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03/14/2016 19:40
kronik85 
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03/14/2016 19:40
kronik85
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Re: Hyaluronidase injection
I received this injection this morning from Dr. Davis in both feet, for fibromas about 2cm in size. I will be following up with as many injections as necessary to remove them. They collected $750 for my deductible, and quoted me at $9xx for the entire procedure.
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05/22/2016 13:36
Aber01
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05/22/2016 13:36
Aber01
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Re: Hyaluronidase injection
@Penny: in your post you mentioned wanting to try adipose-derived stem cell treatment.
Have you done it? Is there any experience you can share? Do you know of any research being done with adipose-derived stem cell treatment regarding the treatment of Ledderhose DD?
Thanks,
Axel
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08/01/2016 20:01
Netsurvivor
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08/01/2016 20:01
Netsurvivor
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Re: Hyaluronidase injection
Could someone please tell me where I can get the hyaluronidase injection or cryosurgery for my fibromas? I live near Dallas, TX. The only doctor I have been able to locate there who did the cryosurgery no longer does it.
Thanks!
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08/01/2016 21:06
nanshands 
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08/01/2016 21:06
nanshands
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Re: Hyaluronidase injection
Netsurvivor:
Could someone please tell me where I can get the hyaluronidase injection or cryosurgery for my fibromas? I live near Dallas, TX. The only doctor I have been able to locate there who did the cryosurgery no longer does it.
Thanks!
The doctor that Penny went to mentioned above, Dr. Davis, is in San Antonio. Info below. He does the H. injections. You can read Penny's posts on her treatments and experience. Not sure if he does cryosurgery.
Best to you, Nan
Eddie Davis, DPM, FACFAS
540 Madison Oak, Suite 260
San Antonio, TX 78258
210-490-3668 Office
210-267-5262 Fax
210-473-9533 Cell
http://www.southtexaspodiatrist.com/
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08/01/2016 21:30
Netsurvivor
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08/01/2016 21:30
Netsurvivor
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Re: Hyaluronidase injection
nanshands:
Netsurvivor:
Could someone please tell me where I can get the hyaluronidase injection or cryosurgery for my fibromas? I live near Dallas, TX. The only doctor I have been able to locate there who did the cryosurgery no longer does it.
Thanks!
The doctor that Penny went to mentioned above, Dr. Davis, is in San Antonio. Info below. He does the H. injections. You can read Penny's posts on her treatments and experience. Not sure if he does cryosurgery.
Best to you, Nan
Eddie Davis, DPM, FACFAS
540 Madison Oak, Suite 260
San Antonio, TX 78258
210-490-3668 Office
210-267-5262 Fax
210-473-9533 Cell
http://www.southtexaspodiatrist.com/
Thank you so much!!
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08/31/2016 12:09
Tdayres
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08/31/2016 12:09
Tdayres
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Re: Hyaluronidase injection
Can anyone provide any additional information on the long term results of the hyalurinidase injections? Trying to determine whether to evaluate additional treatments after radiation failed. Thank you
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08/31/2016 17:21
nanshands
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08/31/2016 17:21
nanshands
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Re: Hyaluronidase injection
Tdayres:
Can anyone provide any additional information on the long term results of the hyalurinidase injections? Trying to determine whether to evaluate additional treatments after radiation failed. Thank you
I wish we were all better about follow-up with the various treatments we receive. I am as guilty as the rest. Perhaps we just grow weary of this disease and our attempts to stop, manage, and survive the painful times. I'm sorry to have nothing to offer you, but hope those who posted a couple of years ago who did H.Injections will weigh in on how they are now doing.
I am presently facing progression again with my LD and DD and debating if I will proceed with RT to my feet. I had RT to my right hand almost three years ago. It slowed progression down immensely and stopped the pain and symptoms I was experiencing in both my hands and feet. Though the RT seemed to hardened my cords and nodules more. Some people experience more of a softening. I am planning on now doing my left hand, but very uncertain about my feet.
May I ask you how long you had LD before you did RT? Did you receive RT when the disease was progressing? Or early stages? And, how large are your fibromas?
Again, I'm sorry to not be able to help with your question. But, from what I read in this thread H.Injections do not offer as much promise as we all had hoped, yet, some relief.
Hoping you will find some answers, Nan
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08/31/2016 17:34
Tdayres
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08/31/2016 17:34
Tdayres
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Re: Hyaluronidase injection
I have had the fibromas in my left foot for probably 10 years. I had 3 rounds of RT on that foot. The last about 2 years ago. I now have nodules on both feet. Over the last three months I have started to feel a neuropathy type pain . This is new. I do not know the cause of this pain. Is it due to the RT or due to the progression of the disease. I am 56 and soo depressed about this. I had plans to hike the world with my husband. I live in the USA and couldn't even enjoy my European vacation recently. What do people do to treat the pain? What is the progression and what will I face in the future? Very worried. I'm used to being so active.
It's hard to evaluate a treatment without any literature from the medical community and only limited from patients.
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08/31/2016 19:20
nanshands
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08/31/2016 19:20
nanshands
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Re: Hyaluronidase injection
Tdayres:
I have had the fibromas in my left foot for probably 10 years. I had 3 rounds of RT on that foot. The last about 2 years ago. I now have nodules on both feet. Over the last three months I have started to feel a neuropathy type pain . This is new. I do not know the cause of this pain. Is it due to the RT or due to the progression of the disease. I am 56 and soo depressed about this. I had plans to hike the world with my husband. I live in the USA and couldn't even enjoy my European vacation recently. What do people do to treat the pain? What is the progression and what will I face in the future? Very worried. I'm used to being so active.
It's hard to evaluate a treatment without any literature from the medical community and only limited from patients.
Hi Again T,
First of all, thank you for your quick reply. I wish sometimes I could just sit face to face with others when reading posts like this. I understand completely your uncertainty, depression, and future concerns. I think most who have had a hard time with this disease can relate. Though the spectrum of suffering seems to vary a great deal with this disease.
Neuropathy type pain can certainly be caused by several factors as you know, and worth investigating to rule out something not related to LD. But, I can only offer my experience with the disease. And, without question when the disease is in a state of progression I have a lot more pain with my feet (and hands), along with “neuropathy type pain.” In fact I get quite a bit of nerve tingling type pain when the disease is actively progressing. So for me I know the nerve pain is not connected to RT treatment, but to the disease itself. My experience has been that RT done on my right hand 3 years ago, where the disease began, stopped my neuropathy type pain in both hands and feet where the disease had spread very quickly. It is my hope now treating my left hand that will happen again. By the way, even though right hand received RT, during this active progression I am having nerve pain in that hand as well.
I would like to add that I too was very active. And, since getting this disease at age 59, I am now 62, I have had to surrender to certain activities. I also got pretty discouraged when a few weeks ago the disease started progressing again. And for whatever reason it is more painful this time around. But, I have also surprised myself in what I’ve been able to learn to live with pain wise this time, and over the past few years since there always exists some discomfort when I walk or when cords pull in my hands. And that discomfort can fluctuate.
I address the pain when needed with Tylenol or Aspirin, but I keep going. I have never tried a neuropathy type medication. I don’t handle medications very well. I wonder if that would be of help to you though? Have you considered doing RT to right, untreated foot? If the disease is progressing…might help?
Hope some of this helps, Nan
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08/31/2016 19:52
Tdayres
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08/31/2016 19:52
Tdayres
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Re: Hyaluronidase injection
Thank you for the information. I am not sure about the best avenue for the new fibroma. How does one tell if the disease is "in progression"? I discovered new nodules about 4 months ago. I may try some of the neuropathy meds if this pain continues much longer.
T
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