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DATA FORM for FIRST ASSESSMENT of DUPUYTREN DISEASE
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04/12/2019 10:50
Prof.Seegenschmiedt 
04/12/2019 10:50
Prof.Seegenschmiedt 

DATA FORM for FIRST ASSESSMENT of DUPUYTREN DISEASE

Dupuytren - Basic Data Set - Form

This form has been created about 20 years ago and then further developed and used for hundreds of patients over the past two decades.

It allows to structure the most relevant information and data of the patients disease record and helps to judge whether the use of radiotherapy might be a possible treatment for any early stage disease

Stage N = disease with single or multiple nodules and / or cords WITHOUT flexion deformity
Stage N / I = disease with single or multiple nodules and / or cords WITH total extension deficit up to 10°
Stage I = disease with nodules and/or cords WITH total extension deficit up to 45°
(RT indication is limited to maximum 30° total extension deficit !)

Primary disease = without any previous invasive / surgical treatment
Secondary disease = relapse / progression after previous invasive / surgical treatment(s)

Besides the completion of the data of this form high-resolution photographic documentation
of both hand palms is essential to compare and evaluate the findings.

Additional personal notes and comments about observed clinical signs and symptoms are also very valuable basic data.

The form covers the following aspects:

- Family history
- Possible associated disorders
- Possible risk factors
- Description of possible symptoms
- Description of possible disease development
- Description of possible treatments
- Description of possible locations of nodules & cords
- Description of possible functional changes

Comments
on possible improvements of this form are very welcome and will be commented by myself.

Edited 04/13/19 17:33

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