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Works for me
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10/05/2003 23:47
Randy H.

not registered

10/05/2003 23:47
Randy H.

not registered

I~sq~ll give it a shot

John

Thanks for your postings. Though the complete unpredictability of Dups often causes people to think they've found "the answer" when in fact they haven't, I don't know of stories claiming reversal. If I get similar results I will certainly post that fact and reference your input.

Randy H.

    10/06/2003 23:04
    Tom M

    not registered

    10/06/2003 23:04
    Tom M

    not registered

    Thanks for posting

    John:
    Thanks for sharing your experience. From following postings for several years, it seems clear that each of us has a different experience. What triggers the problem for one, is different from the next person. What provides relief for one is of little value to another. So... keep doing what works for you, and please keep posting your results to inform the rest of us.

    Tom M

      10/06/2003 23:37
      Stage one

      not registered

      10/06/2003 23:37
      Stage one

      not registered

      Lecithin and DC

      A wwb search on Acetaldehyde and lecithin will produce
      links to a 10 year study on liver disease being ameliorated
      by polyubstaurated lecithin. In a nutshell, the lecithin
      components may support collagenase production which impedes
      or reverses the progresion of fatty liver to cirohsis in
      Baboons. (Landmark study about Baboons and Liver disease.)
      Whether rhe beneficial effect extends to hands and DC has
      not yet been investigated. If, one aaccepts the premise that ethanol metabolism (acetaldehyde) triggers collagen
      formation in susceptible individuals, thus resulting in
      fibrosis of liver tissue and can extend this process to include palmar tissue, there may be a connection. If so.
      consuming 3 tablespoons daily of polyubstaurated lecithin
      may help stop the progression of DC, or even reverse the
      process. Sixteen ounces costs $7.50. It is not a harmful
      substance. No evidence exists (IMO) that Baboon liver benefits extend to human hands. That said, it may be worth a try. Read the abstracts obtained by Acetaldehyde Lecithin
      searches. I plan to give it a shot myself. Supposedly, it may also reduce atherosclerotic plaque. This is not an endorsement, only an information contribution, Caveat Emptor prevails. Soft-gel lecithin is different; the liquid is more concentrated than soft-gels. Refrigeration sounds
      prudent to me. Local nutrition stores will have the soft-gels. Finding the liquid requires effort or an Inernet purchase. The liquid is about ten times more concentrated
      than the soft-gel tablets. (one Tablespoon is equal to 12
      gel tabs of 1200mg lecithin.) Please feel free to critique this post. I am not advocating lecithin; I am only adding
      to the dialogue and welcome response.correction as needed.
      Personally, I am still going for NA.

        11/09/2003 23:53
        Tom M

        not registered

        11/09/2003 23:53
        Tom M

        not registered

        Update on ~dq~natural approach~dq~

        John and others...

        Some time back there was discussion here about lecithin. Have any of you had any results to date?

        Tom M.

          11/10/2003 23:21
          Traudl

          not registered

          11/10/2003 23:21
          Traudl

          not registered

          Lecithin

          Earlier today I went and bought a bottle of milk thistle (Sylimarin), without Vitamin C. Should I also get some lecithin now? I've decided to see Dr. Badois in Paris. Maybe I will email him and ask his opinion re these other nutritional additives.

          I am getting overly preoccupied with this stupid Dupuytren's disease, but my curling little finger keeps telling me - go ahead, try anything. Am I taking this too seriously, should I go get some Prozac, or should I just relax? I know I am whining, but the more I read on this forum, the more depressed I get.

          Thanks for listening. Traudl

            11/10/2003 23:25
            Stage Zero

            not registered

            11/10/2003 23:25
            Stage Zero

            not registered

            Lecithin

            I have no lecithin report. I had NA in a 50 minute session that brought my right "pinkie" back to normal from a 30 degree contracture. Of all the non-treatment/supplemental approaches, the lecithin treatment makes the most sense,
            i.e., boost the posibility of enzymes that reduce collagen
            formation in the face of (?). Personally, I suggest NA as an
            interim procedure (2-4+ years worth of results.) Follow that
            with Lecithin and Vitamin E hand rubs (Walgreens- $7.50.)

              11/14/2003 23:21
              kevin 
              11/14/2003 23:21
              kevin 
              NA?

              Stage Zero, what is NA? TIA

                11/14/2003 23:34
                Tired

                not registered

                11/14/2003 23:34
                Tired

                not registered

                Tired

                Please do your homework by reading.

                  11/14/2003 23:10
                  NotTired

                  not registered

                  11/14/2003 23:10
                  NotTired

                  not registered

                  Tired

                  please do your homework by reading ? ? ?

                  and, close forums like this I suppose ?

                    11/15/2003 23:17
                    NA: Needle Aponevrotomy

                    not registered

                    11/15/2003 23:17
                    NA: Needle Aponevrotomy

                    not registered

                    Forum challenges and compassion

                    I suspect that many of us have considered
                    posting responses to "newbies" who are just
                    starting the DD journey. This forum runs the gamut from
                    highly knowledgeable professionals to medically naive
                    laypersons and first-time forum participants. I like
                    to do my own "reseach;" others like to ask questions.
                    Frankly, I am a bit surprised when a person with Dupuytren's
                    Disease is posting on a website that has buttons and links to information plus hundreds of posts, asks questions
                    easily answered with minimal effort. Then, I remember that
                    I have my own idiosyncrasies which others find really annoying. Sometimes I just do not "flame" and either post
                    a friendly response or move on without a response. It is a
                    forum. It is working. I think some pruning or archiving
                    would help. Perhaps a FAQ page would address the entry level questions. We are lucky to have this and the French
                    site (Lariboisiere Hospital.) I have benefitted greatly from
                    both. Worldwide this has enough "sufferers" to deserve
                    attention. That is the avenue were activist should push (IMO) not disability compensation (workmen's comp.)

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