Dupuytren Con. in the feet. |
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06/12/1999 23:34
Norm Rivardnot registered
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06/12/1999 23:34
Norm Rivardnot registered
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Dupuytren Con. in the feet.
On SEPT 25/98 i WAS DIAGNOSED WITH DUPUYTREN IN THE RIGHT FOOT I HAD SURGERY DONE ON FEB.16/99 IT CAME BACK I AM RESHEDULE FOR SURGERY, HAS ANYONE BEEN DIAGNOSED WITH THE SAME . PLEASE REPLY
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07/13/2000 23:34
Mikenot registered
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07/13/2000 23:34
Mikenot registered
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both feet
I have it in both hands and on both feet. I can still walk O.K., but it is becoming increasingly more difficult. My hans are my biggest concern right now.
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07/15/2000 23:47
Mattnot registered
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07/15/2000 23:47
Mattnot registered
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Dupuytrens in the feet
I have a contracture pulling the little finger of my left hand. Also a lump on the big toe tendon of my left foot, below the ball of my foot. Finally, two small sized lumps on my right foot, both in the arch area, spaced about an inch apart.
The foot lumps hurt, especially when I get up on the morning and my feet are stiff. I am concerned about surgery screwing up my feet. I'd like to believe that if I hold out long enough, something might develop on the cordase injection front so I don't have to have surgery.
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08/15/2000 23:17
steven phillipsnot registered
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08/15/2000 23:17
steven phillipsnot registered
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yes in both of my feet
IT started in my hands but now i have it in both of my feet .. I have nodules on the balls of me.. this causes my feet to ack... the doc
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01/11/2001 23:21
Mike Annannot registered
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01/11/2001 23:21
Mike Annannot registered
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Dupuytrens in the feet
I have just been diagnosed with a large dupuytrens nodule in my right foot. Surgery is planned for 22/01/2000. Does anyone have any information?
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05/02/2001 23:05
John B. Kallanot registered
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05/02/2001 23:05
John B. Kallanot registered
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Wife Just Diagnosed w/ Dup. Cont.
Hello all. My wife is getting medically discharged from the army because of Dupuytren's Contracture in her feet. It is incredibly painful to her and is getting worse. The doctor told her there is no surgery that will correct this and that she probably won't be able to walk in 5-10 years. Does this sound like a correct diagnosis to anyone? It shows as a hard lump on her right arch, but they tell her it is starting in her left foot also. Any info at all would be helpful...
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06/27/2001 23:11
Jack (Seattle area)not registered
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06/27/2001 23:11
Jack (Seattle area)not registered
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new member with DC in hand and feet
This is my first posting to this forum, and I am glad to have found it. It's nice to hear from others with this disease. I will give a brief history in case it helps anyone with similar symptoms.
I have DC in left little finger/palm, a knuckle pad on right middle finger, and in both feet (though I think it's called fibro-matosis of the plantor facia instead of DC). My Doctor said that the operation on the feet is different from the hand because they can't easily take out just the nodules - they would have to take out the whole plantar facia (in other words, the arch ligament structure). That sounds pretty serious to me, so I am delaying that surgery as long as I can. My feet also hurt most in the morning, but after I get going they don't bother me much. Sometines I get cramping and sharp pains, but not enough to get surgery. I can still walk, hike, and play racquetball, so I am afraid to get surgery yet - it might be worse afterwards.
I have had DC in my left hand (little finger) for the last 23 years (I am 45 now), and have had 2 surgeries. It is back again even worse - into my palm now, and I am contemplating surgery again this winter. My Dr. says that he thinks it's best to wait as long as possible between surgeries to minimize trauma to the tissue. It gets harder to recover after each surgery.
I also have a knuckle pad on right middle finger, on the 2nd knuckle (the one you normally knock with!) That hurts sometimes, but I am waiting on surgery for that too.
I am curious about anyone who has had the plantar facia removed. What were the effects of this? Do you recommend the surgery?
By the way, I have another rare genetic disorder: Stargardt's disease in my retina. Does anyone else with DC have that?
Best regards to all,
Jack (Seattle area)
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07/17/2001 23:33
Vancenot registered
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07/17/2001 23:33
Vancenot registered
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Ledderhose disease
Hi
I've had this disease for about 10 years and have put off surgery due to the fact that I have not heard of any success stories. I haven't come across a doctor yet who has performed the operation successfully either. Anyway the pain is unbearable at times and I've tried basically everything but surgery. I find stretching at least 3 times a day (hands on wall 1 leg as far back as possible keeping knee straight as an arrow) to be the most help. Orthodics are a necessity. Night splints mitigate the morning pain a little as well. I just read on another message board that a sufferer has found some relief with those massage sandals so I'm going to buy them tomorrow, I'll post later if they've helped. I've also found some relief with gel inserts in my shoes Viscopeds, I just ordered another pair, they wear out in just a couple of months. Anyway, I'm glad I found this board, feel free to email me because I know it's tough to find anyone in person to talk to about this rare disease. I would appreciate it if anyone who has had the operation - successful or not - to please email me. Or if anyone has had any success with other rememdies please post them. Thanks.
Vince
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07/17/2001 23:35
Vancenot registered
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07/17/2001 23:35
Vancenot registered
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Ledderhose disease
Oh by the way Ledderhose disease is the name they give to those who have Dupyutren on their feet...
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07/18/2001 23:04
Vincenot registered
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07/18/2001 23:04
Vincenot registered
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New message board created for Ledderhose disease
Hello all, a couple of us have started a yahoo group for Ledderhose disease and dupyutren.
http://groups.yahoo.com/group/ledderhose_disease
It's very hard to find any info on this rare disease on the net so we will all need to pool our knowledge to come up with our own rememdies and share our experiences. If you find anything that's helpful please share it with us.
Thanks.
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