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Personal experience
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12/17/2012 22:00
Brian_PDX 
12/17/2012 22:00
Brian_PDX 
Re: Personal experience

Two glasses of scotch.

Kidding aside I would ask about a nerve block for the arm. Unfortunately, this does shift the procedure to a hospital for sure, but the pain levels are nil.

God luck.

    12/18/2012 00:04
    Tami1962 
    12/18/2012 00:04
    Tami1962 
    Re: Personal experience

    Brian_PDX:
    Two glasses of scotch.

    Kidding aside I would ask about a nerve block for the arm. Unfortunately, this does shift the procedure to a hospital for sure, but the pain levels are nil.

    God luck.

    Both are great ideas although Vodka would be easier for me!

      12/18/2012 00:31
      duped 
      12/18/2012 00:31
      duped 
      Re: Personal experience

      I had NA performed on both hands 17 days ago and would highly recommend taking a sedative. Yes, the initial shot was painful but so we others as the Doctor worked to release the cords. While my hands are much improved I am having some difficulty that I hadn't anticipated.

      Has anyone experienced tingling or slight numbness in the tips of you fingers after having NA performed? I am still experiencing this sensation some two plus weeks after the procedure.

      Thanks.

        12/18/2012 01:45
        Seph 
        12/18/2012 01:45
        Seph 

        Re: Personal experience

        duped:
        I had NA performed on both hands 17 days ago and would highly recommend taking a sedative. Yes, the initial shot was painful but so we others as the Doctor worked to release the cords. While my hands are much improved I am having some difficulty that I hadn't anticipated.

        Has anyone experienced tingling or slight numbness in the tips of you fingers after having NA performed? I am still experiencing this sensation some two plus weeks after the procedure.

        Thanks.
        The tingling and numbness means that the doctor nicked a nerve or two while doing the NA. You should have felt a sensation like an electric shock shooting out the end of your finger when it happened. That's why you need to be fully functioning as your reaction is an instant signal to the doctor. Depending on the degree the nerves were damaged it could take a few months to go.

        It happened to me a two weeks ago when the doctor was working on a couple of large and deep cords on my forefinger and index finger. Each time the doctor withdrew the needle immediately and went in with a new needle in a new position. I was warned that it could take 3 months for the sensation to go completely but looks like I have been lucky as it has already gone.

          12/18/2012 03:09
          duped 
          12/18/2012 03:09
          duped 
          Re: Personal experience

          Seph:
          duped:
          I had NA performed on both hands 17 days ago and would highly recommend taking a sedative. Yes, the initial shot was painful but so we others as the Doctor worked to release the cords. While my hands are much improved I am having some difficulty that I hadn't anticipated.

          Has anyone experienced tingling or slight numbness in the tips of you fingers after having NA performed? I am still experiencing this sensation some two plus weeks after the procedure.

          Thanks.
          The tingling and numbness means that the doctor nicked a nerve or two while doing the NA. You should have felt a sensation like an electric shock shooting out the end of your finger when it happened. That's why you need to be fully functioning as your reaction is an instant signal to the doctor. Depending on the degree the nerves were damaged it could take a few months to go.

          It happened to me a two weeks ago when the doctor was working on a couple of large and deep cords on my forefinger and index finger. Each time the doctor withdrew the needle immediately and went in with a new needle in a new position. I was warned that it could take 3 months for the sensation to go completely but looks like I have been lucky as it has already gone.

          I felt the pain, in spite of taking Lorazepam, and was very able to communicate and react instantly. Maybe, this why I thought the procedure was more difficult than others have described on this blog. I glad to learn this should go away after a period of time. The numbness seems to be aggravated by the splint that I ware at night; so my Doctor suggested that I leave the splint off for five days. He then suggested that I have a nerve conduction test if the sensation persist after five weeks. Did you have a nerve conduction test? Is it possible that this a permanent problem?

            12/18/2012 04:06
            Seph 
            12/18/2012 04:06
            Seph 

            Re: Personal experience

            I have no medical training but my laypersons perspective is that the Lorazepam was probably not a great idea as it could slow your reaction when a nerve is touched.

