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dupuytren's disease
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03/14/2002 23:38
Paula

not registered

03/14/2002 23:38
Paula

not registered

dupuytren's disease

I have had nodules in both hands and feet for over 25years.
Ihad two hand surgeries on my pinky and finger next to it. The worst decision I made. The last surgery was done at Hospital for Special Surgery with a hand surgeon who was a chief. I have been told that women do not do well with surgery. The most honest information came from the hand therapist,not the surgeon. Developed scar tissue.
Was told never to touch the feet. I'm 65 look pretty good and exercise daily....weights and treadmill 3 miles a day.Oftn wonder if diet has any influence. No one in my family has this. I'm not a heavy drinker..semi vegetarian
eat nuts and dried fruits every day. I was just told by another hand surgeon that my case is the worst he has ever seen. I try to ignore as much as possible playing golf etc.Hope someday they have another way to deal with this. Every now and then I have deep tissue itching. Good luck to all who has this and any info greatly appreciated.

    03/15/2002 23:43
    Gary Evans

    not registered

    03/15/2002 23:43
    Gary Evans

    not registered

    long term with dupuytren~sq~s disease

    Why was surgery the "worst decision you ever made"? Did you have contraction or just nodules? Why do you say you would not golf? Do you feel golf or similar activities stimulates the disease in your case? Were the nodules painful? Have your feet remained relatively stable over the years?

      06/04/2002 23:30
      paula 
      06/04/2002 23:30
      paula 
      answering Gary Evans

      The surgery seemed to escalate desease. I meant that I ignore as much as possible and do play golf. Feet have remained the same and no pain. Sorry this took so long to answer..hadn't checked site.

        12/29/2002 23:36
        Diane Thomas

        not registered

        12/29/2002 23:36
        Diane Thomas

        not registered

        Dupuytrens Disease

        Does this usually affect people with Diabetes?


        Thank you

          12/29/2002 23:14
          Tony 
          12/29/2002 23:14
          Tony 
          D/C

          I have Diabetes, just like D/C; it is in our genes. However, I believe trama does play a big part. I can't say that diabetes has caused the problems of D/C but like any disease, take care of yourself. The American Society for Surgery states that people that suffer from D/C experience little to no pain. What do they know? It's like finding a doctor with diabetes. They can tell you how to take care of yourself but there is no cure...

            06/01/2003 23:06
            janette

            not registered

            06/01/2003 23:06
            janette

            not registered

            dupuytrens disease

            my husband has dupuytrens disease. it has affected only one hand for which we are grateful! he isn't a typical dupuytren's patient. he was only 39 when symptoms began to occur. he is not diabetic nor does this disease appear in any other member of his family. a year later he had the surgery to release his fingers. there was a long, painful recovery. the disease has returned with a vengence! the doctor has suggested another surgery in the future. there doesn't seem to be anything that can be done to slow this disease or to help with the pain or contracture.

              06/02/2003 23:26
              Richard & Mary Beth

              not registered

              06/02/2003 23:26
              Richard & Mary Beth

              not registered

              long term with dupuytrebs

              Janette,
              Very sorry to hear of your husband's condition. Thirty
              nine is earlier than most. My husband was diagnosed in his
              early thirties, but had actually had nodules in his palms
              since approx. late twenties. He has had 4 surgeries and
              they were also painful with long recovery periods. It was
              approx 3-4 mos before he could resume most normal activities
              and even longer til all pain was gone. His has recurred
              more frequently following each surgery. It doesn't matter
              what his surgeon recommends, if he had recurrence of such
              vengeance, he does not need to do it again. There are
              other options described on this forum. Traditional sur-
              gery is the only one that most Dr.s in the US will recom-
              mend, or actually even acknowledge. Don't just take their
              word or a second opinion of another doctor in the same
              field. Read and learn and correspond.
              Good luck,
              Mary Beth & Richard

                06/13/2003 23:27
                Joanne 
                06/13/2003 23:27
                Joanne 
                long term with dupuytrebs

                I was diagnosed in my forties and am now 67 and have had about 7 surguries but have had no pain. Perhaps you need a different surgeon or I am just fortunate not to have pain. I would have tried the french beedle but it is too late once you have had surgery.

                  06/13/2003 23:25
                  JERRY 
                  06/13/2003 23:25
                  JERRY 
                  dupuytren~sq~s disease

                  My goodness: I think you set a record with 7 surgeries.

                  You are incorrect that NA cannot be performed after surgery. In your case I would agree, however unless there has been severe damage or encapsulation of joints, then NA is certainly a viable solution.

                    07/04/2003 23:52
                    wendy

                    not registered

                    07/04/2003 23:52
                    wendy

                    not registered

                    dupuytren~sq~s disease

                    possibly the silly question for the week here: i have 'lumps' in both my hands -- lots of them, both large and small. also i have noticed that i can tell when they are growing bigger or new ones are developing because they hurt! ah, the question -- i'm reading in different places that one should have this stuff treated early so as to have a good outcome (whatever that might be!) however, my doc has basically said to me ignore it wendy, until about ten years or so from now when your fingers curl up and then we'll see about doing surgery or something. do i need a new doc? what have all you veterans out there done with this stuff? also, can someone tell me about how it does its thing in one's feetsies? my trouble there is that i have almost no feeling left in either of my feet (surgery for spinal cord cancers...blah) so i don't get the gee it hurts so they must be growing notices ;-)
                    long rambling letter -- hope someone will please find time to reply.
                    thanks in advance!!
                    wendy

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