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Laser treatment
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09/30/05 02:50
Linda 
09/30/05 02:50
Linda 
Laser treatment

I was wondering if anyone has tried Laser treatment for Dupuytren's. I'm in Southern California and was diagnosed with Dupuytren's about 6 months ago. A friend of mine has been getting laser treatment for carpal tunnel syndrome, and suggested I call her doctor to see if they treated for Dupuytren's. I was surprised to learn that they did. However, I am sure my insurance (Kaiser) will not cover the consultation fee of $225 as they already have referred me to another doctor, who diagnosed DD and told me to do nothing until it got worse and then consider surgery. I would like to hear from anyone who has had laser treatment, or looked into it, before spending $225 on a consultation. Treatments are $50, but I have no idea how many treatments would be involved until I went for a consultation.

I am in the beginning stages with 2 small nodules. I have been reading the forum for a few months now and am considering radiotherapy in Germany sometime next year. However, it would certainly be easier to be treated in CA if I could expect good results.

01/23/06 01:15
Linda 
01/23/06 01:15
Linda 
Cold Laser Treatment Update

I have also posted this information under "Results of Acetyl-1-Carnitine Study". I would love to hear from anyone who has tried cold laser treatment.

My Acetyl-1-Carnitine Study response:
How long have you had Dupuytrens disease and how aggressive has it been in the past?

"I noticed two small nodules in my palm while playing tennis about Feb ’05, and was shortly thereafter diagnosed with Dups. The nodules approximately doubled in size over the next few months. I am female, age 61, of Ukrainian ancestry, with no known history of Dups in my family. In November ’05, I was diagnosed with Carpal Tunnel Syndrome. My doctor (who has been treating me for Dups and Carpal Tunnel) said that he has seen many patients that had both Dups and Carpal Tunnel but knows of no direct correlation between the two."

Have you had previous surgery or N.A. for Dups (if so, how often and results)?

"I have not had N.A. or surgery"

Do you have a family history of Dups that you know of? "No"

Approximately when did you begin taking A-l-C? "8/3/05"

What dosage level? "1000 mg per day"

How long did you continue to take it? Did you change dosage levels during this time?

"I have not changed dosage levels, and am still taking it."

Have you been trying any other therapies or drugs during this time that you feel might be affecting your Dups disease?

"I started cold laser therapy 11/29/05, and on my doctor’s advice began daily exercise of my hand by massaging the cords from my palm towards my fingers. I was taking Vit C supplements for many years but discontinued taking them the beginning of May ’05. I also had been taking glucosamine with Condroitin for a couple of years, which I also discontinued taking about May ‘05."

What (if any) changes have you noted in your condition during the time you have been taking A-l-C?

"My nodules have almost disappeared, but I have no way of knowing whether that was due to the cold laser treatment, exercise, and/or A-1-C."

01/23/06 01:10
Kristen 
01/23/06 01:10
Kristen 
A-L-C results (or lack thereof)

How long have you had Dupuytrens disease and how aggressive has it been in the past?

"Knuckle pads on both ring fingers between 1988 and 1992. Chronic problem for years, then went away after a couple rounds of cortisone. Lump in right palm appeared in 2000, ring finger curled within six months. At the same time, left pinky began to thicken and curl - no lumps in palm. Extremely aggressive since 2000."

Have you had previous surgery or N.A. for Dups (if so, how often and results)?

"I started going to France for NA in 2001. I have had it performed 8 times now, generally about every six months. I have been to Lermusiaux, Badois, Lellouche, Eaton and Zidel. I gave up on the pinky about 2 years ago because NA didn't work due to a frozen PIP joint. I have OS scheduled for Feb. 23rd. I'm not happy about it, but it is curled almost back to my palm. It's this or amputate the little beast."


Do you have a family history of Dups that you know of? "No - though I know little of my father's family due to early divorce. I'm French, German, English, Irish with ancestry on both sides loaded with diabetics and alcoholics - though no one in my family currently has either affliction"

Approximately when did you begin taking A-l-C? "
"Early 2005"

What dosage level? "500 mg. morning and night"

How long did you continue to take it? Did you change dosage levels during this time? "6 months on 1000 per day"

Have you been trying any other therapies or drugs during this time that you feel might be affecting your Dups disease? "No - I take no drugs at all - just a multivitamin and calcium pills."