            No I didn't have a nerve conductive test. Dr Manet was very confident that she had not done any permanent damage and this has turned out to be so.

            It also seems logical to me that you should forget the splint for a while as it could be causing you to put pressure on the damaged nerve.

            I have now had NA five times with two different Paris doctors. The procedure there has been very straight forward. No drugs beforehand, no nurse, no fuss. Hands washed in Betadine then straight into it. First injection hurts until the anesthetic takes effect in that area and then a little more pain each time the doctor starts in a new area but each time only until the anesthetic takes effect. Any sign of pain and each doctor would immediately ask if that was electric pain. If so they pull the needle out immediately and start again in a new direction with a new needle.

            This all may sound like NA is a big nerve hazard but the same applies to open surgery. I ended up with short term nerve damage after surgery but I know others that have permanent nerve damage after having had surgery.

              12/18/2012 07:05
              wach 

              Administrator

              12/18/2012 07:05
              wach 

              Administrator

              Re: Personal experience

              Brian, you can search the forum for DMSO (left menu). There are quite a few posts on DMSO. Results are mixed but I don't think it would do much harm if your tried it.

              Wolfgang

              Brian_PDX:
              Good comments from all. I agree the dupuytrens-contracture.com site is more "selling" than "informing" and one must be careful. I left him a note on specific data and information and look forward to see his response. One point, I grew up raising horses and we used DMSO often on a wide variety of musculoskeletal issues and the results were amazing. I would have no problem trying it on my hands.

                01/02/2013 23:56
                nevermind 
                01/02/2013 23:56
                nevermind 
                Re: Personal experience

                Hey guys

                Im 22, i found a nodule in my hand a couple of years ago and have developed a chord since (although i am still able to lay my hand flat) I had an Ulnar osteotomy a couple of years ago so maybe that was a trigger for it ... I went to see my GP and she confirmed it was Dupeytrens disease and told me to come back when it has further developed.

                From what i have read DD is rare in young people and is potentially the most problematic in terms of functionality and recurrence in later life. I'm half norwegian and my grandad had severe DD as well so i'm expecting the worse here.

                Worst part is I'm a music student and play guitar and piano and fear this is going to really effect my career in the future.. the only person i've come across that has had DD onset in their early 20's said that they have had fingers amputated, multiple failed surgeries etc.. which got me worrying !

                These other treatments such as radiation therapy and xiaflex seemed promising but have also read on this thread that its best not to mess with them too much... is their any other kinds of research being done on DD ?? looking for the light at the end of the tunnel !

                Thanks

                  01/03/2013 01:08
                  callie 
                  01/03/2013 01:08
                  callie 
                  Re: Personal experience

                  Best option right now would probably RT. Your next option if finger starts contracting would be NA (look under treatments above). How is your insurance? RT is about $8,000-10,000.

                    01/03/2013 01:26
                    Brian_PDX 
                    01/03/2013 01:26
                    Brian_PDX 
                    Re: Personal experience

                    An onset in the 20s is disturbing. I was diagnosed in my 40s and it has been a bitch. I highly recommend you look at all options with multiple experts in the field. Most GPs won't have the experience. I have to drive 45 minutes from a large city to find someone with experience with DD and his dad had the disease which created his interest as a doctor. A surgeon will recommend surgery (if you can cut it you can cure it), but other specialists will give you more options. I have had two failed palmar fasciectomies (one on each hand) and an amputation of one little finger and part of the palm.

                    I have worked for months to get my insurance company to approve Xiaflex treatment as surgery is ineffective in my case. The people at Xiaflex, along with people on this website, worked with me to get Molina Insurance to approve the treatment which just happened today. I have two completely contracted fingers and one partially. My procedures with Xiaflex begin the week of January 14th and I will report back in detail on this site.

                    The data on Xiaflex is encouraging with a 77% success rate but it is extremely painful with a chance for nerve damage. Frankly, after years of study, experience and degrees in the medical field, I don't see a better alternative than Xiaflex but time will tell and each person is different. I have been left with zero confidence in surgeons.

                    Good luck and check back in a couple of weeks as I will report accurately and in detail my experience.

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