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Ketogenic Diet is helping me
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05/28/2006 23:38
Roxanne

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05/28/2006 23:38
Roxanne

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Ketogenic Diet is helping me

I'm sure there are mentions of this, but I scrolled through the topics and don't see it.

One week ago I started a Ketogenic diet to manage my severe hypoglycemia. I simultaneously removed Caffeine, Alcohol and Carbohydrates from my diet. I'm also trying to avoid artificial sweeteners and MSG.

Essentially a ketogenic regime means getting your body to burn fat instead of glycogen for energy. I was constantly crashing before, and now have so much energy that it almost feels unreal.

In addition to my immediate recovery from the symptoms of hypoglycemia; I have realized a remarkable change in my hands and feet. Before the diet, I had a growing and painful lump in my hand and foot. When I got out of bed, my feet cramped so badly that I couldn't walk for a few seconds. The cramping is all but gone. The pain and tenderness from the lumps are gone and the lumps have shrunken so that they are hardly noticable.

I'm really excited about this bonus result of the diet. Has anyone else used the Ketogenic diet? And if so, what results did you get?

05/31/2006 23:22
Roxanne

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05/31/2006 23:22
Roxanne

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Am I the only one?

Has no-one else tried a Ketogenic diet?

I'm coming up my second week. I feel great, have lost 5 lbs. and my lumps have shrunken dramatically.

Not sure whether it's the lack of caffeine, carbohydrates or alcohol (though I have had a small amount of gin), or a combination of these things; but I'm amazed at the changes.

05/31/2006 23:34
Skeptic

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05/31/2006 23:34
Skeptic

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Re: skeptic

you are a fraud. There has never been any evidence of nodules being reduced by diet change.
Go post your garbagge elsewhere.

05/31/2006 23:43
Roxanne

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05/31/2006 23:43
Roxanne

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Re: skeptic

That's pretty rude.

I started coming to this forum because I was devastated to find out I had this disease. I've read everything I can find looking for something that would help.

There are many websites that suggest a link to diabetes or blood sugar disorders. I started this diet to manage my hypoglycemia; which it has done very well. The shrinking and loss of pain in my lumps was an unexpected bonus; which I was excited to share with others who are suffering with this.

I understand that this forum is full of crazy spam. But I'm afraid you're throwing the baby out with the bathwater, here. I have come to share a legitimate result and learn whether or not anyone else has had a similar experience. I find you to be quite ignorant in your response.

Instead of your juvenile response, you might have pointed me to some legitimate studies proving that the particular diet I am on has no effect on the stage of lumps that I have. Even if there is a study that specific, I might remind you that studies are often flawed. I am convinced that some change in my diet has caused this and am hoping that others might be able to shed some light upon it.

I can only hope that everyone here is not as rude (and cowardly) as yourself. I have posted my real name and my email address and will be happy to discuss this with anyone who is interested.

Sincerely,
Roxanne

05/31/2006 23:41
Randy H.

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05/31/2006 23:41
Randy H.

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Not!

Roxanne,

Welcome to the Forum. It can get nasty. Sorry, but just get on with it. Don't take this stuff personally.

I have been adhering *strictly* to the Atkins diet, which is the strictest of all low carb approaches. I was on this died *before* my Dups appeared. It hasn't helped me an inch as far as I can tell.

That's not to say Low Carb isn't the way to go. I'm all in. But sorry, I can't validate your findings.

06/01/2006 23:22
Wolfgang

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06/01/2006 23:22
Wolfgang

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Diet helps?

Individually something, e.g. a low carb diet, might have definitely helped. But the link between diet and improvement is just assumed, it might as well have been just a coincidence. Better evidence would require that if you stop the diet the nodules get worse and if you start it again they get better. But even then those results might still just be valid for the specific person, we all know that we react quite differently to Dupuytren therapies.

An accepted therapy should at least work for a major share of the patients, at least better than the amazingly successful placebos. No diet has achieved this so far, though I still like the idea of eatings lots of tomatoes ...

