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09/12/2004 23:17
chadnot registered
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09/12/2004 23:17
chadnot registered
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sites
I think the 3 sites for phase III are Stonybrook, NY, Stanford, and UCLA. The lists is full at Stonybrook when I called them, but they didn't know if Stanford was full yet.
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09/13/2004 23:12
David Crommienot registered
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09/13/2004 23:12
David Crommienot registered
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Dr. Hentz is the doctor at Stanford
http://www.med.stanford.edu/fm/?/&Hentz.html&handsurgery.stanford.edu
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09/14/2004 23:02
Randy H.not registered
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09/14/2004 23:02
Randy H.not registered
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Go BioS
A Site at UCLA was planed almost 18 months ago but was never started due to lack of funding. As of last month no waiting exists for participants, meaning reactivation is not immanent. I will check again next month.
The light just came on for me about the need for BioS's injection approach. It may turn out that NA's difficulty with scared tissue from pervious surgery may not be an issue with injectable collegenase. NA depends on the "feel" of the practitioner as to what is going beneath the surface. Injections have no such problem. You apparently target the growth to be severed, inject, and shoot. Those who's previous surgeries prevent NA may be saved from further surgery by Bio's product. As I may be a candidate for this at some point, I like the sound of this. The scaring on my left pinkie is so pronounced that a team of twelve "Eatons" and a horse couldn't perform NA. My physiological reaction to surgery is in the 1 percentile of difficult. Still stiff after 16 months. Some of us really need BioS to make it.
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09/14/2004 23:14
Joanne 
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09/14/2004 23:14
Joanne
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Collegenase
Does anyone know if collegenase is being given in other countries?
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09/14/2004 23:37
Chadnot registered
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09/14/2004 23:37
Chadnot registered
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Cheerleading
I agree we need all options on the table, maybe collagenase will work when NA won't.
I think what we can do to help it through is to keep on our hand surgeons about it so they keep up with the progress, and express enthusiasm when polled by the drug copmany as they decide what size the market might be out there. I want them to think the market is huge, because then they will push forward with research, obtaining FDA approval, training, marketing, etc.
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09/15/2004 23:40
Randy H.not registered
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09/15/2004 23:40
Randy H.not registered
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The Knife
Chad:
You couldn't be more right. Refuse TIS (Traditional Invasive Surgery) and go for newer methods. Right now NA is your only option until the injections pass Phase III. Until then, anyone who subjects themselves to TIS before trying NA hasn't read the posts herein. Do we need additional noninvasive procedures? **You bet!** At present, the best way to encourage alternative treatment is to boycott TIS by going with NA before submitting to .
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09/15/2004 23:42
Randy H.not registered
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09/15/2004 23:42
Randy H.not registered
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Collagenase
..........The Knife
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09/16/2004 23:11
JERRY
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09/16/2004 23:11
JERRY
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Collagenase
I believe many sufferers are misunderstanding Collagenase. Collagenase is NOT an injection to relieve D/C.
The enzyme is used in the same manner as NA to perforate the cords.
That's it; nothing more.....
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09/28/2004 23:48
Patsy
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09/28/2004 23:48
Patsy
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Collagenase
This Collagenase treatment sounds good to me. So when will my local doctor have Collagenase to treat my DD?
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09/28/2004 23:50
Imasnot registered
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09/28/2004 23:50
Imasnot registered
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Cordase
Injection of Cordase for DC is in phase III of testing/research, then of course waiting for FDA approval. It is estimated that from now to approval and training for MDs (If approved by the FDA)perhaps 4 to 5 years????
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