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ledderhose (plantar fasciatis), pyronies, dupuytrens
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08/09/2002 23:37
Leslie

not registered

08/09/2002 23:37
Leslie

not registered

ledderhose (plantar fasciatis), pyronies, dupuytrens

I'm so glad to have found this Forum!

Has anyone here also developed related lumps in other extremities -- i.e., feet and penis? Dupuytrens is similar to ledderhose (plantar fasciatis) in the foot and pyronies in the penis. I am afflicted in both hands and both feet, many lumps in multiple locations on all four limbs (otherwise healthy). I've had three surgeries on my right foot, am simply trying to ignore all the other lumps, although it's getting increasingly difficult.

Does anyone have experience with applying the nonsurgical procedures discussed on this board to feet?

08/09/2002 23:42
Gary Evans

not registered

08/09/2002 23:42
Gary Evans

not registered

ledderhose (plantar fasciatis), pyronies,dupuy

Leslie,
Check out message board at:

http://groups.yahoo.com/group/ledderhose_disease/

Read messages and you will find out you are not alone.

Gary

08/09/2002 23:46
JERRY 
08/09/2002 23:46
JERRY 
QUESTIONNAIRE

PLEASE NOTE:

I am conducting an unofficial survey in an attempt to gather information with regard to our Dupuytren's problem. Please utilize the following URL to visit the site of the Questionnaire:

http://www.stcatz.org/dupuytren.htm

Remember: A large amount of responders will provide us with the most clout.

Thank you,

JERRY KLAFTER

11/28/2002 23:06
Timothy Krebs

not registered

11/28/2002 23:06
Timothy Krebs

not registered

Plantarfibromatosis

I am a 40 year old male who has had these bumps since I was 15. I am looking for some alternate cure or procedure other than removing the muscle from my arch and replacing it with a muscle from my calf(that was one doctors suggestion) ouch. Is there any kind of laser treatment or xray to shrink these bumps? any information you can send is greatly appreciated.

11/28/2002 23:08
Timothy Krebs

not registered

11/28/2002 23:08
Timothy Krebs

not registered

Plantarfibromatosis

I am a 40 year old male who has had these bumps on the bottom of both feet since I was 15. I am looking for some alternate cure or procedure other than removing the muscle from my arch and replacing it with a muscle from my calf(that was one doctors suggestion) ouch. Is there any kind of laser treatment or xray to shrink these bumps? any information you can send is greatly appreciated.
Thanks,
Tim

07/10/2004 23:45
J.cresto

not registered

07/10/2004 23:45
J.cresto

not registered

pyronies

would like to know about a treatment that works for pyronies. Jay

07/11/2004 23:04
paulette

not registered

07/11/2004 23:04
paulette

not registered

bottom of feet

To Tim, Please research carefully before you have any surgery...I have had bumps that go up and down on both feet for over 45 years and not one surgeon would operate...at least they were more conservative than the hand surgeons...the bumps never really bothered me. Several orthopedic surgeons said they never touch the bottom of the feet because the results are never good...hope that I've been helpful to you..

09/08/2004 23:07
ken 
09/08/2004 23:07
ken 
Ledderhose~sq~s & orthotics

I have DC in left hand & Ledderhose's (Plantar Fibromatosis) in left foot, with early signs in right foot. My orthopedic surgeon would only operate on the foot as a last course of action - sent me to a Podiatrist who fitted orthotics. The nodules are still there, but at least I can walk with less pain than before. Apparently, if your foot is not aligned properly that puts extra strain on the Plantar Fascia which exascerbates the Fribromatosis. The Orthotics correct the alignment and also have some allowance for the nodules to ease the direct pressure. I needed prescription orthotics though, not the drug store variety.

09/09/2004 23:11
Stage one

not registered

09/09/2004 23:11
Stage one

not registered

Plantar Fibromatosis

Hello, I have had NA on my right hand to correct a 30 degree
contracture. I also have early involvement of my left foot.
That is sore and fels like a "bunched" sock pressing on my
sole. I have no Pyronies' signs/symptoms. My personal
approach is to "monitor" the hand for recurrence, and monitor the foot for deteriorating circumtances (pain,
limitation.) Hand problem: I will return to an NA practioner.
Foot: I will consult with Dr. Lermusiaux or a staff member
affiliated with L'Hopital Lariboisiere. Dr. Lermusiaux
developed NA and has reported some success reducing foot nodules and asociated pain using cortisone injections and
NA. Fortunately, I had succesful hand NA, and have minimal
foot symptoms. When the decision point emerges, I will have
a consult with Dr. Lermusiaux or an associate (the List)
about reducing nodule(s) by NA and Cortisone injections.
If Collagenase becomes available I might reconsider my
appraoch depending on the data. Under any circumstancs,
I would be VERY hesitant to have conventional open foot
surgery to remove "involved tissue." That is a personal
opinion. In general, surgical approaches have produced
mixed results to date regarding both hands and feet. It
is not the surgeon, it is the DNA. Pyronies is a separate
and similar discussion. I have no input other than a "guess"
that Collagenase may help; genome research may provide
a "cure." Good luck; inform yourself and make choices best
for your situation. Visit the Pyronies forum. Go slow
with surgical intervention (get other opinions.)

09/09/2004 23:22
Terry

not registered

09/09/2004 23:22
Terry

not registered

hi

Please keep us posted on your progress. My circumstances are similar to yours--DP to be treated by NA late this month and early nodules in foot that are worrisome because I am a runner. I am eager to hear what the prognosis is with your feet nodules.

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