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Less than 1 month both DD and LD starting - what is normal?
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03/30/2014 05:00
mukasama 
03/30/2014 05:00
mukasama 
Re: Less than 1 month both DD and LD starting - what is normal?

switcombe:
Yes, I saw Prof. S. in Germany. I didn't even realize that I had nodules in my feet until he pointed them out.

switcombe, I have been in email contact with Prof. S and he has been very helpful. I'm trying to decide where to go for RT. Dr. T's nurse at Scripps in La Jolla said he will only do one hand or one foot at a time and to keep coming back every 2 months for the thing that is bothering me most. That sounds sensible and conservative, but expensive, especially since I have to travel from Alaska each time.

I'm curious if Prof. S did your feet at the same time he did your hand(s) even though the nodules must have been barely visible. If so, did anyone say if you were more likely to be ill from the RT if you have that much more radiation at once?

Btw, my tendonitis showed up about a two weeks after the DD. It sounds like yours didn't go away when your DD went into remission.

03/30/2014 15:24
Jolene 
03/30/2014 15:24
Jolene 
Re: Less than 1 month both DD and LD starting - what is normal?

I had all 4 limbs radiated at the same time. The RT dose is very low. 30gy. It will not make you sick. On Weds. middle of week I noticed I tired easily. Other than that there was no side effects. keep in mind the dose they give to cancer patients is way higher. And cancer patients go 5 times a day for like 7 weeks. At least that is what my friend who has breast cancer is currently undergoing.

03/30/2014 17:27
switcombe 
03/30/2014 17:27
switcombe 
Re: Less than 1 month both DD and LD starting - what is normal?

Prof. S. saw no need to treat my feet since the nodules were barely palpable and they weren't giving me any trouble. In fact, he almost didn't treat my left hand since it also wasn't bothering me and the DD was barely visible. He left it up to me and I decided to go with it since I live here in Oregon and didn't want to take another expensive trip if things continued to progress. I was thankful for that decision because my left hand did continue to progress rapidly. It finally stopped a couple of months after the treatment. He treated my entire palm area and up to the first joints in my fingers.

In regard to the tendinitis, Prof. S. thought that my DD had been there many months before I actually noticed it. So maybe it preceded the tendinitis. And btw, he treats tendinitis with very low dose radiation.

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misdiagnosed   treatment   progression   irradiation   Germany   tendinitis   accidentally   experiences   Ledderhose   remission   progressing   52-year-old   conservative   extremities   Dupuytren   starting   hyaluronidase   nodules   Radiation   developed