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Every day management of Ledderhosen
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01/30/2011 19:39
loonsong 
01/30/2011 19:39
loonsong 

Re: Every day management of Ledderhosen

@wilsongolf:
Hi Loonsong-

For three weeks last December, I walked Siesta Key beach ( approx.3 miles round trip) on the hard packed sand. I could not walk on the soft sand as my planter fasc. on my left heel flared-up. Walking on the sidewalk tended to bother my hips. Most definitely, walking or biking on the flats is necessary.

Winter boots are out of the question due to the nature and severity of my feet. At one point I was wearing down a pair of running shoes ( saucony recommended by pedothist)in a month. Finally, a salesperson in Fit to Run store in Florida told me to have 2-3 pr. of shoes on the go. Wear one pair one day and the other the next. This gives the shoe time to decompress. I know when it is time to change shoes by an increase in knee or hip or outer leg pain. According to osteopath, the shoes are not the issue. I do not agree at this point.

I was also told by the osteopath not to walk on carpet. ( My husband has lost all patience at this point!) I also think the loose snow is difficult as well.

wilsongolf
Hi Wilsongolf,

I only have one pair of shoes at a time because my orthotics are so thick and fit so tight in my shoes and with Dupuytren's as well it is getting harder to put these in and take out.

That's too bad that your husband is losing patience and all you have is problems with your feet (or maybe hands too).

Take care of yourself.

Loonsong

02/05/2011 12:16
wilsongolf

not registered

02/05/2011 12:16
wilsongolf

not registered

Re: Every day management of Ledderhosen

Good morning-


Got to love those runners and socks! Don't leave home without them!

Yes, socks do provide warmth and a sense of security/ comfort.
The shoes can't be tied too tightly as the nodules on both arches begin to ache.
The running shoes I wear, as recommended by the pedorthist are saucony progrid.
I really like the balga socks, both the lighter and thicker pairs. Both have padded soles. The thicker pair I wear all day and outside ( winter now) with my out door running shoes. I can't wear boots.
At all times I wear socks and shoes.
I also alternate shoes.
The osteopath suggested for 5 minutes daily to stand barefoot in mountain pose. I have stopped this as the left foot metatarsal area was beginning to act up.

02/06/2011 19:52
Cyclist 
02/06/2011 19:52
Cyclist 

Re: Every day management of Ledderhosen

Hi Wilsongolf
I'm curious - what happens when the plantar fasc. flares up? How would someone recognise that this is happening and not part of the everyday experience of morbus ledderhose?
Thanks and regards
Di

@wilsongolf:
Hi Loonsong-

For three weeks last December, I walked Siesta Key beach ( approx.3 miles round trip) on the hard packed sand. I could not walk on the soft sand as my planter fasc. on my left heel flared-up. Walking on the sidewalk tended to bother my hips. Most definitely, walking or biking on the flats is necessary.

Winter boots are out of the question due to the nature and severity of my feet. At one point I was wearing down a pair of running shoes ( saucony recommended by pedothist)in a month. Finally, a salesperson in Fit to Run store in Florida told me to have 2-3 pr. of shoes on the go. Wear one pair one day and the other the next. This gives the shoe time to decompress. I know when it is time to change shoes by an increase in knee or hip or outer leg pain. According to osteopath, the shoes are not the issue. I do not agree at this point.

I was also told by the osteopath not to walk on carpet. ( My husband has lost all patience at this point!) I also think the loose snow is difficult as well.

wilsongolf

03/20/2011 12:18
Cyclist 
03/20/2011 12:18
Cyclist 

Re: Every day management of Ledderhosen

Hi All
During a consultation in Germany, Prof Seegenschmiedt recommended an arthritis ball rather than a tennis ball for massaging my feet, apparently something about the ball having little bumps that get the blood flow going through the nodules more. Apparently there's some evidence to suggest that hypoxia (lack of oxygen in the area) can bring on these conditions.

Judging by the size and the speed of growth of my nodules, I must have a lot of hypoxia!

