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Forum for Dupuytren's and Ledderhose 
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  • Australian Sufferers
    • Australian Sufferers
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    05/08/2002 23:59
    Robert Jack

    not registered
    05/08/2002 23:59
    Robert Jack

    not registered

    		 Australian Sufferers

    Hi fellow DC Sufferers. I have had DC in both hands and feet for as long as I can remember. I have had two operations on my right hand, both on the ring finger, the first of which was not successful. The second operation, performed about seven years ago, was successful. However the condition now seems to have taken of with a vengence in both hands. My right hand has developed both thickening and nodules in previously unaffected areas and I have had similar growth in my left hand. My feet are progressing slowly, but surely. I was very glad to find this forum and I will return often to read all about our varied experiences. I would really like to hear from any Australian sufferers and I am desperate to find out if needle apronevotomy (?) is available in this country. Thanks fopr being here and good luck to everybody.

    05/18/2002 23:39
    Stuart Meadley

    not registered
    05/18/2002 23:39
    Stuart Meadley

    not registered

    		 DC in Australia

    G'day Robert.

    I was diagnosed about a year ago with DC in my left hand. It aches sometimes, but it's not too bad. I'm 32. My dad is 62 and has recently had surgery on his hand and the other one probably will be soon enough.

    I'm heartened by details which indicate it doesn't always result in contraction of the fingers. I'm keeping positive about it. And I honestly believe I will beat it.

    I have a Chinese Medical Practictioner (acupuncturist, etc.), who suggested I just massage it every day as much as I can. He and I make no guarantee it will work, but I'm giving it a go, becuase I don't like invasive procedures (surgery). This is the first time I've gone searching for info, so I'm pleased to see there's so much out there.

    I'll be asking my doctor next time I'm there what progresss there is on the injections treatment, but the studies seem to indicate they are still at least a year or so off being approved by the FDA.

    Take care

    Stuart :)
    05/19/2002 23:05
    Eddie 
    05/19/2002 23:05
    Eddie      		DP in ozzieland

    HI ozzies :
    The BioSpecifics company news (look at their homepage) includes some information that a company in Australia will be involved in the further investigation of cordase.
    See : http://www.biospecifics.com/companynews.html
    05/19/2002 23:26
    jim h

    not registered
    05/19/2002 23:26
    jim h

    not registered

    		 cordase in oz

    That's good news and something I had overlooked. It might mean that regulatory approval is easier to get in Australia, that patenting is simpler, and the market is large. All of which might cause the treatment to be available sooner. Of course, for me, it's about 24 hours of air travel on 3 flights. But I'll do it!
    06/19/2002 23:31
    John

    not registered
    06/19/2002 23:31
    John

    not registered

    		 DC in Aussie

    I am a 59 year old male
    I had my left hand oprated on 3 years ago - it was very painful
    next month the right has similar treatment

    the french forum is helpful, as is this
    07/08/2002 23:10
    john 
    07/08/2002 23:10
    john      		surgery

    had surgery in Adelaide last week
    recovering well with very little pain

    not like last time
    08/16/2002 23:22
    Anne 
    08/16/2002 23:22
    Anne      		Recent Op

    My husband has just had op for Dupuytren's on his right hand, was getting close to losing little finger. He is lined up to have 4th or 5th op on left hand, this hand has Dup in every finger and palm. He has also had op on sole of left foot, touching wood there is no sign of Dup's returning, anyway he says he won't have this op again, rather painful. Have read that it does not usually return in operated sights, his left hand discounts this. Is there light at the end of the tunnel?
    Anne
    08/17/2002 23:07
    JERRY 
    08/17/2002 23:07
    JERRY      		LET~sq~S HEAR FROM DOWN UNDER!


    PLEASE NOTE:

    I am conducting an unscientific survey in an attempt to gather information with regard to our Dupuytren's problem. Please utilize the following URL to visit the site of the Questionnaire:

    http://www.stcatz.org/dupuytren.htm

    Remember: A large amount of responders will provide us with the most clout.

    Thank you
    06/13/2003 23:24
    Sonny

    not registered
    06/13/2003 23:24
    Sonny

    not registered

    		 DP

    Hi there downunder,
    i have just read trough all your comments and found it very interesting that DP occurs in Australia only in your hands resp. feet!
    Over here in Europe, DP or IPP (Induratio Penis Plastica) is mainly described as a plaque, building up on the top of the penis and consequentely resulting in an upward curvation of the penis which makes intercoursenarly impossible.
    I myself am a sufferer of IPP. We have a selfhelping group at yahoo but only in german.
    Hope somedays they will find something against this desease.
    At present, I strat trying a laser treatment which i found
    at http://www.centrolaserterapia.it/eng contatti.htm
    My best greetings to Australia where I have been living for a most interesting 6 yrs.

    Sonny
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