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09/07/2015 15:04
dpjcrfsh 
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09/07/2015 15:04
dpjcrfsh
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Re: Massage therapy
I have been trying self massage for the last week and a half of so. Just a few observations. I'm at stage N (no contracture, but have four definite nodes and a couple places that look like they will be and have the start of a couple cords. I try gentle circular massage of the nodes, followed by strong compression for 60-90 seconds. I also do compression on the cords and try to do cross frictional movements. But I'm not trained in massage. This is just what I've gleaned from this forum and elsewhere. Prior to massage, my hands had low level pain, maybe a 2 on a pain scale from 1-10. After starting the massage the levels of pain have dropped considerably. Often my hands feel really good. But the affects seem to wear off to some extent after a day. My hardest node has softened from about tennis ball hardness (grade 3) to tomato (grade 1) or even softer. Right after massage, all not nodes have the softness of a rotten tomato, but they tend to harden back up to some degree fairly quickly, but it might take a day to get back to where they were, but again the originally hardest node seems never as hard as it was. In general my hands feel better and I don't feel I have to be as careful about touching the nodes, like with scissors, etc. The way massage makes my hands feel is the same as if I do a lot of work with my hands. I've noticed before after a full day of working with the hands, they feel great for a day or two. After massaging one day, I had some sharp pains in tissue adjacent to the nodes that was worrying, but that went away after a day. Perhaps I was too aggressive. It's hard to say if what I'm doing it positive or negative, but I feel it's a positive. The disease progression is so gradually and unpredictable, that it's hard to measure the effects very well.
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09/27/2015 22:50
CACoder 
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09/27/2015 22:50
CACoder
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Re: Massage therapy
Well I'm convinced it's worth a shot. It seems the trouble is finding a massage therapist in my area. Any recommendations on what to look for in a good massage therapist to treat my Dup's? I don't think there are any that specialize in the condition, so a willingness to learn is probably a must. Maybe I'll order myself a copy of those two books mentioned earlier in this thread (Rattray's clinical massage therapy and Tidy's massage therapy and remedial exercises) for the therapist to borrow. Are there any other good resources I should direct them to?
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10/15/2015 20:45
stephenjeffrey 
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10/15/2015 20:45
stephenjeffrey
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Re: Massage therapy
CACoder:
Well I'm convinced it's worth a shot. It seems the trouble is finding a massage therapist in my area. Any recommendations on what to look for in a good massage therapist to treat my Dup's? I don't think there are any that specialize in the condition, so a willingness to learn is probably a must. Maybe I'll order myself a copy of those two books mentioned earlier in this thread (Rattray's clinical massage therapy and Tidy's massage therapy and remedial exercises) for the therapist to borrow. Are there any other good resources I should direct them to?
Hi C A and others
if you send me a private email with your location I will try to find you a suitable massage therapist/s in your area and forward you the massage protocol I use.
I would not advise you get those books I described in a previous post as one is out of print and the other is very expensive.
Regards Stephen Jeffrey
Edited 10/15/15 23:47
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02/22/2017 13:17
stephenjeffrey
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02/22/2017 13:17
stephenjeffrey
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Re: Massage therapy
An overview of my experience's and recent client outcomes for 2016 using massage therapy.
During 2016 I had a further 6 early stage Dupuytrens clients (nodules only, or nodules and cords with only minor contraction less than 10 degrees)
All responded well to treatment (stop progression) except for 1 client who had pain from very hard nodules who then elected for surgery, but I do not know his outcome.
Particularly pleasing was a 29 yr old (his father had Dups surgeries) who had one very hard nodule one smaller softer nodule and the start of a small cord. He has responded very well, cord and small nodule have regressed and larger harder nodule is much softer. These results were achieved even though he continued his sport of Jiu Jitsu !
I contacted 3 clients for follow up, 5 months,18 months and 3 years, none has seen any progression, and none were having further massage treatment.
I attended a British Dupuytrens society meeting in Harley street at the end of 2016, it was particularly encouraging to find these consultants were engaged in understanding more about their Dupuytrens/ledderhose/peyronie's disease patients and the work of the BDS. I hope to persuade a consultant/s to use massage therapy pre as well as post Dups surgery to see if we can reduce re occurrence rates.
My own studies continue in neuroscience, mechanobiology and biomaterial science in an effort to inform myself and my fellow professionals of the unique and highly complex human beings with which we are privileged to work.
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02/22/2017 15:43
spanishbuddha  Administrator
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02/22/2017 15:43
spanishbuddha Administrator
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Re: Massage therapy
Thanks for sharing Stephen. So encouraging. It would be interesting to know a bit more about the massage, even though I know you will share the protocol with a fellow professional.
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04/09/2017 10:51
stephenjeffrey
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04/09/2017 10:51
stephenjeffrey
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Re: Massage therapy
spanishbuddha:
Thanks for sharing Stephen. So encouraging. It would be interesting to know a bit more about the massage, even though I know you will share the protocol with a fellow professional.
The massage techniques I use, are standard sports/remedial techniques that are taught to massage therapists around the world. But, it is only the Canadians (who helped me get started treating Dups) who are taught to assess and treat Dupuytrens during their initial training as RMT's in BC and Ontario. When qualified they are then incorporated into the Canadian health care system.
Its an unfortunate fact that some massage therapists use heavy handed techniques that can make their treatments painful, eg cross fibre frictions, but I do my best to make sure the treatment is well tolerated by the client, and I insist that any = more pain more gain attitudes, by either the client or therapists are abandoned.
Having done a vast amount of research I would love to be able to identify the exact mechanism via which massage therapy seems to arrest the progress of Dupuytrens, but the answer defies simple explanation. Inch by inch exploration of a combination of various fields eg neuroscience, mechanotransduction/mechanobiology may offer plausible explanations of effects.
Neuroscience. is revealing the uniqueness of human touch, and its effects on brain plasticity / brain maps.
Q/ so could the holistic basis of massage therapy help re map the neck, shoulders, arms down to the hands ?
Mechanotranduction / mechanobiology our health relies on the transport of the correct proteins and molecules.
Q/ could specific massage of nodules and cords help correct an imbalance of local chemical information that is activating myofibroblast collagen deposition to then stop that contraction and collagen deposition ?
More questions than answers Spanish Buddha :)
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04/13/2017 08:57
stephenjeffrey
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04/13/2017 08:57
stephenjeffrey
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Re: Massage therapy
spanishbuddha:
I saw a reference to this paper somewhere. ]http://www.rmtedu.com/blog/dupuytrens-di...form=hootsuite]. No doubt you are aware, probably others too. Possibly something like this is worth a poster or talk at a future IDS/DF conference.
Richard Lebert and I exchange papers, he has been incredibly helpful when researching Dupuytrens and many other subjects related to massage therapy. And yes it would be great to see prevention material promoted from any of the manual therapies (physio,hand therapists,massage therapists) at a future conference as I don't remember ever seeing anything other than splinting ?
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DC is the thickening of cords/ tendons in palm and fingers. It's collagen that thickens the cords and forms the nodules. It a auto immune disease a form of arthritis. How massage therapy could possibly eliminate this unless it is in the very early stages only. 
