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Forum for Dupuytren's and Ledderhose 
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  • Newly diagnosed w/Dupuytren~sq~s Diseas
    • Newly diagnosed w/Dupuytren~sq~s Diseas
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    02/29/2004 23:54
    Ilona Jill Meza

    not registered
    02/29/2004 23:54
    Ilona Jill Meza

    not registered

    		 Newly diagnosed w/Dupuytren~sq~s Diseas

    I was recently diagnosed with Dupuytren's Disease. My complaint had been due to the painful nodule just below my left hand middle finger and worsening contracture of that digit.

    Everything I've read said this is not a painful condition. On the contrary, for me, this is an increasingly painful condition. Especially at night, the pain awakens me.

    I am wondering if this unusual and could be a warning of something else? Or if even though medical info says "not painful" it is normal?

    Thanks for any input.
    Jill Meza
    03/01/2004 23:14
    Anon

    not registered
    03/01/2004 23:14
    Anon

    not registered

    		 D/C

    Hi Jill,

    To answer your question, yes, it is common to have pain at night...there are lots of posts to this effect. As for treatment, if you are American or Canadian, look under the posts about Dr. Eaton. NA is a wonderful, successful, simple treatment for this very frightening problem. If you are European, NA is also available in Europe. The link can also be obtained from Dr. Eaton's website.

    There is also interesting informatio under 'Natural Approach to DC'. My husband is taking Lecithin, and has seen a *minor* improvement, but that is better then nothing. Each case if different, and you will have to decide for yourself if this sort of thing is for you.

    Good Luck.
    03/01/2004 23:52
    ANON EMUS

    not registered
    03/01/2004 23:52
    ANON EMUS

    not registered

    		 Dr. Eaton

    I would not suggest that Jill visit a surgeon to correct a nodule. Surgery will only exacerbate her condition, if indeed she was correctly diagnosed as having D/C.

    Her next step should be to see a Rheumatoid physician for confirmation.
    03/19/2004 23:05
    Dennis Cavanaugh

    not registered
    03/19/2004 23:05
    Dennis Cavanaugh

    not registered

    		 Dupuytren~sq~s Disease

    I have a friend that was recently diagnosed with D/C. He heard that there are universities and possibly other clinics doing studies on the disease and there have been injections developed to help the condition without surgery. Can you verify this and possibly give some locations where this is being done. He is close to the Boston area. Thanks!
    03/19/2004 23:21
    Patty

    not registered
    03/19/2004 23:21
    Patty

    not registered

    		 injections

    You need to go to www.handcenter.org . The only doctor in the US that does the NA is Dr. Eaton in Florida. Avoid surgery at all costs. Dr. Eaton is a miracle worker in this area.
    03/19/2004 23:37
    Eddie 
    03/19/2004 23:37
    Eddie      		Injections

    @Dennis :
    I can't believe you are asking these questions !
    This forum is being made available to us by Biospecifics, the very company that is developing the injection method you are asking for !!!!!!!
    So, verify this yourself, will you ?
    03/19/2004 23:53
    jim h

    not registered
    03/19/2004 23:53
    jim h

    not registered

    		 injections

    Dennis, your information is correct but the treatment - injections of a form of Collagenase - is years off at best. Biospecifics, the company that provides this web site and is developing the therapy, has been struggling to stay afloat financially and navigate the bureaucratic maze of FDA approval. As of now the situation does not look good.

    03/20/2004 23:24
    In the know

    not registered
    03/20/2004 23:24
    In the know

    not registered

    		 Dupuytren~sq~s

    Trust me; it is the SURGEONS that have been objecting to the use of Collagenase, NOT the FDA.....
    03/20/2004 23:51
    How do you know?

    not registered
    03/20/2004 23:51
    How do you know?

    not registered

    		 Dupuytren~sq~s


    In the know,
    Why would anyone trust you? Tell us what is your evidence for your accusation.

    03/22/2004 23:53
    Barbara Bernard

    not registered
    03/22/2004 23:53
    Barbara Bernard

    not registered

    		 web sites of interest

    www.dupuytrens-a-new-theory.com
    Kevin has done extensive research on this disease. Very good and informative site. I am very interested in his IDS theory. Let me know what you think.
    www.lynndketchum.com/
    Dr. Ketchum is a surgeon with many years of experience with DC. He states that DC is a genetic trigger that causes fibrous tissue cells in the upper dermis of the skin of the palm to secrete an abnormal protein called Type 3 Collagen.
    You will also learn the 4 different types of DC.
    Very good site.
    Has anyone been told that menopause (harmonal deficiencies)
    can be a contributing factor to DC?
    What is Glucosamine/MSM/Chondroitin supplement?
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