What (if any) changes have you noted in your condition during the time you have been taking A-l-C?
"Zip, nada, zilch - it recurred within 6 months as it always had.
I'm also a colchicine and allopurinol failure. So far, nothing seems to slow it down. Sorry I don't have anything positive to report - on the up side, the A-L-C produced no side effects, positive or negative."



01/25/06 01:32
Linda 
01/25/06 01:32
Linda 
Cold Laser

Someone asked me under another topic to explain "Cold Laser treatment". Information is available on this website: http://www.coldlaser.com/

01/26/06 01:00
Wolfgang

not registered

01/26/06 01:00
Wolfgang

not registered

laser therapy

Linda, the cold laser that you describe sounds pretty much like the laser that was recently used on a Swiss patient for treating Ledderhose. Her nodules decreased in size and the inflamation went away. She is quite satisfied with this treatment. Unfortunately the doctor who resides in Hamburg, Germany, for whatever reason, does not want his name to be published and did not share any statistics.

How did you experience your laser therapy? Did it help?

Wolfgang

01/27/06 01:08
Linda 
01/27/06 01:08
Linda 
laser results

Wolfgang,
I've only been treating for a couple of months, but it seems to be helping a lot. My nodules are now very, very small. It has certainly helped my carpal tunnel.
The treatment is painless and takes only a couple of minutes. The first 2 weeks, I went for treatment 3 times per week. Then once a week for a few weeks. Now I am down to once every other week. I will post again if there is any change in my condition. I will also try to get more information of the machine that is being used.
Linda

01/28/06 01:34
Wolfgang

not registered

01/28/06 01:34
Wolfgang

not registered

promising

Hi, Linda!

That sounds promising and confirms what our Swiss patient had written, she also reported that her nodules shrank considerably and became painless. If you could find out what laser has been used that would be really great because we then could look for such lasers also elsewhere (obviously you have to use this therapy repetitively, thus you better live close by). Long term effects of this treatment are also very interesting, so please keep in touch!

If you want to also post your experience also in our forum on www.dupuytren-online.info you are very welcome! I started there under "Other therapies" a thread on laser therapy and plan to collect experience. There is very little literature and personal experience available, therefore collecting it makes sense.

Wolfgang

03/30/06 02:13
Michael L.

not registered

03/30/06 02:13
Michael L.

not registered

I~sq~m skeptical


I'm skeptical of this. If cold laser treatments have such wondrous effects on such a broad spectrum of disorders, why haven't we heard of it before? Why doesn't every hospital offer it? And if you read http://www.coldlaser.com, you find that Dr. Glen Smith, apparently the owner (or at least front man) for the clinic, isn't a real doctor, he's a chiropractor. And that's a major red flag - health treatments touted by chiropractors should be viewed in the same light as financial schemes touted by Nigerians.

03/30/06 02:32
Wolfgang

not registered

03/30/06 02:32
Wolfgang

not registered

laser therapy

Michael, I whole heartedly agree with you that the vast claims of cold laser to cure all sorts of diseases are very suspicious, if not disgusting. Some web sites sure make fools of patients.

But some people report that the laser treatment helped shrinking their nodules. That might just mean that the swollen tissue around the Dupuytren nodule has been reduced and the actual nodule is still untouched. It certainly requires further research and far better statistics.

But if laser therapy makes Ledderhose less painful, at least for some people, it might find its place. For the time being laser therapy for Ledderhose or Dupuytren is far from being a reliable and established therapy and it is certainly not miraculous. But the anecdotal evidence is interesting, maybe important and worth collecting.

Wolfgang

03/30/06 02:37
Dirk 
03/30/06 02:37
Dirk 
laser treatment

Dear wolfgang, I would first like to thank you & the Randys for keeping us sufferers debating. I tried laser with Dup.d in both hands. the main treatment was on my right hand, ring finger with a 40 degrees contracture with a thick cord in the palm with nodules between Dip/pip/MCP joints. Used 100 mW set on 20 sec pulse for half hour on 2 visits per week. each time it softened growth. We tried 500Mw which seemed to cause the growths to harden & nodules to increase in size. After a number of weeks there is no improvement. I would say laser is suscpect in my case. Maybe in early stages it may help Dirk

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