Dealing with Dupuytrens Pain.. (2) | Dupuytren Disease | Forum for Dupuytren's and Ledderhose

ellewolfe · 2018-06-16T07:41:14+00:00

I need any advice or suggestions for the pain I have with my dupuytrens. I was diagnosed recently in April by a hand surgeon, but started getting pain and stiffness in my hands about 5 years ago, I'm 27. Since diagnosis, in just a few short months my hands have worsened with increasing dimples appearing, and the main nodule in my right hand has almost doubled in size. I have no contractures as of yet but wake up every morning with intense pain and stiffness that leaves me unable to make a fist or straighten my fingers for a couple hours. The more I use my hand, even if just "normal" usage, the worse it feels the next day. The pain is so unreal it feels like a broken bone or like someone slammed my hand in a car door. In my right hand, which is by far the most painful, my middle joints in each finger have gotten so stiff it's hard to bend them as quick or smoothly as before. Trying to make a fist or grip actually hurts more than straightening my fingers. I have been referred for radiation but the oncologist never called me back after I told him I'm uninsured. The pain is getting so bad its hard to hold a pencil, use any amount of pressure (I can't even open a water bottle), and my job involves holding a bag at times that can weigh up to 30 pounds. It's getting in the way of my job and I'm having to call out so often I'm afraid of getting fired. I'm a science student so writing and fine motor movement is kind of my life. I've tried ibuprofen, aleve, muscle relaxers, NSAID perscription gel, magnesium oil in lotion and spray form, heat, ice, etc. I have a extremely adverse reactions to prescription pain meds that leave me bedridden and vomiting my guts out, and was told by the doctor to avoid steroids at all costs because I'm hypersensitive, last time I gained 40 pounds in a month and didn't sleep for over 4 days. I'm kind of at a loss of what else I can do, I can't afford to go back to the hand surgeon for 150 dollars just to have him shrug at me. The threat of a contracture is nothing compared to this pain right now. My hands are constantly bright red and blotchy with the occasional deep bruising in the center of my palms. About a month ago I started taking glutathione after doing research into dupuytrens and free radical damage and have found that it is definitely helping if I take if before work or before activities where overuse may occur (like using a computer mouse apparently), but its not really helping in the overall daily pain. Tempted to cut my hands off and get a pirate hook. Also I tested negative for arthritis. Anyone have suggestions for pain control? Edited 06/16/18 09:43

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Dealing with Dupuytrens Pain..

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06/25/2018 08:17 spanishbuddha Administrator
06/25/2018 08:17 spanishbuddha Administrator	Re: Dealing with Dupuytrens Pain.. Hi Colleen DD can be painful, usually sore nodules, or sensitive aching hands with cramps or pins and needles where the nerves are impacted, but I have not heard before of the type of pain you describe. I would ask your doctor to check out symptoms of tendinitis, trapped or compressed nerves, or similar, and perhaps try some exercises or streches a physio can recommend, including a RICE routine to see if that helps. For DD pain people try hot, cold, pain patches, external application of NSAID such as Voltarol, gentle massage with magnesium oil, night hand splinting to a neutral position, wearing compression gloves, etc, but there is no specific recommendation. Best wishes SB
06/25/2018 08:17 spanishbuddha Administrator	Quote

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