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NA in London
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05/04/06 02:35
Marjorie

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05/04/06 02:35
Marjorie

not registered

NA in London

I have contacted a doctor in Kent who has expressed some interest in NA. I am awaiting a reply. I have also written to a surgeon in my home town who performs a 'simple fasciotomy' on certain of his patients who would not be able to cope with full blown surgery.
Anyone in the UK who feels that they could try to interest surgeons in their area in the NA treatment please go for it.
If there is anyone doing anything less invasive than full surgery then they must have the interests of their patients at heart. To find out if anyone in your area is using the less invasive 'needle fasciotomy', contact your local PCT. These practitioners may never have heard of 'needle aponeurotomy' and it needs someone to inform them. It will only need one person to be interested enough to go to Paris for training to set things going. This is what happend in the USA and now there are 8 practitioners of NA.
Come on folks, give it a go. What have we got to lose. Everthing has to start from somewhere.
Marjorie

05/07/06 02:23
Wolfgang

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05/07/06 02:23
Wolfgang

not registered

NA in London

Marjorie, we received a letter from aomeone in England who mentioned that his wife recently had successful NA for Dupuytren at the Royal London Hospital. I am trying to find out who specifically performed it and will, of course, keep you informed.

Wolfgang

05/08/06 02:41
marjorie 
05/08/06 02:41
marjorie 
NA in the Uk

Wolfgang,
Thanks for that. I am quite surprised to hear that someone in the UK is practicing NA. The British Society for Surgery of the Hand say that no-one in the UK is registered for NA. What we do have is certain surgeons practicing 'simple fasciotomy' which is cutting the cord through several small cuts in the hand. I do hope you are correct as there are many people living within easy reach of London who would benefit from NA.
Marjorie

05/11/06 02:02
Wolfgang

not registered

05/11/06 02:02
Wolfgang

not registered

NA in the Uk

Marjorie, I had put this already in another thread but it ought to be in this one. I have confirmation that a patient from the UK successfully got NA at Royal London Hospital. And, to ice the cake, NHS paid for it. Unfortunately I still haven't gotten the name but I can see the light ... something's going on in the UK.

Wolfgang

05/11/06 02:59
marjorie 
05/11/06 02:59
marjorie 
ANY NEWS?

Wolfgang,
I hope that you are correct that someone at the Royal London is doing NA. I am not sure what you mean about the NHS paying for it. The Royal London is an NHS hospital so no-one should have to pay. I have emailed the hospital for information but no reply so far.
Marjorie

06/02/06 02:34
Sara

not registered

06/02/06 02:34
Sara

not registered

ANY NEWS?

Hello everyone,

Does anyone have any more news about anyone offering NA either at the Royal London Hospital or indeed elsewhere in the UK? If so, has anyone had it for a PIP contracture?

06/03/06 02:51
Wolfgang

not registered

06/03/06 02:51
Wolfgang

not registered

UK

Sara, unfortunately we still don't know the name of the doctor who provided NA at Royal London Hospital. I talked to the patient's husband recently and he told me that he first wants to get the doctor's approval to forward his name. Let's see. In any case his wife had intended to go to Paris and mentioned that to the UK doctor and then the doctor offered to do it himself. He then successfully did NA.

Wolfgang

06/15/06 02:58
marjorie 
06/15/06 02:58
marjorie 
Don~sq~t lose heart

Hi folks,
Have you ever felt that you were fighting a losing battle? Did you ever feel that no-one else cares/
I am still waiting to hear from the doctor and surgeon I wrote to many weeks ago. Guess I will stop waiting now.
Is there no-one in the UK willing to take up the fight with me?
I am off to see cher Dr Lermusiaux in September as my left liitle finger is pulling again. Can't be helped as it was left too late before I had the courage to jump into the NA camp. Still paying my own costs as there is no news yet from the Healthcare Commission who are trying to change my PCT's decision not to fund my treatment.
marjorie

06/19/06 02:39
marilyn 
06/19/06 02:39
marilyn 
Don~sq~t lose heart

Marjorie
The doctor in Kent may well be waiting to se the results of Dr Badois´ treatment on my friend´s hands. As I have just received a postcard from Paris reporting success on one hand (even though after surgery) maybe maybe this will trigger something off?...... Will report more when know how other hand went. Not seen results myself.

06/21/06 02:56
Sara

not registered

06/21/06 02:56
Sara

not registered

Don~sq~t lose heart

Marjorie,

You have done so much to try and get this accepted here.

I know how you feel, I have been to the DOH directly, my MP, PCT, I have contacted the BSSH, individual so-called expert hand-surgeons who do not even bother to reply. I know how you feel. We are lucky we can keep going to France. But we know that is not the point. I also think we are not the only two who have tried to challenge the authorities. I find the whole thing quite frightening. Why are we not listened to as sufferers of the condition? It is medical arrogance in the extreme. At least our condition is not life-threatening. How many other inefficient procedures are we using here?

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Hospital   information   contracture   Wolfgang   specifically   hand-surgeons   confirmation   Dupuytrens   treatment   life-threatening   instructions   successfully   practitioners   fasciotomy   Marjorie   contribution   Unfortunately   aponeurotomy   surgery   Dupuytren