All the best
Di

03/22/2011 19:49
wilsongolf

not registered

03/22/2011 19:49
wilsongolf

not registered

Re: Every day management of Ledderhosen

Cyclist:
Hi All
During a consultation in Germany, Prof Seegenschmiedt recommended an arthritis ball rather than a tennis ball for massaging my feet, apparently something about the ball having little bumps that get the blood flow going through the nodules more. Apparently there's some evidence to suggest that hypoxia (lack of oxygen in the area) can bring on these conditions.

Judging by the size and the speed of growth of my nodules, I must have a lot of hypoxia!

All the best
Di

Hi Di-
I tend to agree with hypoxia. When I stand in mountain pose or when I focus on breathing deeply I find the tenderness/contraction in my feet and outer leg is reduced. Also during my walks, I have to constantly check my pace and at intervals focus on my breathing. I just went for a quick walk and didn't do the above and as a result the nodules tightened and the pain up my leg returned.
An update re: no orthodics. It has been two and a half weeks without. It is challenging but then again at this point I definitely feel that it is worth it. I look forward to the visit with my osteopath next week.

Wilsongolf

03/31/2011 20:16
RachelSkates 
03/31/2011 20:16
RachelSkates 
Re: Every day management of Ledderhosen

Is it best to have shoes that are without arches? Like flip flops? I used to wear flip flops all the time, but my feet are getting worse.

Then I used croc like shoes.

I like the idea of meditation and yoga. I have to switch from being a hard core athlete to being a more calm one, like with yoga. This will be an agonizing transition because I love sports and my job is directly related to my being on the ice.

This adjustment will be like one who has had a stroke.

04/02/2011 09:46
Cyclist 
04/02/2011 09:46
Cyclist 

Re: Every day management of Ledderhosen

RachelSkates:
Is it best to have shoes that are without arches? Like flip flops? I used to wear flip flops all the time, but my feet are getting worse.

Then I used croc like shoes.

I like the idea of meditation and yoga. I have to switch from being a hard core athlete to being a more calm one, like with yoga. This will be an agonizing transition because I love sports and my job is directly related to my being on the ice.

This adjustment will be like one who has had a stroke.

Hi RachelSkates
Yes, you are right that arches are no good for nodules. I like croc shoes and Nike Free runners and it seems to do my feet good to rotate shoes when they get tired or sore. It feels like a bit of holiday for my feet.

Be careful with yoga as it is not recommended that you stretch the plantar tendon (e.g. by standing on tip toes) when you have this condition. It will make your feet ache more. This was very hard for me at first as I used to enjoy stretching my feet by pushing down on the balls of my feet with my toes flexed and because the plantar tendon tightens with the condition, I constantly had the urge to stretch it.

There are some forms of yoga that involve less standing on tip toes which will be fine - you just need to find the right one. See some earlier comments by some that practice yoga with this condition.

I'm sure you will work out a way to stay active, it might just take a little while to work it all out
Di
PS did I miss your original story - how big are your nodules? How long have you had them for? Are they progressing?

04/21/2018 06:16
morgain 
04/21/2018 06:16
morgain 
Re: Every day management of Ledderhosen

Hi, Have three small nodules on left arch, diagnosed in January of this year with LD. Gathering all the info I can and find this site great, as I am living in UK have joined the UK group. So much to take in, the real bug bare for me is shoes, any tips/suggestions on what I should be looking at. Sketchers Gowalk seem popular over here, but then my podiatrist said to look at running shoes, and I see a lot of people on this site wear running shoes. Got my orthotics made, just have to get used to them. Should I be looking at shoes with no arches too. Any advice welcome, and do you take the soles out of the running shoes to put orthotics in. Also any exercises would be welcome, the one I got give was picking up marbles with toes to strengthen as quite stiff in that foot, think I always have been.

I see Verapamil gel 15% mentoned a lot, I think thats only available in US at the moment, though UK is trying for it or something similar I believe. Do you have to get that from a doctor in US?

Thanks again for this wonderful forum, some really good stuff on here, was so fearful when diagnosed but reading all the posts has helped me deal with it, thanks.

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