| Lost password
439 users onlineYou are not loggend in.  Login
5 months after RT in Colorado, U.S.
 1 2
 1 2
04/07/2015 22:29
susie

not registered

04/07/2015 22:29
susie

not registered

5 months after RT in Colorado, U.S.

I had my follow-up visit with Dr. King in Grand Junction, Colorado today, 5 months after RT for both feet and my right hand. I am doing incredibly well. I have a very physical occupation where I use my hands and stand on my feet all day. I was worried about losing function in my feet and hands.
My hope was to just stop the rapid progression of the disease, but it seems I'm getting better results than I expected. I no longer have pain in my feet and the nodules are softening in both feet and my hand.
I feel positive about my experience and I'm glad I went through with the treatment. Dr. King is so caring and knowledgeable. And the staff is wonderful.
If anyone lives on the western side of the state of Colorado and is in need of RT, please feel free to contact me. I'm happy to refer you and give you support.
All the best to everyone.
Susie

04/08/2015 06:40
spanishbuddha 

Administrator

04/08/2015 06:40
spanishbuddha 

Administrator

Re: 5 months after RT in Colorado, U.S.

susie:
I had my follow-up visit with Dr. King in Grand Junction, Colorado today, 5 months after RT for both feet and my right hand. I am doing incredibly well. I have a very physical occupation where I use my hands and stand on my feet all day. I was worried about losing function in my feet and hands.
My hope was to just stop the rapid progression of the disease, but it seems I'm getting better results than I expected. I no longer have pain in my feet and the nodules are softening in both feet and my hand.
I feel positive about my experience and I'm glad I went through with the treatment. Dr. King is so caring and knowledgeable. And the staff is wonderful.
If anyone lives on the western side of the state of Colorado and is in need of RT, please feel free to contact me. I'm happy to refer you and give you support.
All the best to everyone.
Susie
Good to hear your news, and the positive results.

04/08/2015 17:54
susie

not registered

04/08/2015 17:54
susie

not registered

Re: 5 months after RT in Colorado, U.S.

Thank you! I should have included in my original post that I would not have discovered the treatment options without this website. Plus, reading about everyone's experiences on the forum made a huge difference. This is an immensely helpful and valuable resource. I'm grateful! S.

04/08/2015 18:34
Lanod 
04/08/2015 18:34
Lanod 
Re: 5 months after RT in Colorado, U.S.

Susie,

Thank you for the update and for keeping us informed.
Well done on your good news to date!
Can you advise on the RT treatment, in terms of number of days and the Gy dose per day.

Best wishes for the futire!

04/09/2015 00:19
Cherise 
04/09/2015 00:19
Cherise 

Re: 5 months after RT in Colorado, U.S.

You have been very lucky. Great that you have had so much success with your fingers thru treatment. I lived in Englewood CO for 20 years and have family still living there.

I am in stage 4 and tried everything except RT. MY doctor said my disease was level 4 to far advanced for help.
All 4 of my fingers are effected. I had surgery anf Xiaflex on my pinky. I must wear a splint every nite and daily except for exercises. If I don't the finger will curl bak up. Then it's so painful to force it back in the splint.

I also have severe arthritis in my hands and fingers and palmoplantar psoriasis which complicate the treatment,

My doctor was skeptical of RT due to injuries from raidiation in the bones years down the line.

How long have you had DC and what stage are you in?

Kind Regards,
Cherese

04/09/2015 04:48
wach 

Administrator

04/09/2015 04:48
wach 

Administrator

Re: 5 months after RT in Colorado, U.S.

Hi Cherise,

are you aware that radiotherapy won't help anymore if your fingers are in stage 4? It is only effective when the disease is starting and you have an initial nodule or a still very small cord and no contracture. It is most effective if treated within the first year after the nodule appeared.

Your doctor is right that RT has side effects http://www.dupuytren-online.info/radioth...de_effects.html . If the radiation is applied in the proper way and dose, the side effects are very minor. Still, RT is usually not recommended for teenies but if you are beyond 50 it shouldn't be a problem. I myself had my first RT with the age of 35 and that finger is still disease free and without any problems (after more than 30 years).

Wolfgang

Cherise:
... I am in stage 4 and tried everything except RT. MY doctor said my disease was level 4 to far advanced for help.
All 4 of my fingers are effected. I had surgery anf Xiaflex on my pinky. I must wear a splint every nite and daily except for exercises. If I don't the finger will curl bak up. Then it's so painful to force it back in the splint.

