Hi Australia Calling,
You should not overlook Radiotherapy.I am returning to Essen next week to have my second treatment under Prodf Seegenschmiedt. The germans are the world leaders in the treatment of benign tumours .The cost in the US is very costly. A member of the forum advised the cost of treating both hands and feet cost the Insurance $26,000 US. My cost for the complete treatment is 1600 Euros. Think about it .Regards from Down Under.

Dear Sir, I also have both hands and feet and multiple surgeries, to no avail. However, my specialist at Georgetown, Wash. D.C. said that Vit. E helps in some positive way. So I have been taking 1000 IUs of Vit. E since I was in my twenties, I am now 56. I find that Vit. E keeps them soft and painless. This is not the case without the Vit. E. I tested this, smaller doses don't work either it has to be at least 1000 IUs. (I am female, so it is very unusual that I have DC so acutely, it is in my family.)

Hi Ian55 Australia Calling.
It is now six months since I had radiotherapy on both feet for Ledderhose. The cord in my right foot has basically gone. The lump(Nodule ) on my left arch which was the size of a large pea has reduced so that I have to really push into the arch to feel where It was . The cord has reduced and is very soft and the only way I can feel the remnant is by raising my big toe so that it stresses the arch .When my foot is normal I cannot detect the nodule nor the cord. I now regularly massage the feet with a enriched 10% Urea cream which helps retain moisture in the skin. If you are in Germany I would think about radiotherapy. Germany has been the world leader in the use of low dose radiotherapy for the treatment of benign disorders . I lived with the ledderhose for 8 years before I found the information on http://www.dupuytren-online.info Did you know that about 40% of patients with knuckle pads have Ledderhose. Just as you have described your advances of ML & MD. Regards

Hi Ian Australia Calling
Are you and Ian55 (registered) the same person? As I have previously posted ,I have had Ledderhose for the past 8 years and it progressed from a pea in the arch to a thick cord and a lump on the ball of the other foot. My Surgeon stated under no circumstances have an operation on the feet. Just ask any woman who has had to have a bunion removed. I have had numerous hand surgeries, the last in June 07. Within 4 weeks I developed lumps and a keloid on the operated hand and a nodule started forming on the other hand,(Index Finger)By' Luck 'i found the Dupuytren Society web and informed myself . I went to Germany and saw Prof. Seegenschmiedt ,who is a world leader in the use of low dose Radiotherapy ,for the treatment of non benign diseases. He sent me to se Dr Steffans a hand surgeon in a next suburb of Essen. The prof. treats patients in the early stages and he had never seen a patient with so much surgery. I also have 4 grafts. I could see numerous operation ahead and the time span between each getting quicker and quicker and the result getting poorer after each surgery. So I had RT on both hands and feet. I am very happy with the result. I will return in May to see the prof. One thing I now do is massage my feet with cream containing 10% Urea , which helps keep the skin soft. I do wear orthodics in my shoes as I have high arches which spreads the load. You need to check the the lump behind your toe is not a planter wart . I have two point pressure points under each big toe and any hardened skin is removed by those throw away files that the women use. When Buying shoes I look that there is a good soft innersole in the shoe which reduces the shock factor .Thats my experience . Regards.

Edited at 04/09/08 03:44

Hi Ian,
I see you traveled to Germany from Australia for your radiation treatment. I hope to find a radiologist in the US, but if not, can you please give some idea of how you went about contacting the German doctors? Did they speak English? Did you find a good place to stay? My Ledderhose is in early stages, so I want to zap it as soon as possible.
Thanks for any information.

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Hi Ian Australia Calling
Are you and Ian55 (registered) the same person? As I have previously posted ,I have had Ledderhose for the past 8 years and it progressed from a pea in the arch to a thick cord and a lump on the ball of the other foot. My Surgeon stated under no circumstances have an operation on the feet. Just ask any woman who has had to have a bunion removed. I have had numerous hand surgeries, the last in June 07. Within 4 weeks I developed lumps and a keloid on the operated hand and a nodule started forming on the other hand,(Index Finger)By' Luck 'i found the Dupuytren Society web and informed myself . I went to Germany and saw Prof. Seegenschmiedt ,who is a world leader in the use of low dose Radiotherapy ,for the treatment of non benign diseases. He sent me to se Dr Steffans a hand surgeon in a next suburb of Essen. The prof. treats patients in the early stages and he had never seen a patient with so much surgery. I also have 4 grafts. I could see numerous operation ahead and the time span between each getting quicker and quicker and the result getting poorer after each surgery. So I had RT on both hands and feet. I am very happy with the result. I will return in May to see the prof. One thing I now do is massage my feet with cream containing 10% Urea , which helps keep the skin soft. I do wear orthodics in my shoes as I have high arches which spreads the load. You need to check the the lump behind your toe is not a planter wart . I have two point pressure points under each big toe and any hardened skin is removed by those throw away files that the women use. When Buying shoes I look that there is a good soft innersole in the shoe which reduces the shock factor .Thats my experience . Regards.

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