I wanted to follow up with my latest exam. It has been about a month since my last of two series of radiation treatments. Met with Dr. Reymond this morning (St. Francis Hospital, Topeka, KS). One cord in my left hand seems to be gone. He thinks that the nodules are softer. Nothing is larger or more advanced. I realize that this is early on, but I'm going to keep reporting as I go along so that others might benefit from my experience. My next exam will be in January of 2009. Unless I see some type of change prior to that I probably won't add to the forum, but I will check from time to time to see if someone has questions.

Hi Australia Calling, I have received the 5X 3Gy radiotherapy protocol by Prof.Seegenschmiedt in Essen
Germany. He now repeats this protocol ,if necessary 3 months later. In my case I found that the nodules completly, disappeared in my right hand ,which did not need have the second protocol . After the radiotherapy, the Prof. suggested I apply a high potency creme containing Urea, which helps to retain moisture. I had no adverse results. It is now 12 months since my initial treatment and I am returning next week for a check up and to incorporate a good time in Germany. THE MESSAGE IS DONT WAIT UNTIL THE CORDS DEVELOPE. Regards from down under.

Edited 09/10/08 11:38

Following up again 1-20-2009. Met with Dr. Reymond this morning. He did not see anything in the examination to make us believe that the Dupuytrens was advancing. If anything the nodules are somewhat smaller, both in height and radius. No cords. I have 100% use of my hands, no discomfort. If it weren't for the little bumps you wouldn't know there was a problem. I understand that we have to wait a couple of years before we can really believe that the disease is arrested, but 1/4 of the way, and so far, so good. Best wishes to everyone.

Good luck to you both and thank you for posting this information

HI D Wilson,

That is great news.

Same for me....no changes in two years since the radiation treatment. In fact, the nodule on my right hand, while still there, is much reduced. Some days I can barely feel it and it is barely visible. The small cord on my left hand hasn't visibly changed. I feel very fortunate.

Megan