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NA in the UK
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06/05/2007 19:28
TrevB 
06/05/2007 19:28
TrevB 

Re: NA in the UK

Quote:



Hi Folks,
It is so good to see that all our hard work attempting to find someone in the UK to do NA was not in vain.
Marjorie




You got the ball rolling marjorie, now all we need (quickly I fear in my case) is someone who accepts radiotherapy as a treatment because I haven't got a passport

06/06/2007 15:13
marjorie 
06/06/2007 15:13
marjorie 
Re: NA in the UK

Hi Trevor. Thanks for the recognition.
Have you been in touch with Chris? Has he said he cannot help you? Your mention of radiotherapy has me wondering if all is not well.
Marjorie

06/06/2007 15:42
TrevB 
06/06/2007 15:42
TrevB 

Re: NA in the UK

Quote:



Hi Trevor. Thanks for the recognition.
Have you been in touch with Chris? Has he said he cannot help you? Your mention of radiotherapy has me wondering if all is not well.
Marjorie



Hi Marjorie

I still have the full use of my one good hand without the need for surgical treatment as yet so I've not needed to contact Chris, but will do if necessary. I mention radiotherapy because that might be a way to stop future surgical intervention but it's another thing not on offer over here. The possible long term side effects of RT do worry me (My mum survived breast cancer but my dad lost his battle with the disease, as did most of his side of the family ) but it would be nice to be able to discuss RT, and have the option to receive it, in the UK without travelling. I'm trying to pre-guess my dupuytren (without waiting for the knife which seems to be the only (apart from Mr Bainbridge?) advice one gets in the UK), as well as looking for anything I can do and then hoping it also stays quiet in my palm which looks unlikely As I'm sure you've found, it's all very tiring trying to be your own doctor and medical expert? As you suggested, I did send all the info to my GP about RT & NA to ask for advice but he wrote back and said that I should send the same to the consultant who I saw at hospital! In the 10 min appointment I had with him last year the advice was come back if you can't put your hand flat and have OS? So to be honest I'm not sure that's worthwhile, surely, as a hand surgeon he's aware of, and dismissed, other options

Hope you are well How are your problems?


Edited at 06/07/07 11:50

06/07/2007 16:43
marjorie 
06/07/2007 16:43
marjorie 
Re: NA in the UK

Hi Trevor,
Sounds to me as though you should have a second opinion. Your hand surgeon appears to be one of the many who have not moved on. Why don't you ask your GP to refer you to Chris? Not too far for you to travel and you are allowed to choose your own hospital for treatment now.
It is 9 months since I had NA on the little finger of my left hand. It is still 95% straight and I am hopeful that it will stay that way for some time. I will certainly go to Chris next time I need treatment. The PIP on my right little finger has been treated once, a little more movement was achieved but PIPS are difficult to treat without surgery. The middle and ring finger on my right hand are pulling very slightly. I can easily cope with that if it does not worsen. Here's hoping.
I am off on holiday on Saturday and am having my computer fixed whilst I am away, so, will not be on the forum for a couple of weeks.
Keep smiling,
Marjorie

06/08/2007 09:57
Craggy

not registered

06/08/2007 09:57
Craggy

not registered

Re: NA in the UK

Quote:



I will certainly go to Chris next time I need treatment......
..... keep smiling,
Marjorie




Hi Marjorie

Just before you go on hols. Do you mean that you have been treated by Chris B already, or that you would go to him (in preference to ... whatever you decided on before) when next you need a fix (as it were) ? I saw him last week (an assessment) - his NA procedure would seem to differ somewhat from those Parisian doctors

Cheers

Richard

06/08/2007 20:29
TrevB 
06/08/2007 20:29
TrevB 

Re: NA in the UK

I can't find Marjories e-mail but I'm fairly sure she's had both and the last was with Chris (hope I'm not speaking out of turn) and she'd go back to him again if need be.

I've no idea what's involved. What's the differerence and would you say it was good or bad?

06/12/2007 09:39
Craggy

not registered

06/12/2007 09:39
Craggy

not registered

Re: NA in the UK

Quote:



I can't find Marjories e-mail but I'm fairly sure she's had both and the last was with Chris (hope I'm not speaking out of turn) and she'd go back to him again if need be.

I've no idea what's involved. What's the differerence and would you say it was good or bad?




I'll be better able to tell you, when I've had the procedure (NHS - so some months yet) The main difficulty in Paris was in remembering to RELAX, and to breathe as directed before the cord was snapped. Thanks for info re Marjorie

06/12/2007 13:34
TrevB 
06/12/2007 13:34
TrevB 

Re: NA in the UK

Quote:




I'll be better able to tell you, when I've had the procedure (NHS - so some months yet) The main difficulty in Paris was in remembering to RELAX, and to breathe as directed before the cord was snapped. Thanks for info re Marjorie




Thanks Richard. Do keep us informed once you've been

06/18/2007 16:40
marjorie 
06/18/2007 16:40
marjorie 
Re: NA in the UK

Hi,
This is Marjorie back from holiday.
There appears to have been a misunderstanding somewhere. I have only ever had treatment in Paris. Now Paris may be nice but as I have been 3 times it is getting a little boring. I cannot see the point in going to Paris if there is someone in the UK who does NA. I am prepared to believe that Mr Bainbridge may do things a little differently than the Paris contingent, but, it cannot be that different as there is the same cord to break be it in the palm or the finger.
Has anyone had NA in Paris and the UK? Please let us know if you have and tell us what the difference is.
Marjorie

08/06/2007 12:51
Michael

not registered

08/06/2007 12:51
Michael

not registered

Re: NA in the UK

Hi there,

In specific response to your request to hear from someone who has had NA in both Paris and the UK, that would apply to me.

Brief history. Male, 35. First diagnosed around 2002 in left hand little finger. Had NA in Paris in May 2003. Pretty good results, but not fully released due to proximity of nerve to cord. Aggressive recurrence, so I resorted to a fasiectomy in Spring 2004 in the UK. Again, didn't manage to get full release. I believe the reason at the time was due to the joint having been immobilised so long it would not extend any further. I think I ended up with about 5-10 degrees off the table top (not as good as NA first time round). Further recurrence meant I had another fasiectomy in July 2006. Same result achieved again - the rate of recurrence is frightening. Within months it was like the operation had never happened. At the same time, symptoms were kicking on my right hind (little finger PIP joint, again, and ring finger in the palm). As I've already had a fasiectomy on my left hand, NA is no longer an option there, even though my contraction is around 90 degrees.

I was extremely keen to avoid surgery again.

Mr. Bainbridge performed NA on my right hand on 2nd August, and the results are extremely good so far, although given how aggressive my case seems to be, I'm not holding out too much hope for the long term. We'll see. Left hand is going to have to have something serious done about it pretty soon.

Comparing NA in Paris and UK was interesting. Mr. Bainbridge is a strong advocate of splinting, both during the day and night, after the operation. In Paris, there was no mention of splinting at all. I also received some Kenalog, which didn't happen in Paris. Again, we'll have to see what happens there.

So having been through all of that, as a resident of the UK, I'm still of the opinion that I would rather have several bouts of NA than even one open fasicectomy. It also felt much more reassuring using a UK practioner than having to go to Paris.

Hope that answers some of your questions.

Michael

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