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Operation
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07/08/05 02:46
Peter 
07/08/05 02:46
Peter 
OS

You all seem To have become friends. thanks for all the help and advise. Will keep you posted as to "What happens next"
regards

07/12/05 02:07
Martin

not registered

07/12/05 02:07
Martin

not registered

surgery

Peter,

I am in Johannesburg, had a limited fasciectomy 3 years ago, hand is now as good as new. I had no pain at all, did not even use a single pain killer prescribed, PT afterwards was critical and had to continue longer that I had anticipated. On this forum you will find some very strong views on NA, and I will consider this when my other hand has to be done, but for now I am very pleased with the outcome of my surgery.

Martin

07/12/05 02:53
John

not registered

07/12/05 02:53
John

not registered

Had Surgury on Right Hand. Too Quick?

I went to my family doctor about a marble size lump on my hand and he sent me to a Osteopathic Surgen. The surgen told me I had a mild case of Dupuytren's Contractor and the only way to correct it was surgury. I asked him what was involved and he said a "Simple 15 Minuet Procedure". I told him the lump was really irritating and he said he could do the procedure on the 30th of May, 2005. This was on the 28th of May, 2005. I told him I would like to get rid of the lump.
Well, since the surgury I've been in physical therepy for 8 weeks and still don't have the full use of my hand. There is a thickness in the palm that interferes with closing it. I know it's kind of late now, but I wish I would have found this forum before having it done.
I had 0% contracture in my fingers. The only thing I had was the lump about the size of a marble.
I know feel that the surgeon should have advised me that my condition was not severe enough for treatment. I go back to him next week and I'm not sure how to handle it. I feel I need to tell him how unhappy I am with the way he handled the whole thing.
I know I'm responsible for my decesion but I went to him because he was a professional and should know best.

07/12/05 02:38
J Ann

not registered

07/12/05 02:38
J Ann

not registered

post op

John

I to went under the knife quickly and had 4 months of theraphy and I still have contracture (due to scar tissue) the lump is gone but I still can not use my hand the way i could before. my lump is gone though, a small consulation! So I do understand your concern, every person recovers from surgery differently. With DC there is no way to tell how you will react until afterwards. Sorry and I do feel your pain.....

07/12/05 02:05
Mike

not registered

07/12/05 02:05
Mike

not registered

Surgery

John,
Having surgery was the worst thing you could have done. It was very bad advice. Some people go their whole life with nodules which don't develop into contraction.

07/13/05 02:24
Senor Ultimo

not registered

07/13/05 02:24
Senor Ultimo

not registered

never

was diagnosed about 5-6 years ago. have nodules in palms, slight stiffening in fingers, will never have surgery. If fingers bend, will have NA.

07/13/05 02:34
John

not registered

07/13/05 02:34
John

not registered

Surgury Too Quickly

I guess the main thing that causes me the most problem about the Doctor's advice was the time period between my first visit and the surgury. If he hadn't said a "Simple 15 minute procedure", I would have backed off and thought about it.

07/14/05 02:52
Frances

not registered

07/14/05 02:52
Frances

not registered

My surgery

Hi Peter,

Consider traveling to France or encouraging your surgeon to go to France for training by showing him the 2 minute news clip from Channel 7.

Frances

11/08/06 01:07
Les

not registered

11/08/06 01:07
Les

not registered

My surgery

Well, I too am sorry I did not know about this site befor my surgery. My little inger on my left hand had closed a great deal and i had lumps on every finger and major lumps on my palm. I had the surgery at the end of June 2006. My Dr, said I had a major reaction to the surgery (FLASH it is called). Industrial scarying whcih occures in 1 of 50 patients. The little finger is more curled than before surgery. I cant make a fist and have to wear various splints. My OT says we have to fight the scare tissue for a year. The surgery was done at Kaiser. I went to Stanford and was told the same 1-50 number. However that surgeons recommendation was to wait a year and e will remove scare tissue, but that FLASH coul accure again. As for the right hand, he had never seen such concentration of DC, but he wants to wait until the disease "calms down".

Both Drs admitted here is a lot of unkowns about DC.

11/08/06 01:40
Randy H.

not registered

11/08/06 01:40
Randy H.

not registered

Rock and a Hard Place

Les,

The unfortunate truth is that a number of us react very badly to the knife. More unfortunate is that fact that both NA and Collagenase (if it ever become available) are more susceptible to recurrence, rendering them useless against aggressive disease. However, I think NA is always worth a try before resorting to Open Surgery. Your Stanford doc may be a little more open to it's use now that the ASSH has recognized it as a valid treatment. Then again, he may not. In any case, Denkler is in you aria so I'd also consult with him. He is also associated with Stanford. Good man.

Personally, my left hand is a mess 3 1/2 years post OS, but my right is doing fine after NA 1 1/2 years ago. My disease is not too aggressive so I hope to avoid further OS indefinitely. I too have extensive scar tissue on my right OS hand, but I can't imagine having it cut again. No thanks.

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