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Introducing Myself with Ledderhose and Dupuytren disease.
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07/11/2014 12:32
Steven-Australia

not registered

07/11/2014 12:32
Steven-Australia

not registered

Re: Introducing Myself with Ledderhose and Dupuytren disease.

Hello Adam/Seth/Newman

Is nice to meet fellow Ozzies!!! I am in Brisbane :O

Let me introduce myself: I have had LD for about a year now - so I am a bit of a newbie lol.

I can sympathise with you Adam. My doctor said that I would require surgery to remove my lumps and then the pain would go away. However after researching it, I realised that surgery is big "no-no". I didn't even go to a referral appointment with an Orthopaedic Surgeon! I have decided to leave my feet as is. I invested in expensive Steel-Blue safety shoes and over the counter orthotics (diabetic inserts) - my job entails standing 9.5 hours per shift. My lumps are still there but dormant. Sure they give me pain and sometimes hobble around at home, but by and large, they don't give me too much gyp.

This site is amazing for support and for its knowledge base of this little known disease.

Best regards
Steven

07/12/2014 14:14
newman 
07/12/2014 14:14
newman 

Re: Introducing Myself with Ledderhose and Dupuytren disease.

Hi Adam.
You might like to visit Dr Andrew van Essen at Prospect Podiatry for his opinion. He is a Podiatric Surgeon (08) 83445690 Check out his website . He has experience with ledderhose. Also a great guy. Regards.

07/13/2014 22:46
terrys 
07/13/2014 22:46
terrys 
Re: Introducing Myself with Ledderhose and Dupuytren disease.

Hi Guys,

I have posted about this before but I think now after 9 months it’s a good time to report on progress.

I had a Tissue Plasminogen Activators (TPAs) treatment by Dr David Chin from the Wesley Hospital in Brisbane (also at Caboolture) some 9 months ago on my LD on my left foot. There were about 7 nodules as I recall. The foot was sore for a few days, then about 2 months later lots of pain over the top of the foot as it appears the foot settles into a more normal posture stretching parts that had kinda shrunk due to the balling of the foot. After that the foot has been great with only one nodule remaining which is very small and causing no issues at all. Dr Chin is now in the hundreds for this treatment and is having tremendous success. My right foot will be done soon as it is now giving me trouble even doing gentle walks.

Dr Chin also treats DD on the hand and reports successful outcomes using the same injection. The level of injection is very very low and there have been no side effects.

It may be worthwhile looking up Dr Chin, he is a reconstructive plastic surgeon . He did do an open procedure on my left hand for chronic DD at the same time as injecting my foot and he tells me he can treat the hand if necessary with an injection in the future. He couldn’t inject this time as it was too scarred/ thick after 5 NA’s and as he said it needed stripping!!!

Hope this helps and good luck, I am at Redcliffe and always happy to do a show and tell!

07/14/2014 11:18
spanishbuddha 

Administrator

07/14/2014 11:18
spanishbuddha 

Administrator

Re: Introducing Myself with Ledderhose and Dupuytren disease.

Thanks for the update Terry. We list this 'experimental' treatment on our website:
http://www.dupuytren-online.info/dupuytr...s_research.html. Glad to hear it is working for you, for LD.

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