Needle Aponeurotomy in the UK |
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11/30/2004 23:50
Selwyn Foremannot registered
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11/30/2004 23:50
Selwyn Foremannot registered
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Needle Aponeurotomy in the UK
Does anyone know of a hand surgeon offering Needle Aponeurotomy in the UK? The Dupuytrens effects two fingers on my right hand (two Fasciectomies) and one finger on my left (no operation as yet but recommended for mid 2005).
My consultant says I need a third open hand operation on my right little finger.
Thanks
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07/09/2006 23:49
colin dunnenot registered
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07/09/2006 23:49
colin dunnenot registered
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dupuytrens contractures
Can anyone give me any information on needle aponeurotomy treatment for dupuytrens in the UK? Or anywhere else for that matter? Thanks. colin dunne
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07/09/2006 23:13
Marjorienot registered
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07/09/2006 23:13
Marjorienot registered
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What next?
Colin, There is no-one in the UK regularly performing NA and certainly no-one who is Paris trained and that is important. There have been rumours of two surgeons who have done the procedure, once only it is believed but it is impossible to trace them. Below find the web address of the practitioners currently performing NA and who are Paris trained. http://perso.wanadoo.fr/f.badois-dupuytren/html/liste.html Marjorie
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07/30/2006 23:30
Saranot registered
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07/30/2006 23:30
Saranot registered
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What next?
Hello fellow UK DD sufferers,
We have been trying for ages now to get the procedure in the UK. I can't understand why some doctors are supposed to be performing NA here, but are reluctant to make themselves known! I think we all agree that they are not French-trained, or they would be on the list.
Marjorie, I know you have really worked hard on this too. What do you think we can do now, as all our efforts seem to have come to nothing? It is quite a depressing situation.
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07/30/2006 23:53
Marjorienot registered
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07/30/2006 23:53
Marjorienot registered
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Cost
Hi Sara, I don't really know what we can do. I have been in touch with the BSSH but no joy. I have written to one GP who expressed an interest but, he apparently thinks he will not be allowed to do the NA even if he goes for training. I have written to a local surgeon who performs the 'simple fasciotomy' but he has not replied. I have via my local MP been in touch with the minister for health but nothing came of that. I am presently persuing my claim for repayment of the NA from my PCT via the Healthcare Commission and am expecting a decision any time now. Perhaps it is too easy for the Government to pass things around so nothing gets done, which is exactly what happened when I tried. Maybe we should approach the opposition and give them something to fight for. I am willing to write to David Cameron, how about you and anyone else reading this post? Come on folks, let's give it a go. I am fed up with having to go out of the country for such a simple procedure. It makes our medics look so stupid and behind the times when they cannot do something so simple. Marjorie
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07/31/2006 23:11
Marjorienot registered
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07/31/2006 23:11
Marjorienot registered
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Cost
Sara, Hello again. I have today received notice from the Healthcare Commission that my request for funding has been rejected. I am in the process of compiling all my data to send to the Health Service Ombudsman. I have spoken to someone in that department today and they are willing to look at my case. I have written a letter to David Cameron and that will be in the post tomorrow. Hope someone else is going to make the effort. I am also going to make contact with the European Paliament. See details below. 'All member States must respect their obligations as outlined in the acquis communautaire (EC law). This committee deals with complaints by citizens who feel that their rights as enshrined in European law have been violated. It is for the European Parliament's Petition's committee to look into these allegations (should the petition be deemed admissible) and attempt to take action to rectify citizens' grievances brought before the committee in the form of petitions'.
For more information on the work of the committee and how to submit a petition, please click on the link below:
http://www.europarl.eu.int/parliament/public/staticDisplay.do?id=49&language=EN
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07/31/2006 23:58
Trevornot registered
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07/31/2006 23:58
Trevornot registered
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Cost
Hi Marjorie
If it's not a no no question, how much does NA cost and what are the expected timescales for follow up procedures?
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08/01/2006 23:53
Dr. Ph. Catrynot registered
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08/01/2006 23:53
Dr. Ph. Catrynot registered
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Dupuytren
Hello to all patients with dupuytren contracture,
I'm Dr. Catry working at the university hospital of Antwerp Belgium and performing Needle Aponeurotomy for 5 years now. I'm trying to come and introduce the treatment in the UK but the contact with the private hospital (BUPA)is very slow. What I not agree with is that you think only French-educated Dr's can do the procedure well. I went several times to France to see how they did the treatment and I started on my own.I' m not on the French list and I do about 10 procedures a day, with great results. We are even busy with trying to treat the peyronie disease on the same way. I was teacher of anatomy for 10 years and I think my knowledge of that matter is better than the average French-educated practicioner. By the way you call it yourself a very simple procedure so it can't be that difficult
If you have any reaction you can mail me or call me : 0032 8214535
Dr. Ph. Catry
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08/01/2006 23:19
Marjorienot registered
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08/01/2006 23:19
Marjorienot registered
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NA at NHS
Hi Trevor, The cost of NA differs depending who you choose. One finger can cost anything from less than 100 to as much as 400 euros. I must say that the 400 was a bit of a shock when I read a recent post on this forum. As regards timescales for follow up, I can only say that everyone is different. Some people go for years without recurrence and some need treatment every year. Marjorie
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08/01/2006 23:25
Marjorienot registered
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08/01/2006 23:25
Marjorienot registered
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NA at NHS
Trevor, Sorry, the 400 euros charge for one finger was on www.dupuytren.org and was in Brussels. Marjorie
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