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Survey results comment
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09/27/2015 16:13
dpjcrfsh 
09/27/2015 16:13
dpjcrfsh 
Survey results comment

I find these survey results very informative: http://www.dupuytren-online.info/patient_survey.html

One thing I find a bit surprising is that the outcome for Xiaflex (shown as collagenase) is slightly worse than fasciectomy and appears significantly worse that NA. I know people here have mentioned to avoid fasciectomy if at all possible, which to me indicates that Xiaflex might also be avoided too, especially in favor of NA.

09/27/2015 21:24
Stefan_K. 
09/27/2015 21:24
Stefan_K. 

Re: Survey results comment

Thanks for pointing out that survey. It would be nice if the case numbers could be added to the various DD treatments as has been done for LD.

The reported results for Collagenase/Xiaflex surprise me. For the interpretation of this top-level data it would be useful to understand in what stage patients were treated, and what main problems they encountered. With the typical evolution of DD progression can easily be attributed falsely to one or the other treatment or event when in fact it is unrelated. I would like to understand better what "made it worse" (as I understand it up to 30% of cases) means.

10/02/2015 17:51
wach 

Administrator

10/02/2015 17:51
wach 

Administrator

Re: Survey results comment

These are the results of our recent patient survey. Our goal was to keep the survey simple and short. There are many aspects that would be very useful to be evaluated in more detail but the danger is that the survey then gets too long, too complicated, and answers less reliable and meaningful. It's always a comprimise.

Treatments were assessed by a range of 1 - 10 where 1 was the worst Rating and defined as "made it worse", which we considered the worst outcome of a treatment.

The number of responses has been added for Dupuytren's http://www.dupuytren-online.info/patient_survey.html.

Wolfgang

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