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An Excellent medical web site
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08/05/2003 23:10
Randy

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08/05/2003 23:10
Randy

not registered

An Excellent medical web site

For those new to this site, the following is the most comprehensive medical web page I have seen yet regarding Dupuytren Contracture. As an American "medical" sight it is not strong on alternatives to surgery, but still highly informative. Please add any other sites of similar quality.

http://www.emedicine.com/orthoped/topic81.htm

The more educated among us may find it encouraging that that "Collagenase percutaneous needle fasciotomy" is mentioned, but true to form, no mention of the "French" needle, only the new American one.

Note: the COST to perform the Phase III FDA Collagenase trial at the third of the three locations is now being negotiated by BioSpecifis. It's a fair bet that the nature of the delays have been budgetary. Let's hope this deal can be struck. I will update when I learn of anything definite and concrete.

08/07/2003 23:44
mac

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08/07/2003 23:44
mac

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good read

Thanks Randy for this article. At least they are talking about needle fasciotomy. My ortho doc dismisses it like it is voodoo. I am avoiding the scalpel as long as possible hoping for an alternative.

08/07/2003 23:40
Randy

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08/07/2003 23:40
Randy

not registered

Avoid the Knife

Mac

You doc may confuse the US collagenase injections under study this with the "French Needle" which doesn't inject anything, but only cuts the scar tissue chord and releases the contracted finger. Either way, I recommend you avoid the knife FOREVER if you can. If I knew then what I know now, I would have gone to Paris. I had one of the best in the business cut me, but after four months I can't type normally. My hand therapist says two to four more months. Also, the trauma has spread the disease.

Listen to the guys who have been to Europe, I have not.......but I will in a heart beat should I need to.

08/09/2003 23:37
Mary Beth & Richard

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08/09/2003 23:37
Mary Beth & Richard

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Dupuytrens Sufferers United

Mac,
Randy is right, go to Europe. Since you have not suc-
combed (sic) to surgery, you are in the driver's seat on
your options. It is interesting that your ortho dismisses
NA as if it were voodoo. Our last surgeon, when asked,
mumbled something along the lines of, "oh, uh, that's what
that guy it was named after, Dupuytrens tried to do, a long,
long time ago, but it didn't work." Actually it has worked
quite well for quite a few. What must be kept utmost in
one's mind is that THERE IS NO CURE FOR DUPUYTRENS. Every
thing from surgery to NA is treatment of the symptoms. Is
recurrence possible with either, YES, but at what consequence? Very traumatic, or not. Take your pick.

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