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Dupuytrens treatment
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09/07/2004 23:44
chet rees

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09/07/2004 23:44
chet rees

not registered

NA

Needle aponeurotomy looks good on this website. But there is little on it in the medical literature, in English at least.

People are posting a lot of good results. Anybody out there who has had a bad result or recurrence would be doing us all favor by posting it so please don't be shy! We need to see a balanced reporting of the results.

It would especially be useful if we could see some postings from people who had the procedure over a year ago. Lasting results are what counts.

Thank you

09/07/2004 23:57
Randy H.

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09/07/2004 23:57
Randy H.

not registered

colchicine

I beg to differ. Neither procedure can guarantee lasting results. Let's take *worst* case scenario: Let's say that compared to traditional invasive surgery, cases treated with NA have *twice* the rate of reoccurrence. (The French, who have done thousands of these procedure do not report this, however. See:http://www.dupuytren.org/html/gbefficace.html). The money, time and pain from the recovery of *one* traditional surgery is probably equivalent to the recovery of five or ten NA procedures. No compairison. Also, once surgery is done, NA may become impossible. NA can be repeated indefinitely, surgery can't. Three times and you're all done.

I understand your reluctance to embrace a procedure that is currently outside the mainstream of American Medical practice. However, I suspect that if you have surgery just once and have an *average* recovery, you'll be more likely to ignore the knee jerk advice that surgery is "the only way." It's just aint so.


09/07/2004 23:51
Terry

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09/07/2004 23:51
Terry

not registered

colchicine

Although I agree with Randy, I also think there is merit in including follow-on results--positive and negative--for both surgical and NA treatments. Various sub-topics in this forum do deal with recurrence after NA so it isn't as though no one responds, but more documentation would be helpful.

Of three people I know with DC, all three chose surgery. One had surgery two years ago, and contraction has begun again. The second had surgery four months ago (2 1/2 hours on one hand followed by four weeks of splints) and is putting the splints back on because contracture has resumed (he thinks it may be from the scar tissue). The third just had surgery several weeks ago. I have an appointment with my Ortho next week (he has recommended delaying surgery in my previous two visits because he readily admits that repeat surgeries are almost certain to be needed). I have appointments with Dr. Eaton the 30th and 1st, if they are back in business after Frances.

So far as I can see, no process prevents recurrence, but NA has the edge that repeat treatments--like the initial ones--are less traumatic.

09/07/2004 23:21
paulette

not registered

09/07/2004 23:21
paulette

not registered

colchicine

after just having successful n/a with Dr. Eaton last week, I am wearing splints at night and of course staying away from g/c and msm..he prescribed colchicine to try and slow the growing back process. I would like to know if anyone has tried and does it work?? I plan on going back to Florida and having more cords worked on. This procedure is not a cure, just a fantastic alternative to traditional surgery with probably better results, no recovery time, and certainly doesn't make it worse..having the procedure is an on going process. I do know of people who have had n/a and it was close to perfection with no regrowth and a straight hand..we have all different degrees of dups but there is no thought of ever having traditional surgery again...twice and horrible results...I will know more after 6 months and see what kind of regrowth I have...absolutely no problem in going back to Dr. Eaton for additional procedure if necessary. Once you met Dr.Eaton and staff you will have the confidence that we all have once the procedure is done. Good wishes to all...

09/10/2004 23:54
chet

not registered

09/10/2004 23:54
chet

not registered

Love having Mds here

Randy, I agree with everything you say, but more information is always better in my opinion. So we can all make informed decisions. I'm a medical doctor and an information hound who is used to looking at data critically, so I can't help it. In medicine, it's just as important to report bad results as it is good results. I am not worried about the momentum of the alternative treatments losing steam. Even from my current vantage point where NA results reporting is mostly anectdotal (with one fair manuscript I could find), it will probably be my first procedure, unless collagenase comes through and looks better to me. The collagenase researchers have done a much better job of reporting results. That of course does not mean it's a better procedure, but it allows objective comparison to conventional treatment. That's another reason to push for more accurate reporting of NA, so we can better compare to collagenase, since most of us on this site would probably shun surgery. Embracing NA and encouraging more thorough results reporting, even on this site, are not mutually exclusive.

09/11/2004 23:28
Frances

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09/11/2004 23:28
Frances

not registered

Love having Mds here

Hi Chet,

It's always great to have an md here - you're all so suspicious....everyone one of you uses the word 'anicdotal'....can't say I blame you though...there does need to be a proper study done. :-)

Despite that - NA truly works - no it's not a one time cure - the DC will probably come back - as it does with surgery - but NA is a great way around the scaring and trauma that surgery leaves and for that NA is tops in my book.

Here's my sales pitch....As an md though....you have access to lots of important people...like hand surgeons. If you chose NA are and happy....can you spread the word to your hand surgeon? others? It takes one week for an experienced hand surgeon to be trained (Paris) then they can earn $500/finger like Dr. Eaton does...big bucks if you ask me...then people like ourselves will have greater access to the procedure...and eventually....someone will do a North American study so folks like yourself don't have to hesitate. Thanks for listening.

God Bless and take care.

Frances

09/11/2004 23:45
Sean 
09/11/2004 23:45
Sean 
Surgery

Chet,
Surgery can be very successful, despite what is presented on this forum by some who have a poor dupuytren's diathesis or poor surgical experience. My surgery was very successful, 85 degrees to zero with no problems or pain. It has been 2 1/2 years with no sign of recurrence. My surgeon told me that he very seldom sees a patient for a second time.
I haven't, as yet, decided on surgery or NA on my other hand when the time comes, because of my good experience with surgery.

09/11/2004 23:41
Randy H.

not registered

09/11/2004 23:41
Randy H.

not registered

Donuts

And Open Heart surgery can be incredibly successful as well, as it appears President Clinton's was. But I'll bet you dollars to all those *donuts* he liked to eat, if angeoplastie been sufficient to do the trick, the trauma of open heart would never been imposed on him. Though our *lives* are not on the line here, I see a strong correlation between those two Cardio procedures and Traditional Dups Surgery vs NA. Both have their place, with the less invasive the being first line of defense before more draconian measure are required. It's not "Eithor Or", but less invasive-------> more invasive as needed.

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