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Young people with Dupuytren
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12/25/18 10:43
Rebecca 
12/25/18 10:43
Rebecca 
Young people with Dupuytren

Hi! I am a nineteen year old, and was just diagnosed with Dupuytren (confirmed by a hand surgeon, MRI and ultrasound). If anyone else is a young female (or male) it would be great to hear your experience with Dupuytren. Thanks!

Edited 12/25/18 10:43

12/26/18 09:35
spanishbuddha 

Administrator

12/26/18 09:35
spanishbuddha 

Administrator

Re: Young people with Dupuytren

Rebecca:
Hi! I am a nineteen year old, and was just diagnosed with Dupuytren (confirmed by a hand surgeon, MRI and ultrasound). If anyone else is a young female (or male) it would be great to hear your experience with Dupuytren. Thanks!
Hi Rebecca, I’m not sure how much of a response you will get, but we have a couple of past threads that might help, starting https://www.dupuytren-online.info/Forum_...1536686734.html. Best wishes SB

Edited 12/26/18 09:36

12/26/18 09:46
Rebecca 
12/26/18 09:46
Rebecca 
Re: Young people with Dupuytren

Thank you for the response! :)

01/24/19 09:17
Jason 
01/24/19 09:17
Jason 
Re: Young people with Dupuytren

Hi Rebecca, though I’m not “young” anymore I used to be. I’m now 43 years old. I have both DC and plantar fibromatosis. I had my first foot surgery at age 12. I had another at 13 and a third at 14. I didn’t have another foot surgery until I was 36 or 37. I have more fibromas growing in the same foot. My left foot has never been affected.

I didn’t notice any DC until late 20s or early 30s. I have had 3 surgeries on my left hand and 1 on my right hand before my 40th birthday. I also had a Xiaflex injection on my left hand prior to my last surgery. I have several bands in both hands and will most likely have my second surgery on my right hand this fall.

My experience is I have an extremely aggressive case. I assume other people who get it young have agrressive strains as well.

01/24/19 12:03
Seph 
01/24/19 12:03
Seph 

Re: Young people with Dupuytren

Hi Rebecca; Like Jason people no longer see me as young but I was young once.

My first surgery on my right foot was in my early teens. The lumps returned in no time. By the time I was twenty I hand dupuytrens in both hands and ledderhose in both feet.

I now believe young means aggressive but back then I didn't even know what it was.I hadn't connected the issues with my feet with the problems with my hands. I finally got a diagnosis in my early 30s.

The good news is that I am now 64 and the DD and LD does not get in my way. I play tennis 3 times a week, i go to the gym nearly every day, I do bicycle trips etc etc. Most recently cycling on mountain bikes with one of my daughters in Ubud, Bali.

My case is aggressive. I get treatment it comes back fast and hard. I have had surgery on one foot in my early teens resulting in a return of the lumps twice the size. Also had surgery on left hand in my early 30s. I have had NA 10-12 times and going back Paris in a couple of months to get both hands done again.

My advice is take it slow. Think long act slow. Surgery should be a last course of action not your first choice despite what the medical world my tell you.

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