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10/06/2003 01:47
Randy H. not registered
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10/06/2003 01:47
Randy H. not registered
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I~sq~ll give it a shot
John
Thanks for your postings. Though the complete unpredictability of Dups often causes people to think they've found "the answer" when in fact they haven't, I don't know of stories claiming reversal. If I get similar results I will certainly post that fact and reference your input.
Randy H.
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10/07/2003 01:04
Tom Mnot registered
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10/07/2003 01:04
Tom Mnot registered
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Thanks for posting
John: Thanks for sharing your experience. From following postings for several years, it seems clear that each of us has a different experience. What triggers the problem for one, is different from the next person. What provides relief for one is of little value to another. So... keep doing what works for you, and please keep posting your results to inform the rest of us.
Tom M
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10/07/2003 01:37
Stage onenot registered
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10/07/2003 01:37
Stage onenot registered
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Lecithin and DC
A wwb search on Acetaldehyde and lecithin will produce links to a 10 year study on liver disease being ameliorated by polyubstaurated lecithin. In a nutshell, the lecithin components may support collagenase production which impedes or reverses the progresion of fatty liver to cirohsis in Baboons. (Landmark study about Baboons and Liver disease.) Whether rhe beneficial effect extends to hands and DC has not yet been investigated. If, one aaccepts the premise that ethanol metabolism (acetaldehyde) triggers collagen formation in susceptible individuals, thus resulting in fibrosis of liver tissue and can extend this process to include palmar tissue, there may be a connection. If so. consuming 3 tablespoons daily of polyubstaurated lecithin may help stop the progression of DC, or even reverse the process. Sixteen ounces costs $7.50. It is not a harmful substance. No evidence exists (IMO) that Baboon liver benefits extend to human hands. That said, it may be worth a try. Read the abstracts obtained by Acetaldehyde Lecithin searches. I plan to give it a shot myself. Supposedly, it may also reduce atherosclerotic plaque. This is not an endorsement, only an information contribution, Caveat Emptor prevails. Soft-gel lecithin is different; the liquid is more concentrated than soft-gels. Refrigeration sounds prudent to me. Local nutrition stores will have the soft-gels. Finding the liquid requires effort or an Inernet purchase. The liquid is about ten times more concentrated than the soft-gel tablets. (one Tablespoon is equal to 12 gel tabs of 1200mg lecithin.) Please feel free to critique this post. I am not advocating lecithin; I am only adding to the dialogue and welcome response.correction as needed. Personally, I am still going for NA.
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11/10/2003 00:53
Tom Mnot registered
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11/10/2003 00:53
Tom Mnot registered
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Update on ~dq~natural approach~dq~
John and others...
Some time back there was discussion here about lecithin. Have any of you had any results to date?
Tom M.
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11/11/2003 00:21
Traudlnot registered
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11/11/2003 00:21
Traudlnot registered
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Lecithin
Earlier today I went and bought a bottle of milk thistle (Sylimarin), without Vitamin C. Should I also get some lecithin now? I've decided to see Dr. Badois in Paris. Maybe I will email him and ask his opinion re these other nutritional additives.
I am getting overly preoccupied with this stupid Dupuytren's disease, but my curling little finger keeps telling me - go ahead, try anything. Am I taking this too seriously, should I go get some Prozac, or should I just relax? I know I am whining, but the more I read on this forum, the more depressed I get.
Thanks for listening. Traudl
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11/11/2003 00:25
Stage Zeronot registered
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11/11/2003 00:25
Stage Zeronot registered
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Lecithin
I have no lecithin report. I had NA in a 50 minute session that brought my right "pinkie" back to normal from a 30 degree contracture. Of all the non-treatment/supplemental approaches, the lecithin treatment makes the most sense, i.e., boost the posibility of enzymes that reduce collagen formation in the face of (?). Personally, I suggest NA as an interim procedure (2-4+ years worth of results.) Follow that with Lecithin and Vitamin E hand rubs (Walgreens- $7.50.)
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11/15/2003 00:21
kevin
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11/15/2003 00:21
kevin
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NA?
Stage Zero, what is NA? TIA
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11/15/2003 00:34
Tirednot registered
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11/15/2003 00:34
Tirednot registered
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Tired
Please do your homework by reading.
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11/15/2003 00:10
NotTirednot registered
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11/15/2003 00:10
NotTirednot registered
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Tired
please do your homework by reading ? ? ?
and, close forums like this I suppose ?
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11/16/2003 00:17
NA: Needle Aponevrotomynot registered
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11/16/2003 00:17
NA: Needle Aponevrotomynot registered
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Forum challenges and compassion
I suspect that many of us have considered posting responses to "newbies" who are just starting the DD journey. This forum runs the gamut from highly knowledgeable professionals to medically naive laypersons and first-time forum participants. I like to do my own "reseach;" others like to ask questions. Frankly, I am a bit surprised when a person with Dupuytren's Disease is posting on a website that has buttons and links to information plus hundreds of posts, asks questions easily answered with minimal effort. Then, I remember that I have my own idiosyncrasies which others find really annoying. Sometimes I just do not "flame" and either post a friendly response or move on without a response. It is a forum. It is working. I think some pruning or archiving would help. Perhaps a FAQ page would address the entry level questions. We are lucky to have this and the French site (Lariboisiere Hospital.) I have benefitted greatly from both. Worldwide this has enough "sufferers" to deserve attention. That is the avenue were activist should push (IMO) not disability compensation (workmen's comp.)
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