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Newbie with Question About Radiation Therapy
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01/03/13 18:12
mrl 
01/03/13 18:12
mrl 
Re: Newbie with Question About Radiation Therapy

I just finished RT treatment from MGH, and they did not use proton, just electron. A recent study on proton radiation for prostate cancer, showed no benefit over regular radiation. Maybe it's studies like that, which is causing MGH to no longer use it for DD. - Mark

01/03/13 18:38
Larry 
01/03/13 18:38
Larry 
PROTONS have never been use by MGH or elsewhere for Dupuytren ...

Due to this forum statement I have called them as a colleague and have asked the about their prodecures:

THEY HAVE NEVER USED PROTONS FOR DUPUYTREN and LEDDERHOSE and their clinical experience is small reagrading the use of radiotherapy for Dupuytren's and Ledderhose Disease.... !

So , please, no further arguing about PROTONS as it would confuse the topic on "radiotherapy" ...

-----------------------------------------------------------------------------------------------------------------------

If poperly applied both of the following RT-techniques are well accepted and performed by experienced RT clinics:

(1) X-rays from kilovoltage RT (> 120 kV) or

(2) electrons from Megavolt (up to 6 Megavolt) linear accelerators


Best regards, Larry

Edited 01/03/13 18:40

01/05/13 14:14
wach 

Administrator

01/05/13 14:14
wach 

Administrator

Re: Newbie with Question About Radiation Therapy

Hi Steve,

I should not have written "a larger area" but "a larger volume". Sorry about that! Dupuytren's is not so sharply confined as cancer and RT usually covers the surrounding tissue as well. Therefore is the in-depth focussing not so important for Dupuytren's. Other users have in the mean time commented on the use of protons which most likely offers no benefit for Dupuytren's.

Wolfgang

CollogenBuster:
Hello Wolfgang:

Re: "For Dupuytren's doctors usually use a lower dose and irradiate a larger area to minimize further growth. Therefore focusing is less of an issue and I can't see much benefit of using electrons or even protons."

Proton beams are advantageously focused for depth, not width. A wide area of my hand was treated, but the doctor tried not to hit tendon or bone, so as to avoid the typical collateral damage to the hand that occurs with X-rays. Skin cells are still collateral damage. Knowledge of the comparative merits of each method is still unfolding, as I understand it, and hard to come by. Experiments continue... Best,

Steve

01/08/13 17:53
dottyhand 
01/08/13 17:53
dottyhand 
Re: Newbie with Question About Radiation Therapy

Hi all

Perhaps you can send me some good luck vibes, I am starting my RT 28 Jan at Guildford. After reading the posts here I am not going to get my hopes up. I have contracture between 5-10 on my left hand. 3 large nodules in palm with a new one beggining. Knuckle pads too.
I really don't know how I am going to react if the treatmen does not work. I am doing this to avoid invasive surgery and skingrafting. A hefty cost, but will take my chances.

Extremely upset and feel very low about it all. At 44 yrs of age.. his has come to soon and too fast.

Dot

01/08/13 19:59
wach 

Administrator

01/08/13 19:59
wach 

Administrator

Re: Newbie with Question About Radiation Therapy

Hi Dot,

my dupuytren's started at the age of 35. That was 30 years ago and I am still doing OK. Not fine but OK. Radiotherapy was an important means for me to get this disease under control. Don't spoil your life with worrying. You have a fait chance that RT will calm down your nodules.

Wishing you the very best

Wolfgang

dottyhand:
Hi all

Perhaps you can send me some good luck vibes, I am starting my RT 28 Jan at Guildford. After reading the posts here I am not going to get my hopes up. I have contracture between 5-10 on my left hand. 3 large nodules in palm with a new one beggining. Knuckle pads too.
I really don't know how I am going to react if the treatmen does not work. I am doing this to avoid invasive surgery and skingrafting. A hefty cost, but will take my chances.

Extremely upset and feel very low about it all. At 44 yrs of age.. his has come to soon and too fast.

Dot

01/09/13 20:40
dottyhand 
01/09/13 20:40
dottyhand 
Re: Newbie with Question About Radiation Therapy



But with contracture already present IS it gonna work ?? i

01/10/13 02:46
flojo 
01/10/13 02:46
flojo 
Re: Newbie with Question About Radiation Therapy

I had RT almost 4 years ago and it worked on my hand that had contracture starting but still in the nodules still developing stage. It worked to stop the progression. I still had NA done to release contracture before the RT and again 2 years later. Cords still lurk down in the tissue and you have to push back against. I'd be glad to share more if you want to ask here or Private Message here.

Don't give up! That's exactly what Dupuytren's Disease wants! Take on the challenge and beat it back!

01/31/13 08:52
Paddyman 
01/31/13 08:52
Paddyman 
Re: Newbie with Question About Radiation Therapy

I posted for the first time yesterday, on a different thread, my recent discovery of a small (pea sized) nodule on my right hand, and someone responded that it might be 'too early' to have RT. It's rife in my family (father had it severely on both hands and surgery made him miserable, older brother and sister have more advanced nodule development but still Stage N and have had no treatment).

Can it be diagnosed as DD this early and treated with RT, or do I have to wait for it to progress a little further for RT to be most effective? Is there a 'magic window' that only opens after a certain amount of time? From Prof Seegenschmeidt's (I can now type his name from memory ) video on youtube, he seems to say it's never too early once you know it's DD.

cheers,
--Paddyman

01/31/13 11:09
GaryBall 
01/31/13 11:09
GaryBall 
Re: Newbie with Question About Radiation Therapy

I travelled to Germany from NZ to be treated by Prof S. For LD.......a fair old trek!!! On my initial consultation he also
diagnosed me with dups in both hands and located developing cords and nodules......my hands were thoroughly palpated and were covered in ink from his pen......however.......he declined to treat them with RT siting "not enough evidence of activity and progression".......

You will need to start taking photos and documenting the condition of your hands now.......there are many good examples on the forum that patients have written about......

I wish you the best of luck......unlike your father you are ahead of the game......so hopefully you should have a far better outcome if you hit the RT window at the right time...

Gazzza

04/14/13 17:08
Brenda 
04/14/13 17:08
Brenda 
Re: Newbie with Question About Radiation Therapy

Hi, This is my first post. I was diagnosed several years ago with Dupuytrens in my right hand, with small nodule and the V pucker; there has been little change in right hand since then.
However, in September of this year (2013) I had thumb surgery. Every follow up visit to surgery I asked about pain in my left palm, which was ignored..."but do you have pain at the sight of surgery?" was all the doc wanted to know. At my 6 month, and last, follow up visit, the swelling was down and it was apparent my palm had two large hard nodules, cords in palm and four fingers, and a very tight hand, no flexibility. This is when the doctor stated that this can happen after surgery, due to the trauma to hand. I am aggressively looking for alternatives to relief, not thinking another surgery makes any sense since surgery brought this on.

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