Miriam,

I am in Woodinville WA not far from Redmond. I have DC and LD. My hand surgeons here have been Dr T Boyce and Dr E Nortg (the latter is in Kirkland). They both seem quite knowledgeable and competent. Dr Boyce is now in Everett.

I have not had surgery yet on feet. I had seen an orthopedic surgeon once (Dr Clark I think) but haven't been back for a while. I am now seeing a Podiatrist in Woodinville, (Dr Moore) who is trying various things. I am getting fitted for orthotics now. I have tried physical therapy to no avail. Im will post later to tell you all if anything works.

Miriam, please write if you want at jacksuzanne@yahoo.com

Jack

Question for all the LD-ers:

What is the worst condition that this disease can progress to that you have experienced, or heard anyone relate. The questions is two-fold: 1) without surgery, and 2) after surgery.

I experience pain when walking, but how bad can this get? Does the foot actually curl under so you wan't walk? Does it end in requiring wheelchair or? What is the worst case scenario?

I'm not trying to frighten anyone, I just think it helps us make decisions about surgery, and make future plans, if we have an idea about this.

Thanks,

Jack

If you haven't tried the Maseur innersoles or sandals, you need to. They are cheap and allow you to walk with a huge reduction in pain.

I ordered them at www.foottherapy.com

Jack

Linda,
Interesting information. I am wondering about cords (and contraction) in the feet. It is my understanding that generally there are no cords or contraction in the feet, only nodules. Has anyone else heard of contraction and cords in the feet? It is pretty much a consensus of opinion that surgery on the feet (arches) should be a very last resort.

I am so happy I found this site. I was just diagnosed with Dupuytren's contractions this morning. I had carpal tunnel surgery in January 2003 and within two months noticed the nodules developing on my hand. After seeing three different doctors, I finally found one who knew what has been causing this pain in my hand along with the fact that I still have carpal tunnel. The surgery didn't work on the carpal tunnel problem. I also have developed a trigger finger of my little pinky.

I, too, have been having problems with my feet for the past two years and no doctor has been able to tell me what could be going on. I didn't bring my feet up to the doctor I saw this morning because I didn't realize that my feet problems could possibly be related to Dupuytren's.

My question is - does anyone get painful contractions in their toes, similar to the trigger finger. I get severe cramps in my toes where they curl under and they feel like one great big muscle cramp. They only way I can releive the crampy like feeling is to try to stretch my toes in the opposite direction. My mother had the same problem with her feet. I also have severe pain in the tops of my feet in the mornings as soon as my feet hit the floor which disappears after walking around a little but recurs any time that I am sitting and get up to walk around. Could these problems be related to Dupuytran's syndrome?