   DUPUYTREN   started   Unfortunately   procedure   rehabilitation   Taurusthecat   Glucosamine   Rhumatologist   ema=88&page=1