My son had surgery 1 week ago on his pinky. His pinky was at a 90 degree angle. Dr told us this his 2 case of a child with this disease in his 30 years of practice. Any help from others with young adolescents with disease would help. He is very scared of his future with his hands working correctly.

Edited 01/18/18 17:00

Hi Cabusch; I can understand your son's anxiety. I had my first surgery when I was 13/14. My parents have passed away so I can't ask them when exactly but I know it was before I got my drivers license and I got that as soon as I turned 15.

My first surgery was on one of my feet as I have LD and DD.

The good bit for your son is that you know what you are dealing with. If you are going to get an incurable disease this is the one you want.

I am now 63 and, as I have relayed many times on this forum, I used to play squash and field hockey. I still play tennis 2-3 times per week (Saturday for 3 hours), I go to the gym 5-7 times per week. I work with heavy weights, cross trainers, air bikes, rowers, the lot. I go on a cycling adventure somewhere in the world most years with my wife. When we are travelling (Which we do often) my wife and I can walk up to 20km per day. My message - I have had this disease for 50 years but it doesn't stop me doing anything that I want to do.

I have DD extensively in both hands and LD both feet.

I understand that it is different for everyone but for me it has been a burst of activity in my early teens leading to surgery at 13/14. The lumps returned and multiplied on the site of the surgery. By age 20 I had LD both feet and DD one hand. By early 30's I had DD in both hands and had surgery on my left hand (Pinky and across the palm). It came back. I now have NA every 18 months to 2 years and I treat it like going to the dentist.

If your son is concerned about the effects of this disease over time I am happy to send images. I am not going to get a job as a hand model but they work just fine after having DD for 45-50 years.

Seph

Rebecca :)
Diagnosed at 19/Female/Family History of Dupuytren

Hi! I was diagnosed a few years ago in my late teens, however, I had fibromas in other parts of my body (neck and chest) from childhood (which could be connected to DD). Feel free to ask me any questions if it could help.