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Treatments/Results/Doctors /HELP
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09/23/2003 23:17
Sean 
09/23/2003 23:17
Sean 
LD

Kyle,
From everything I have read and from my own experience, being barefoot is about the worst situation for your arches and LD.

09/23/2003 23:08
Jack 
09/23/2003 23:08
Jack 
massage inserts help a lot!

Hi, I don't write often, but I had to share that I finally found something that really helps my LD pain. I have been going to a Podiatrist lately, and he has been trying various things: ultrasound physical therapy, foot massage therapy, icing, stretching, anti-inflammatories of various sorts (ointments and oral pills), local pain killer ointment, Lidoderm patches, shoe inserts, and air cushions for the arch.

He is making orthotics for me as I write this, so I can't comment on those yet, but of the other things, not much did anything until I bought some of those massage shoe inserts that I read about in the Yahoo group forum. I didn't find anything in this forum about them yet, but I imagine someone has already discussed this before.

The only treatments tried by my Podiatrist that did anything were the strectching, and wering air cushions arch supports coupled with Lidoderm patches. I could go most of the day without pain, but I really didn't want to be wearing pain patches everyday. The air cushions are a little weird to walk on, but they weren't bad. Without the patches they didn't help much though.

So I finally ordered the massage inserts ($15 with shipping), and after just three days of wering them, my pain is drastically reduced, and the nodules even seem smaller and less sensitive. I do wear them on top of gel inserts, but I don't think that is crucial, since I was wearing the gel pads before without much benefit. They probably help a little though.

Anyway, I will keep wearing these things to see how much better I feel. Even when I take my shoes off after work the pain is barely noticeable, and I can walk barefoot without pain.

Here is a web site of where I bought them. I got them two days after I ordered them. (They also sell sandals with the same massage sole.

http://www.foottherapy.com/

Has anyone else tried these with success?

I'll let you know later how the ortyhotics work out. If I can't put the massage inserts in at the same time, I will be torn as to what to do.

Regards,

Jack
(48 with LD for 10 yars, DC for 25 years)
(no foot surgery yet, 3 hand surgeries)
(do not intend to get foot surgery unless I can't walk)

09/23/2003 23:14
Amy Hays

not registered

09/23/2003 23:14
Amy Hays

not registered

Thanks for the reply

Thanks for replying Sean. I kind of wondered if this was some kind of "dormant" phase. Perhaps I should continue being as anal about taking care of my feet and I won't have any problems for a long while...hopefully! I'm glad your nodules are gone as well. Do you think it's due to caring for your feet, or just the phase of the disease?

10/22/2003 23:34
Marla

not registered

10/22/2003 23:34
Marla

not registered

PF/LD surgery

Just found this discussion guide today, and I am a little scared about all the unsuccessful surgery stories I've read.
I was first diagnosed with PF with 2 nodules on my left foot in 1997 by a podiatrist here in Hawaii. He recommended that I wear custom orthotics and try to avoid surgery for as long as possible. He was concerned about the after-effects of the scar tissue and did not mention recurrence as his reason for dissuading surgery. Well, they grew slowly but steadily, and by 2000 I was ready to try something else. I went to different podiatrist since I had changed insurance, and she examined my foot and said that surgery was the only way to get rid of the nodules. I did fine with the recuperation, but have noticed that I have hip pain since then, perhaps from walking differently for so long. I now have a few big Q's for anyone out there... Has anyone had success through an operation? I had no idea that it would have been wise to have an orthopedic surgeon do it instead of a podiatrist. Also, lately I'm feeling like one area is doing well ( scarr tissue feeling soft & pliable, no pain) while the site of the other scar tissue feels much bulkier,less pliable with tingling sensation at intermittent times. Should I just live with this? I've read a few items mentioning ultrasound and I'm curious if this is something I need to look into. Thanks to any of you for info you can share.
Warmest aloha, Marla

10/22/2003 23:05
David

not registered

10/22/2003 23:05
David

not registered

Surgery

Many, many people have wonderful results from Dupuytren's Disease surgery. Unfortunately, you don't hear from them on this site. They have gone on with their live!

Of all the people I know and meet who have had Dupuytren's Disease treated with surgery, I only know of one who has had a problem.

10/22/2003 23:51
NorCal NA

not registered

10/22/2003 23:51
NorCal NA

not registered

Success with surgery

I can say that I had successful surgery on my left little finger about 10 years ago. The DC has not returned and I have full use of the finger.

Having said that, I must point out that the NA procedures I underwent last week on both hands was nothing short of a miracle.

Also, recovery from NA takes days whereas recovery from surgery takes months.



10/22/2003 23:38
jim h

not registered

10/22/2003 23:38
jim h

not registered

stretching the truth

While surgery for Dupuytren's of the hand is often - perhaps usually - successfull, based on what I've read that is not true for Lederhose surgery.

10/22/2003 23:49
Hector B.

not registered

10/22/2003 23:49
Hector B.

not registered

stretching the truth

David sounds like Gary/Sean, saying he knows 'so many people who have DC'. i'm sure!

10/23/2003 23:34
Nat

not registered

10/23/2003 23:34
Nat

not registered

Gary-Sean

Hector:

You beat me to it. He has now affected another pseudonym

10/23/2003 23:39
David

not registered

10/23/2003 23:39
David

not registered

LD with Restless Legs Syndrome

I figured I would get flamed like Sean/Gary. That is why I did not provide my email address!

I still maintain that the vast majority of individuals who have Dupuytren's surgery have gone on with their lives.

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experience   podiatrist   complications   painful   Disease   Results   nodules   plantarfibromatosis   Fibromatosis   Surgery   radiation   cryotherapy   treatment   anti-inflammatories   fibromatosis-acupuncture-it   surgeon   plantar   orthotics   Ledderhose   Ledderhose—Indication