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Dupuytren's Diathesis Patients with Progressive Peyronie's Life Experience
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05/09/2026 08:13
Tobi89 
05/09/2026 08:13
Tobi89 
Dupuytren's Diathesis Patients with Progressive Peyronie's Life Experience

Hi Everyone,

I have Morbus Ledderhose (started 36yo) and Peyronie's Disease (started 31yo), Knuckle Pads (started at 17yo). My hands are itchy a bit, but not yet clear sign of nodules or contraction. My father had DD, ML and PD.

Now especially my Peyronie's Disease reactivated with a 2nd nodule after being stable for 5 years. I did not have a clear trauma so I suspect I need to be prepared for lifelong progression.

Therefore, I wanted to ask if there are patients in a similar category that have the disease for multiple years or decades and can give me some life advice especially in regards to Peyronie's Disease.

On Peyronie's Disease patient groups there are strangely not many patients with DD or ML and typically consists of patients with a clear trauma or penile fracture.

As this is a quite personal topic I would be super happy to exchange via direct messages or a video call, etc.

Thank you and kind regards
Tobi

05/09/2026 15:49
spanishbuddha 

Administrator

05/09/2026 15:49
spanishbuddha 

Administrator

Re: Dupuytren's Diathesis Patients with Progressive Peyronie's Life Experience

Hi

I can't help directly but want to make sure you know the BDS has quite a bit of info on PD:
https://dupuytrens-society.org.uk/inform...ronies-disease/
https://dupuytrens-society.org.uk/treatment-2/peyronies/
https://dupuytrens-society.org.uk/inform...seful-websites/
https://www.inspire.com/resources/mens-h...ocate-gislason/

Best wishes SB

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