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New here but not to the disease - hello wolfgang
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06/25/2014 00:39
brucergoldberg 
06/25/2014 00:39
brucergoldberg 
Re: New here but not to the disease - hello wolfgang

someone mentioned on another board to do the RT and then do it again 5 weeks later. is this a known fact?

06/25/2014 02:45
moondanc 
06/25/2014 02:45
moondanc 
Re: New here but not to the disease - hello wolfgang

brucergoldberg:
someone mentioned on another board to do the RT and then do it again 5 weeks later. is this a known fact?

I don't remember the exact protocol but YES you do 2 separate courses. That's why it is extremely important that your radiologist know the protocol developed by Prof Seegenschmiedt. Here's a quick reference but you really need to do your homework and not just let someone who has never done RT for DD call the shots.

http://www.pushpullsigns.com/dupuytrensradiotherapy.html

06/25/2014 02:46
moondanc 
06/25/2014 02:46
moondanc 
Re: New here but not to the disease - hello wolfgang

brucergoldberg:
someone mentioned on another board to do the RT and then do it again 5 weeks later. is this a known fact?

Here is another data point:
http://www.dupuytren-online.info/radiation_therapy.html

06/25/2014 02:52
moondanc 
06/25/2014 02:52
moondanc 
Re: New here but not to the disease - hello wolfgang

brucergoldberg:
someone mentioned on another board to do the RT and then do it again 5 weeks later. is this a known fact?

and more:
http://www.dupuytren-online.info/radioth...literature.html

http://www.dupuytren-online.info/ASSH_20...files/frame.htm

DO NOT FORGET when looking at the radiotherapy literature link- click on the link in the first para "Published online" which gives the process of the Radiotherapy treatment contained in the book written by Prof. Seegenschmiedt and others.

Try searching this forum using " Prof. Seegenschmiedt"

06/25/2014 17:52
brucergoldberg 
06/25/2014 17:52
brucergoldberg 
Re: New here but not to the disease - hello wolfgang

I am going tomorrow to see a radiologist who has agreed to do this. I have questions.

1. can you please direct me to the exact portion that shows that it should be done twice over a 5 week period so that i may show him please?

2. Not only is my right foot bothering me (and my hands) but my left foot as well. The problem with my left foot is you cannot see the nodule (if there is one). Do you think he can still do the left foot or am i asking for trouble?

I printed the procedure that shows the man sitting in the chair to show him.

Attachment
foot.jpg foot.jpg (4x)

Mime-Type: image/jpeg, 32 kB

06/25/2014 17:54
brucergoldberg 
06/25/2014 17:54
brucergoldberg 
Re: New here but not to the disease - hello wolfgang

i just found the answer to my top question.

can anyone answer the one about my scarred foot?

also , this is weird but lately i feel like my immune system is run down. Do you think this plays a role here?

06/25/2014 18:08
moondanc 
06/25/2014 18:08
moondanc 
Re: New here but not to the disease - hello wolfgang

brucergoldberg:
I am going tomorrow to see a radiologist who has agreed to do this. I have questions.

1. can you please direct me to the exact portion that shows that it should be done twice over a 5 week period so that i may show him please?

The protocol is NOT twice over a 5 week period. It is as below : two phases-- 5 X 3 gy, 12 weeks apart. You need to have your radiologist research the protocol if you can't. I'm going to paste direct quotes from a forum member who got the answers from Prof. S.

It is also very important that you have the scope of the area to be irradiated properly identified which is best done by a DD specialist and NOT by a radiologist.

"The best results have been achieved with for 10 x 3Gy in TWO phases of 5 x 3Gy, but 3 months apart."
" Question to Dr. S. "In past literature and also on websites the interval between series is sometimes 6 weeks, sometimes 8 weeks, now it is 12 weeks. Is the conclusion now that a 12 week gap is better for treatment of Dupuytrens?

MHS: I think it is a better schedule [12 weeks], as 6 weeks may be too early to assess the development and may have some reaction left behind.

http://www.pushpullsigns.com/dupuytrenss...tquestions.html

06/25/2014 18:20
brucergoldberg 
06/25/2014 18:20
brucergoldberg 
Re: New here but not to the disease - hello wolfgang

what do you mean by this:


It is also very important that you have the scope of the area to be irradiated properly identified which is best done by a DD specialist and NOT by a radiologist.

06/25/2014 18:35
moondanc 
06/25/2014 18:35
moondanc 
Re: New here but not to the disease -

brucergoldberg:
what do you mean by this:


It is also very important that you have the scope of the area to be irradiated properly identified which is best done by a DD specialist and NOT by a radiologist.

What I mean is that someone has to decide how large an area of your hand should be treated and this means identifying the extent of the disease in your/hand foot. It's been suggested here that identifying the scope of your Dupuytrens or LD is best done by a hand/DD specialist and not a radiologist who might not be familiar with the disease.

Of course, the radiologist can do it but it's just the fact that he/she is most likely not a DD/LD specialist. Do you have a doc that your are consulting with about your disease?

06/25/2014 18:38
moondanc 
06/25/2014 18:38
moondanc 
Re: New here but not to the disease -

brucergoldberg:
i just found the answer to my top question.

Here's a thread on RT that might be useful to you:
http://www.dupuytren-online.info/Forum_E...an-0_928_1.html

You might try contacting member "bstenman" by PM and see if he can help you.

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