Decision making - need input (4) | Dupuytren Disease | Forum for Dupuytren's and Ledderhose

Laurie · 2011-05-16T21:49:01+00:00

Last winter I underwent radiation treatment on 5 nodules in left hand. Now I have a new nodule in an area outside of the treated zone and one of the treated nodules has grown and is now I think a cord. I contacted Dr. Weiss who did the radiation and she said I can have another round and she would want to do it in 7 days rather than the 5 and 5 like before. Has anybody had success in a similar situation? I'm wondering a couple of things - it will cost me a couple thousand dollars out of pocket to go through rt again. If it didn't work before, why would it work now. I'm wondering if the new nodule was actually there before, but smaller - and when I read about the German doctor who is so good at finding nodules - is there not any kind of imaging that can "spot" the nodules - so the treatment area is more precise? Why don't they just radiate the whole hand? I'm discouraged, and I don't like the thought of sinking more money into a losing battle. But I really don't like the alternatives either.

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Decision making - need input

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06/06/2011 18:14

TrevB

06/06/2011 18:14
TrevB

Re: Decision making - need input

flojo:

The RT that I had done on my right hand certainly helped. It stopped the progression, but the existing cords did not go away.

Same here. 3 years down the line with the nodule that was really progressing in line with my little finger all but disappeared. Everything else has flattened out and is stable at the moment, touch wood. I can see two cords which I couldn't before RT but I'm not too bothered about those as they're just sitting there.

I can only offer my thanks to the great staff at Poole hospital and Dr Goode (who I believe has retired) who carried out the full palm treatment on my right hand

Cambidgeshire, UK.

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