It is quite difficult to find a surgeon or general practitioner who is familiar with the ways and means of Dupuytren's. However, there are a few out there listed elsewhere in this forum as well as on several Facebook sites.

I myself had a fantastic experience back in 2006 with Dr. Keith Denkler in Larkspur (San Francisco area) who performed NA on a 90 degree contractured small finger. It was quite painful (the numbing injections) but ultimately rather successful, aided and abetted by my going to a hand therapist (his recommendation) for many months afterward and continuing to wear custom made splints at night for 3-4 years. I chose to fly to SF to visit with Dr. Denkler, whio I believe is still active. Prior to contracture, I believe many have experienced success with radiation treatments from a knowledgeable practitioner.

Best of luck!

Thank you Mike!! I was able to get an appointment with Dr. Denkler this week. He looked at photos and thought steroid injections were a good option. I can’t tell you how much I appreciate your help!! I’ll report back after. I am so grateful you shared your story.

I am a 58 year woman with seemingly quickly progressing DP in both hands. I've been looking for a good doctor for 3 years now. I've met with 3 hand specialists, surgeons that all absolutely refuse to do anything other than Xiaflex or fasciectomy. They completely deny that triamcinolone is an option for lessening the progression of the nodule formation or heaven forbid actually reversing the growth. I have also tried finding a rheumatologist who may treat the condition but no luck. I saw the referral to Dr. Denkler in San Francisco area and may consider traveling if he is truly willing to do the steroid treatments first instead of waiting until its too late. Does anyone know of anybody on the Los Angeles, Orange county or even San Diego area that treats early but progressing Dupuytren's before surgery is the only option?

MojoMom:

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I am a 58 year woman with seemingly quickly progressing DP in both hands. I've been looking for a good doctor for 3 years now. I've met with 3 hand specialists, surgeons that all absolutely refuse to do anything other than Xiaflex or fasciectomy. They completely deny that triamcinolone is an option for lessening the progression of the nodule formation or heaven forbid actually reversing the growth. I have also tried finding a rheumatologist who may treat the condition but no luck. I saw the referral to Dr. Denkler in San Francisco area and may consider traveling if he is truly willing to do the steroid treatments first instead of waiting until its too late. Does anyone know of anybody on the Los Angeles, Orange county or even San Diego area that treats early but progressing Dupuytren's before surgery is the only option?

Thank you for the info, I had the same experience with my surgeon wanting me to wait until I had contractures. What is Doctor Songs first name? it looks like there are 2 at Virginia Mason Radiation Oncology in Seattle. Also, did you have side effects from the radiation? Is it equivalent to a few X-rays or quite a bit more radiation?

Edited 06/29/2024 17:09