Hi,

My name is Mike and I was just this week diagnosed with Dupuytren's Disease. I am 29 years old living in the United States (NJ), but relocated from the UK several years ago. Dupuytren's runs in the family on my mother's side, but I never really thought that I would be impacted by it at such a young age.

The doctor (hand and wrist surgeon) I went to recommended taking no action until I fail the table-top test. I have one nodule in the palm of my right hand under my ring finger, and a cord forming under the nodule towards my wrist. To my knowledge I do not have any other nodules or cords at this stage. There is no pain but some occasional discomfort from the nodule. Thankfully none of my fingers have begun to contract.

I have found this Website to be really useful over the past few days and it looks as if I MIGHT be able to benefit from radiation therapy treatment since the disease is in its infancy. Can any of you recommend what I should do? I appreciate that everyone is different and that I have not provided a lot of information to go on, but the prospect of not being able to use my hands properly later in life is a scary one.

I saw a list of clinics providing radiation therapy and the closest to me is Dr. James Wong at Morristown Medical Center. Has anyone on this site had a consultation with Dr. Wong or been treated by him and his staff? If so, would you mind sharing your experience with me? You may contact me privately if you do not wish to share on this forum.

Thanks in advance for any help or guidance you are able to provide.

Regards,
Mike

Edit: I forgot to mention, I first noticed the nodule on February 1st and it is approximately 1cm (0.4 inches) in diameter.

Edited 03/12/14 23:55

HI mike // I would checkout kenalog injections into the nodule(s). I had a nodule form about 7 months ago and had 3 sets of kenalog40 injections 5 wks apart and it has softened and shrunk it in half. if caught early it can stop the progression ,soften, shrink and even eliminate the nodules. I found a doctor in Orlando fl who agreed to try this I had been to 2 other hand docs who said it doesn't work I asked them if they had treated patients and found it was ineffective they said they never used it they had heard it didn't help I decided to go with the 40+ yrs of research that says it can if u do it soon enough// take care/ Terreck

had nodule injections in conjunction with N.A, reduced - eliminated nodules ... one injection was 6 weeks prior to n.a.

HEY// have one nodule on rt hand below ring finger with a 1/2 inch cord below and a 2 inch cord below middle finger/ am going to consul for RT on cords and remaining nodule tissue/ it is softer and smaller after kenalog/ the doc was George papanicolaou MD the first set of injects was not the right amount (concentration) of kenalog 40 in the syringe on the 2 the 3rd was the right amount/ I was the first patient that this doc had done injects for DD so after getting guidance from dr ketchum in kanas city who is one the most experienced with kenalog 40 for DD nodules the 3rd inject was the proper amount in the syringe but only nodules can be injected that's why want to see if RT can help with the cords and remaining nodule tissue but I read that they cannot be too hard and need to be active also /going to dr hochman in new port Richie fl for consul (RT) so wish me luck k

hi

You probably already did something, but I had radiation therapy with Dr. Wong and so far so good(six months after the second round). He's very nice and the facility is very good too.

Faith