I should say first doctor in the states that I didn't have to teach obviously Prof S is informed.

Penny: I am so happy to see you are having some good initial results! I will be following your updates with much interest as it has been confirmed that my Tenex procedure did not work. There is a possibility that a physician near where I live may follow your doctor's protocol and be willing to start this injection therapy for me. I will need to wait and see on that, but I guess we do a lot of "wait and see" with this disease. If he is not able or willing to do the injections, I will either do radiation or fly to TX to see your doctor. This forum has a lot of information on radiation, but not as much on other procedures. I did correspond with another patient in CA that had two of these injections with your doctor. He will be having a third soon and is experiencing significant improvement. Keep us posted and best wishes to you!

Edited 03/27/14 03:54

nanshands:

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Due to my interest in exploring the use of hyaluronidase injections for the treatment of my fibromas a few months ago I sent several questions to Dr. Davis to respond to. A couple of weeks ago I sent him a few more questions and asked him if it would be alright to post all of his answers on this Forum. He said, "Yes."

I hope in sharing this information about the treatment process, etc. it will be of value to others.

Hopefully adding to this promising procedure will be Penny's continued success.

Nan

I had my second injection last week and am happy with the results. The first visit I had an extensive exam and sonogram, orthotics for my shoes made, a nerve block in both feet, local anesthesia and the the injection in both feet. I am cash pay/no insurance and the cost was $1097.50 and the orthotics were approx $500 of that. I still haven't gotten the break down from the billing office. The second injections in both feet I did without the nerve block, just the local and the cost was $155 and he again used the sonogram. So how it all breaks down and what it is if you have insurance I don't know. I am doing an interview for Gary's blog http://ledderhose.blogspot.com/p/patient-interviews.html if you want my full story. If this doesn't last, I will do it again...I have my feet back!!! But according to Dr. Davis who has been doing this for 20+ years it does last in the feet.

Hi Everyone,

For those that are interested the interview discussing Penny's experience can now be found at the following address http://ledderhose.blogspot.co.uk/2014/04...luronidase.html.

Thanks,

Gary