Wolfgang

06/01/2006 23:43
Cyclone

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06/01/2006 23:43
Cyclone

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ketogenic diet

googling 'ketogenic' brings an interesting read. Couldn't find anything linking ketogenic with dups. Ketogenic diet seems like the Atkins plan.
Following the ketogenic you will loose weight as calorific intake is restricted to 75% of required daily allowance.
Roxanne I have an acquaintance whom I met through this forum. He has Dups and a disorder causing mood and weight fluctuations. When up in weight and depressed his nodules hurt and enlarge. When feeling tops he looses weight and rapidly the nodules receed and don't hurt.

06/01/2006 23:01
Cyclone

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06/01/2006 23:01
Cyclone

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ketogenic

Roxanne

I forgot to say that I wasn't insinuating that you have a mood disorder. Only to suggest there are many resons why someone might have experienced similarly to you.

06/01/2006 23:45
Roxanne

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06/01/2006 23:45
Roxanne

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Thanks!

Now that's more like it:)

I did the Atkins diet a few years ago, before I discovered my nodules. (I suspect the one in my foot has been there for a while). I believe the premise of a Ketogenic diet is to keep your body in a state of ketosis forever, as opposed to the initial stage of Atkins. That's why I was curious if there is anyone here who is on the ketogenic diet, in particular.

From the American Epilepsy Foundation website.
"The ketogenic diet, which is very high in fats and low in carbohydrates, was first developed almost 80 years ago. It makes the body burn fat for energy instead of glucose. When carefully monitored by a medical team familiar with its use, the diet helps two out of three children who are tried on it and may prevent seizures completely in one out of three."

My mother is hypoglycemic and has severe Ledderhose. This led me to wonder if there is a link to glucose and Dupuytren's. The only thing I could find about this is a study on

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=190288&dopt=Abstract

that states:

"Enzymes of glucose metabolism in palmar fascia and Dupuytren's contracture.

Hoopes JE, Jabaley ME, Su CT, Wilgis S, Im MJ.

Several enzymes participating in glucose metabolism and some of the acid hydrolases were assayed in palmar fascia and Dupuytren's contracture with fluorometric microanalytical methods. The enzyme activities of glucose metabolism were lower in normal palmar fascia than in dermis. The fascia of Dupuytren's contracture exhibited a general increase in the enzyme activities of glucose catabolism. Little alteration was found in alanine aminotransferase and UDP-glucose dehydrogenase activity in the lesion. Lysosomal hydrolytic enzyme activities were increased five to ten times in Dupuytren's tissue. The dermis overlying Dupuytren's contracture exhibited an increase in the enzyme activities of glucose catabolism, but to a lesser degree than did the fascia of the lesion. The epidermis of involved palmar skin displayed normal enzyme activities.

PMID: 190288 [PubMed - indexed for MEDLINE]"

Can anyone explain what this means in layman's terms?

Right now I don't have insurance. Before I started this diet, I was having minor seizures once or twice a week and my body was under high duress. Many doctors in my past were unable to diagnose my hpyoglycemia, nor were they concerned about my troubling symptoms. The only reason I was finally diagnosed is because I found a doctor (in another city) who has it too. Once I'm being monitored by a good doctor, I might experiment with going off the diet.

I'd love to stay in touch with anyone who has been in ketosis or tries it in the future. Perhaps there will be a study of this, one day.

Thanks for your replies.
Roxanne

06/01/2006 23:50
Roxanne

not registered

06/01/2006 23:50
Roxanne

not registered

PS Cyclone

BTW, Cyclone; your post is also very interesting. I have gained quite a bit of weight in the past couple of years; and my nodules became noticeable during the last year.

However, as soon as my body went into ketosis, the nodules receded. This was within the first week; and I had only lost one or two pounds. The cramping in my feet stopped right-away, too.

I'd be curious to find a link to weight loss, though.

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