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One Year Anniversary
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05/22/2004 23:14
WONDERING

not registered

05/22/2004 23:14
WONDERING

not registered

DC

HOPED TO SEE SOME INFO ABOUT ONE YEAR LATER AFTER BEEDLE PROCEDURE ON .D.C. IF ANYONE HAS SUCH, PLEASE E-MAIL ME OR POST.ALSO ANY INFORMATION ABOUT A DOCTOR SOMEWHERE IN TENNESSEE WHO DOES THIS TREATMENT.

    05/23/2004 23:27
    Sean 
    05/23/2004 23:27
    Sean 
    Dupuytren~sq~s surgery

    Randy H,
    You are not presenting the truth about surgery for DC. Anyone I have personally spoken with, who has had this surgery was surprised at the lack of pain. Very many on this forum had said the same thing. For you to state that your situation was the "norm" is putting out incorrect information solely for the purpose of perpetuating your feelings for NA (even though you haven't had NA) and your "sour grapes" feelings toward your surgeon.
    There are thousands of surgeries for Dupuytren's and very few have expressed negative feelings about surgery on this worldwide website. That should indicate to you that all surgery isn't as bad as you try to portray.
    The vast majority of people do not have more than one surgical procedure for DC.
    Having said that, it is fine to have choices between NA and surgery, but I would think it would be best not to distort the information just from your experience (or the relatively few on this forum who also are not happy).

      05/23/2004 23:53
      Randy H.

      not registered

      05/23/2004 23:53
      Randy H.

      not registered

      Six Months After NA

      Sean,

      If you'll check the records, I stopped saying my surgical experience was "normal", for some time now. I said that in the past because that is exactly what my surgeon and hand therapists told me when I questioned them regarding how difficult my recovery had become. I was told repeatedly "That's not uncommon for this surgery" . They were wrong and now they admit it. I estimate my recovery will take up to 18 months, as there is still significant swelling in many parts of my hand. I say "I estimate", because after 13 months, no one knows. I'm now on anti-inflaimetories and am seeing marked improvement.

      As my surgeon is regarded by many as the finest micro hand surgeon on the West coast, I would not hesitate to recommend him to anyone who desired to undergo traditional invasive surgery instead of NA. However, as the testimonies continue to mount regarding the great results people have had with Dr. Eaton and NA, I would consider it cruel indeed if I did not inform them of this alternative. My problem with my surgeon is his insistence that: "The needle treatment has been tried. IT DOESN'T WORK".Anyone who has studied Dr. Eaton's site http://www.handcenter.org/newfile11.htm) knows that such a statement is like saying the "Earth Is Flat". This is a shocking amount of ignorance for such a highly respected and qualified professional.

      Eventually NA as an alternative will become common knowledge among all who suffer from Dups. Presently very, very few of know about it. Once that changes, this discussion regarding the relative merits of NA Vs surgery will become entirely irrelevant.

        05/23/2004 23:59
        George Barbarow

        not registered

        05/23/2004 23:59
        George Barbarow

        not registered

        Six Months After NA

        My enthusiasm for NA rather than the gruesome old fashioned
        open up the hand and dig procedure continues high.

        I was among the first patients treated in the US by Dr. Eaton.
        See my photos and links on Dupuytrens at:
        http://dupuytrens.freewebspace.com/

        My hand is great but I detect the possibility of new
        bands forming; thus in a year or more I may have to have the procedure repeated. BUT, even if I had to have NA
        done every year I would still opt for that rather than the
        long painful old fashioned procedure which requires splints and physical therapy.

          05/03/2005 23:55
          Hammer Head

          not registered

          05/03/2005 23:55
          Hammer Head

          not registered

          high recurrence rate for surgery

          Dupuytren’s contracture of the hand is a common disabling condition. It affects up to 39% of males over the age of 60 and although less prevalent in women differences decrease as age increases. Currently the only widespread treatment is surgery, however this has a high recurrence rate, as much as 60% in some studies.

          http://www.raft.ac.uk/research/dupuytrens.html

          From the analysis of the late results after segmental aponeurectomy, several conclusions can be drawn:

          the introduction, by life table analysis, of corrective factors allowing for the different follow-up periods gives, by projection, a proportion of 68 % of recurrences after ten years; this percentage is very close to that published by
          Tubiana, for classical procedures, in a very long term review;

          this very high percentage of recurrences to which a number of extensions should be added confirms that surgery is not
          curative in Dupuytren's disease; after ten years, almost no hand would be left clear of the disease

          http://www.ccmbel.org/Chap16.html

            05/04/2005 23:58
            Father time

            not registered

            05/04/2005 23:58
            Father time

            not registered

            Two years plus after Dr. Lermusiaux Procedure

            Hammer the head,

            The post you responded to was from 2004.

              05/19/2006 23:00
              Boyke

              not registered

              05/19/2006 23:00
              Boyke

              not registered

              Two years plus after Dr. Lermusiaux Procedure

              Since Feb 2004 when I had the NA done in 15 minutes in the DRs. Paris suburb cabinet there is no significant return of the contracture. It was 30 percent contracted before the op. I still maintain that anyone who goes first for the US brand of major surgury with all its risks and pain is crazy. Try this first. If you cannot get it done in France go see Dr. Eaton in Florida. Lermusiaux trained him and he has been doing them for a few years now.

                05/20/2006 23:42
                John McGuirk

                not registered

                05/20/2006 23:42
                John McGuirk

                not registered

                Dr. Eaton

                I just had NA on my left index finger on 5/17/06. I went to Dr. Eaton in Florida and it was almost painless. My finger was pretty bad and now it about 90-95% improved. I am very satisfied so far. Aside from a little swelling in my knuckle and same bruising aroung there I am feeling great. I can make a fist and extend my finger. I sure hope it lasts. If I get a few years out of it I think I'd just do it again. I was very impressed by Dr. Eaton. He spend a lot of time before the procedure explaining the disease and the procedure. I reaaly like the guy - very unpretentious. I highly recommend him and his staff.

                  06/02/2006 23:56
                  John Bourne

                  not registered

                  06/02/2006 23:56
                  John Bourne

                  not registered

                  Needle Aponeurotomy

                  Dear Sir,

                  Is it possible for me to have needle aponeurotomy in Paris, under the British National Health scheme? If in the affirmative, how do I go about arranging this?

                  Thank you. John.

                    06/02/2006 23:48
                    Marjorie

                    not registered

                    06/02/2006 23:48
                    Marjorie

                    not registered

                    NA in Paris via NHS

                    Dear John,
                    Well, you can try but don't hold out any hopes. First , see your GP and ask if he/she can do anything. I am 99% certain the answer will be no. Then, approach your local PCT (primary care trust) and make your request. Don't expect a quick reply and don't bother crossing your fingers.
                    Depending on where you live in the UK it is quicker to go to Paris and get the NA done than waiting for a decision.
                    It is more than a year since I requested NHS payment for my NA, one I had already had and another I needed. I waited more than three months for a reply from my PCT. Eventually they turned me down. I appealed but no joy. I now have the Healthcare Commission atempting to overthrow the PCT's decision.
                    My PCT claimed that I could have a 'simple fasciotomy' at my local hospital. This involves cutting and stitches and although not full surgery is still invasive, unlike NA which is a dream. Even if you get the treatment paid for you will still have to pay your expences.
                    Good luck,
                    Marjorie

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