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dupuytren~sq~s contracture
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mary beth borden

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mary beth borden

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dupuytren~sq~s contracture

How many of the people reading this message have been diagnosed with DC, Lederhouse disease(spic?), or peyronies disease? My husband has a very aggressive form of DC in both hands, LD in one foot and thank God, no Peyronies, even though I have a relative on my side of the family with Peyronies. Our insurance agent, stockbroker and several others that we have met have had at least one of these three diseases. So how rare is this disease when you can bring up these diseases and every day of the week meet people with one or the other of these. I think that the alibi of "this is too rare to warrant much research is passe." After 3 surgeries in my husbands left hand and one is his right, when scar tissue has built up and nerves and blood vessels have sustained damage from these surgeries he is now dealing with many problems with almost no answers. I have attempted to speak with several doctors and ask some questions that I think are very reasonable. Since my husband has problems with scar tissue from his four surgeries I cannot help but question why some of the new techniques for keloid reduction injections are not feasible.
Of course try to question a MD and you will be quickly blown off. Also try to question your doctor about why some
people have worse problems and what alternative methods may give some assistance and watch what happens. My research has led me to believe that skin grafting is a method that allows for a big reduction in recurrance, however my husband's surgeon (who by the way had a great reputation and following promised to do skin grafts on two separate occasions and did not) with no explanation, by the way. Also after finding out through research that DC is more common in people who are diabetic, epilectic or alchoholic, or who have hepatitis c, I then researched a common denominator which is liver damage or potential liver damage and/or liver malfunction. I found that for anyone with liver damage or the pre-disposition to it can take a supplement of Milk Thistle Extract, available from any GNC location and have some excellent results, but don't waste your breath asking a MD about suppliments because they don't know and (trust me) don't care to learn. If you are a sufferer of DC, LD or Peyronies disease stay posted because I have had it with the blow offs that my family has received from the medical community, when you can learn of every thing from various injections to supplemental vitamins and minerals, even to being able to research pain management techniques but no one doctor appears to be qualified to look at the overall picture. What is wrong with a good surgeon who can understand aggressive surgery with total or fire break skin grafts, the right diet and supplemental regime, and some pain management techniques whether it is injections of cortizone or ultasound heat treatments? Are there any true physicians with any wholistic or even common sense approaches.

toM

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toM

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Alternatives

Hi, sorry to hear of your husband's experiences. I think the frustration & results he has had is unfortunately typical of many many people. There are some on this board that have had good experiences with the hand surgeions, but not many who have posted here.

As far as alternatives, I don't know how familiar you are with the French procedure call needle aponverotomy(spelling is way off). Unfortunately the American medical industry, for unknown reasons, does not offer this humane and non invasive procedure.

Look forward to your future postings.

mary beth borden

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mary beth borden

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dupuytrens contracture/disease

Tom,

Our recent queries have been that post-op (ie after
numerous surgeries) the needle treatment is not a
valid option. Dr. Badois, after having received photos
of my husband's hands emailed us that his procedure would
probably not be successful. Not one to be detered, I
have begun to do research into other areas such as sister
or similar diseases, such as sclerotic which is a connec-
tive tissue disease. Common characteristics include
finger contracture, increased collagen growth, etc. What
is immediately evident is that for a disease that affects
only 300,000 US citizens annually, they have a foundation
magazines, and a budget whereby they donate 1 million
dollars per year to research. Why not a combination ef-
fort of DC, Lederhose and Peyronies foundation as I truly
believe that it affects many more. Also, just something
that I read today, if your body produces too much col-
lagen, stay away from Vitamin C as it causes the body to
produce collagen at an accelerated rate. Thanks for your
response. Mary Beth

JUD

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JUD

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Dupuytren surgery

I am 61 have had LD for about 14 years, DC for about 10 years two operation on left hand, last one three weeks ago when it heals will have one on right hand, also have PD for about 5 years, at first very unconfortable, now erection are hard to keep and have lost about three inches in length. No doctors in my area give me any incouragenment. I would be willing to give to any research on these diseases.

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injections   pre-disposition   dupuytren~sq~s   research   experiences   foundation   peyronies   characteristics   unconfortable   aggressive   unfortunately   contracture   husband   techniques   disease   aponverotomy   Alternatives   surgeries   incouragenment   supplemental