I appreciate the information. My thoughts are about all of those who don't reach a control group. In my personal experience I know many people who I told them they have Dupuytren's who have never mentioned it to anyone. They have said that it hasn't bothered them and it has been that way for years. Just last Saturday the two people who I was sitting with at a basketball game had Dupuytren's. One knew (because I told him several years ago) and the other had always wondered what that "lump" was. Then he told me about the "lumps" in his arches that were hurting from playing basketball for a long time the week before.

Question, what procedure code and diagnosis code have worked for insurance coverage for RT in the United States?

I wouldn't get RT the minute I saw a bump. The first time, I had this fear that I was going to miss the window of opportunity, but I don't think it will become dormant overnight. I don't know why I think that except basing it on my right hand and it kinda makes sense to me, but I may be wrong.

Right now, I am watching nodules increase in the forefinger of my left hand. When that started about 8-9 months ago, I knew what was going on because of the experience with my right hand. There is not the same itchiness and crawly feeling but some are getting harder, new ones are popping up, there is soreness when they first pop out, etc, but no contracture. If contracture hints at starting, I'll go for RT. That's why I got it set up with the oncologist who is ready to go when my hand is ready.

Knowing what "active" means is one of the hardest things, I think. The first time, I kept watching and seeing multiple nodules come up within 2 months and that was a huge clue. I also had that itchiness, achy feeling. The grip slowly got weaker and weaker. I don't know what others experienced. Maybe it would be good to have a separate thread with descriptions of active Dupuytren's.

I don't know about the dermal pits, but it seems like they would be related to the nodules. Good question. Would you ask your oncologist about that and let us know?

Re codes: I don't remember the diagnosis code for Dupuytren's, but if you google ICD-9 code and the name of the disease it will come up.I wouldn't worry about the CPT (procedure) codes. There are many different CPT codes billed for.the entire RT process and your provider will know what to bill (and different providers know may do it differently anyway).


Good luck!

Maddie