Hi

I am a 42 year old male with 1st stage depuytrens. I have some early signs at about 28 with some sore finger joints and the first noodle appeared in my finger at 39 years of age. Last year after the first 2 noodles appeared in my right hand a doctor told we it was depuytrens.

I live in Denmark and the doctor recommended that I look no action before the fingers had a 30-40% bend and they have surgery. I still have full dexterity in my fingers but the noodles are growing and 1 more appeared on the other hand.

I am not convinced that the best cause of action for me is just to wait till it gets worse. Do any of you have some good advice and even better know an expert doctor in the field that you can recommend and his e-mail address. I would much prefer is the expert was situated in Europe.

Thanks for your help

Daniel

Hi Prof Seegenschmiedt is in Hamburg just a hop skip and a jump. He is the expert by none on Dupuytrens. Written books about the use of Radiotherapy for Non Malignant Diseases. He has the latest equipment . Cyberknife only about 10 in Germany. Have a look at his website. I would also recommend Prof Frank STAUB in DOSSENHEIM a suburb to say of Heidelberg. Dr Albrech MEINEL of WEURZBURG works with him on certain days of the month for PNF . (NA) Dr MEINEL went to Paris to study the technique. All three speak perfect English. I travelled from Australia and have been treated by all three . Finally take a tip from an old dog don't have surgery if you can avoid it. I 've had 15 odd including 4 skin grafts. I would say you are too young to venture down that track. Take Stefan's advice.

Edited 11/05/14 18:42

spanishbuddha:

---

Welcome to the forum Daniel

Just to add to the advice already given, RT is only effective during an active proliferation phase when new nodules are growing or existing nodules are increasing. This is usually accompanied by other symptoms such as soreness, tingling, stiffness, pins and needles. So if you would like to do something such as RT, you, or your physician, need to make that assessment on whether the timing is right. Best way to do this is keep a record of symptoms, including photos, over a few weeks or months if the activity is slow. That way you will have objective data that can be assessed.

Example, for my left hand I waited 18 months (and that was 2 years after first symptoms), before deciding, now is the time, and ProfS in Hamburg agreed.

For my right hand the symptoms were more aggressive and I only waited 5 months. In both cases I had that objective record of activity and changes.

RT on a dormant phase has no evidence of success as a prophylactic.

SB