I also have severe arthritis in my hands and fingers and palmoplantar psoriasis which complicate the treatment,

My doctor was skeptical of RT due to injuries from raidiation in the bones years down the line.

How long have you had DC and what stage are you in?

Kind Regards,
Cherese

04/09/2015 12:25
susie

not registered

04/09/2015 12:25
susie

not registered

Re: 5 months after RT in Colorado, U.S.

Lanod:
Susie,

Thank you for the update and for keeping us informed.
Well done on your good news to date!
Can you advise on the RT treatment, in terms of number of days and the Gy dose per day.

Best wishes for the futire!
I appreciate your kindness. Thank you!
I don't know my specific dose. My treatment course was: 5 consecutive days, 8 week break, 5 consecutive days.

04/09/2015 18:09
Lanod 
04/09/2015 18:09
Lanod 
Re: 5 months after RT in Colorado, U.S.

Susie,

Thank you very much for your reply.
Your doctor seems to be following the so-called German procedure for RT treatment - i.e. two treatments of 5 days each separated by some 2, 3 or maybe 4 months.

I wish you every success into the future and thank you again for your input.

Lanod

04/09/2015 21:47
susie

not registered

04/09/2015 21:47
susie

not registered

Re: 5 months after RT in Colorado, U.S.

Cherise:
You have been very lucky. Great that you have had so much success with your fingers thru treatment. I lived in Englewood CO for 20 years and have family still living there.

I am in stage 4 and tried everything except RT. MY doctor said my disease was level 4 to far advanced for help.
All 4 of my fingers are effected. I had surgery anf Xiaflex on my pinky. I must wear a splint every nite and daily except for exercises. If I don't the finger will curl bak up. Then it's so painful to force it back in the splint.

I also have severe arthritis in my hands and fingers and palmoplantar psoriasis which complicate the treatment,

My doctor was skeptical of RT due to injuries from raidiation in the bones years down the line.

How long have you had DC and what stage are you in?

Kind Regards,
Cherese
Hi Cherise,
I'm sorry about the complications you've experienced with your hands. Your concerns were already addressed by an expert here, I see.
To answer your last question, I noticed the nodules on my feet several years ago. They became painful after standing all day just in the last year. The nodules on my hand appeared about a year or so ago. Then, it progressed to a cord and slight contracture. That is when I went to my physician and was diagnosed.
Best wishes to you,
Susie

04/12/2015 03:00
chewie 
04/12/2015 03:00
chewie 
Re: 5 months after RT in Colorado, U.S.

susie:
Cherise:
You have been very lucky. Great that you have had so much success with your fingers thru treatment. I lived in Englewood CO for 20 years and have family still living there.

I am in stage 4 and tried everything except RT. MY doctor said my disease was level 4 to far advanced for help.
All 4 of my fingers are effected. I had surgery anf Xiaflex on my pinky. I must wear a splint every nite and daily except for exercises. If I don't the finger will curl bak up. Then it's so painful to force it back in the splint.

I also have severe arthritis in my hands and fingers and palmoplantar psoriasis which complicate the treatment,

My doctor was skeptical of RT due to injuries from raidiation in the bones years down the line.

How long have you had DC and what stage are you in?

Kind Regards,
Cherese
Hi Cherise,
I'm sorry about the complications you've experienced with your hands. Your concerns were already addressed by an expert here, I see.
To answer your last question, I noticed the nodules on my feet several years ago. They became painful after standing all day just in the last year. The nodules on my hand appeared about a year or so ago. Then, it progressed to a cord and slight contracture. That is when I went to my physician and was diagnosed.
Best wishes to you,
Susie

Glad to hear you are doing well Susie!

If you're on Facebook, you might take a look at this page https://www.facebook.com/groups/1622748151282109/ Dupuytren's Advocates for Radiation Therapy. A good bunch of dupuytren's patients and some doc's too, just trying to help others and get the word out about RT.

 1 2
 1 2
complications   Kavanaugh   knowledgeable   complicate   interventions   Colorado   diagnosed   1622748151282109   treatment   palmoplantar   Dupuytren   progression   radiation   fingers   disease   surgery   dupuytren-online   raidiation   nodules   recommended