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Works for me
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Randy H.

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Randy H.

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I~sq~ll give it a shot

John

Thanks for your postings. Though the complete unpredictability of Dups often causes people to think they've found "the answer" when in fact they haven't, I don't know of stories claiming reversal. If I get similar results I will certainly post that fact and reference your input.

Randy H.

Tom M

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Tom M

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Thanks for posting

John:
Thanks for sharing your experience. From following postings for several years, it seems clear that each of us has a different experience. What triggers the problem for one, is different from the next person. What provides relief for one is of little value to another. So... keep doing what works for you, and please keep posting your results to inform the rest of us.

Tom M

Stage one

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Stage one

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Lecithin and DC

A wwb search on Acetaldehyde and lecithin will produce
links to a 10 year study on liver disease being ameliorated
by polyubstaurated lecithin. In a nutshell, the lecithin
components may support collagenase production which impedes
or reverses the progresion of fatty liver to cirohsis in
Baboons. (Landmark study about Baboons and Liver disease.)
Whether rhe beneficial effect extends to hands and DC has
not yet been investigated. If, one aaccepts the premise that ethanol metabolism (acetaldehyde) triggers collagen
formation in susceptible individuals, thus resulting in
fibrosis of liver tissue and can extend this process to include palmar tissue, there may be a connection. If so.
consuming 3 tablespoons daily of polyubstaurated lecithin
may help stop the progression of DC, or even reverse the
process. Sixteen ounces costs $7.50. It is not a harmful
substance. No evidence exists (IMO) that Baboon liver benefits extend to human hands. That said, it may be worth a try. Read the abstracts obtained by Acetaldehyde Lecithin
searches. I plan to give it a shot myself. Supposedly, it may also reduce atherosclerotic plaque. This is not an endorsement, only an information contribution, Caveat Emptor prevails. Soft-gel lecithin is different; the liquid is more concentrated than soft-gels. Refrigeration sounds
prudent to me. Local nutrition stores will have the soft-gels. Finding the liquid requires effort or an Inernet purchase. The liquid is about ten times more concentrated
than the soft-gel tablets. (one Tablespoon is equal to 12
gel tabs of 1200mg lecithin.) Please feel free to critique this post. I am not advocating lecithin; I am only adding
to the dialogue and welcome response.correction as needed.
Personally, I am still going for NA.

Tom M

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Tom M

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Update on ~dq~natural approach~dq~

John and others...

Some time back there was discussion here about lecithin. Have any of you had any results to date?

Tom M.

Traudl

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Traudl

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Lecithin

Earlier today I went and bought a bottle of milk thistle (Sylimarin), without Vitamin C. Should I also get some lecithin now? I've decided to see Dr. Badois in Paris. Maybe I will email him and ask his opinion re these other nutritional additives.

I am getting overly preoccupied with this stupid Dupuytren's disease, but my curling little finger keeps telling me - go ahead, try anything. Am I taking this too seriously, should I go get some Prozac, or should I just relax? I know I am whining, but the more I read on this forum, the more depressed I get.

Thanks for listening. Traudl

Stage Zero

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Stage Zero

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Lecithin

I have no lecithin report. I had NA in a 50 minute session that brought my right "pinkie" back to normal from a 30 degree contracture. Of all the non-treatment/supplemental approaches, the lecithin treatment makes the most sense,
i.e., boost the posibility of enzymes that reduce collagen
formation in the face of (?). Personally, I suggest NA as an
interim procedure (2-4+ years worth of results.) Follow that
with Lecithin and Vitamin E hand rubs (Walgreens- $7.50.)

kevin 

kevin 
NA?

Stage Zero, what is NA? TIA

Tired

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Tired

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Tired

Please do your homework by reading.

NotTired

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NotTired

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Tired

please do your homework by reading ? ? ?

and, close forums like this I suppose ?

NA: Needle Aponevrotomy

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NA: Needle Aponevrotomy

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Forum challenges and compassion

I suspect that many of us have considered
posting responses to "newbies" who are just
starting the DD journey. This forum runs the gamut from
highly knowledgeable professionals to medically naive
laypersons and first-time forum participants. I like
to do my own "reseach;" others like to ask questions.
Frankly, I am a bit surprised when a person with Dupuytren's
Disease is posting on a website that has buttons and links to information plus hundreds of posts, asks questions
easily answered with minimal effort. Then, I remember that
I have my own idiosyncrasies which others find really annoying. Sometimes I just do not "flame" and either post
a friendly response or move on without a response. It is a
forum. It is working. I think some pruning or archiving
would help. Perhaps a FAQ page would address the entry level questions. We are lucky to have this and the French
site (Lariboisiere Hospital.) I have benefitted greatly from
both. Worldwide this has enough "sufferers" to deserve
attention. That is the avenue were activist should push (IMO) not disability compensation (workmen's comp.)

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