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Dupytren~sq~s Disease Patient Discussion (ledderhose subject)
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12/06/00 01:58
CHARTIER Pierre

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12/06/00 01:58
CHARTIER Pierre

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Dupytren~sq~s Disease Patient Discussion (ledderhose subject)

Hello dear Fellows,

My son was incorporayed in Paris's Firemen" during his Military Service and had a very hard physical time with sportive activities. Later he observed feet's plantar fibromatosis nodules.

Now after four years he is suffering with a nodule under each foot, what can I do as medical or surgical treatment for my son.

Thanks a lot for answering.

P.J. CHARTIER
Villa 36
25 Route du Village
F06400 CANNES
mobile teleph 06 12 47 69 49
(+33) 4 93 69 33 93

01/16/01 01:19
Desmond Powers

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01/16/01 01:19
Desmond Powers

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Foot dupuytren nodule

I need a surgen who has experience in removing dupuytren nodule from the bottom of feet, someone in Northern California or Washington would be best.



05/13/03 02:46
estella Diedrich

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05/13/03 02:46
estella Diedrich

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foot dupuytrens nodule

I need a surgen who has experience removing dupuytren nodule from te bottom of feet, this is driving me crazy day and night. lookig for someone in Las Vegas, Nevada

07/31/03 02:01
Chris Zapior

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07/31/03 02:01
Chris Zapior

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Dupuytren~sq~s Contractore - A.K.A. Plantar Fibromatosis

I have had a nodule on my arch on my left foot now for a couple of years. I have had physio - ultra sound and now trying laser. My foot will be ok for a while then I get big sudden pains in it. Is there anyone else who has similar problems and have they had any success with other treatments.
Thanks

08/02/03 02:30
Steve

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08/02/03 02:30
Steve

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Laser for foot nodules

Would you please supply more info. regarding the lasers you are using for you Ledderhose nodules. I also have nodules on the arch of my feet (2 on each one--both pairs appeared simultaneously a year or two ago) and they are painful at times. Surgery is not an option unless the pain becomes unbearable at some future point so I am interested in alternative removal/control procedures. Thank you.

08/03/03 02:49
kenny

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08/03/03 02:49
kenny

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be carefull with your decision

i have to agree with steve about surgery being a last resort. just be aware that surgury could worsen your condition over time. if you research dupuytrens you will find that it can not be completely removed. it is impossible to get every cell so the chances of it growing back are almost 100% and it is just a matter of how long before it's back and how much larger it is going to get. my surgon almost guaranteed me that it would re-accure and will have to be removed again. guess what. he was right! my pea sized lump that i thought was ruining my life grew back golfball sized in less than 2 years not to mention how painfull it is to have your arch cut open. it was months before it didn't hurt to walk anymore. i also sometimes get the shooting pains and in the morning walking down the steps can be painfull. even walking barefoot hurts.(takes the fun out of going to the beach). i don't want to be a downer but be aware of the facts. do research. ask your surgon and then decide whats best for you.

01/30/04 01:30
Stage One

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01/30/04 01:30
Stage One

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Ledderhose, NA and Cortisone

On the "other" Dupuytrens Forum Dr. Lermiaux
responded to an inquiry stating that he has
had good outcomes by using NA followed by
cortisone injections into plantar nodules
twelve days after the NA. There was only one
such post, so I am unsure of the details.
Dr. Lermusiaux posts as Webmaster J.L.L. on
the site maintaind by Dr.s Badois and Rappaprt.
I have a mild case of Ledderhose; if it prgresses
I intend to consult with an NA practioner about
my options. So far my only problem is the sensation
of having my sock "bunched up" in my shoe. I also
get a "burning" sensation if I descend stairs barefoot.
One spot feels very much like a bone bruise on my
left heelbone towards the arch. (Bone spur?) I am
able to run comfortably and work standing up every day
4-7 hours. I wear gel inserts in my running shoes to
absorb about 95% of the impact.

02/05/04 01:29
KATHY

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02/05/04 01:29
KATHY

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NODULES

I HAVE A DRS. APPT. ON FEB. 16TH TO LOOK AT ANOTHER NODULE IN ARCH OF MY RIGHT FOOT. I HAD ONE PEA SIZE REMOVED 3 YEARS AGO. A FEW MONTHS AFTER ANOTHER FORMED 3 TIMES THE SIZE. I'VE DEALT W/ THE PAIN TILL NOW. I CAN'T ANYMORE. I ALSO HELD OFF BECAUSE THE LAST DRS. I SEEN IN PHILA. WANTED ME TO HAVE SOME SORT OF CHEMO THERAPY TO KEEP THEM FROM COMING BACK. WHAT IS THIS LASER SURGERY? HAS ANY ONE HAD IT? HOW ABOUT INJECTIONS? THERE HAS TO BE SOMETHING. I HAEVN'T DRIVEN OR WORKED IN 3 YEARS. THE MUSCLE SPASMS ARE TERRIBLE. I AM LOOKING AT ANOTHER SURGERY. IF ANYONE HAS HAD BETTER LUCK PLEASE FEEL FREE TO LET ME KNOW!

02/07/04 01:07
pablo

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02/07/04 01:07
pablo

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Living with Ledderhose

The advise I've been give, and give, is to put off surgery for as long as possible. I had surgery for a nickel sized lump at 28, and wish I hadn't. The pain and recovery were really bad, and I've never regained full strengh in that foot due to the missing fascia. Plus, the nodules came back within 2 years, around the edge where the fascia was removed.

Now, at 50, I've got nodules in both feet that almost fill my arch- 2-3 inches long, 1-1.5 inches wide, over 1/2" thick. But I'm able to live with them. Find shoes that work for you. Avoid overly soft insoles because, by conforming to the knots, they keep constant pressure on them. Choose shoes that have low or no arch (I buy Rockport and Vans because they have almost zero arch). When the knots were smaller, cutting holes out of foam arch insoles wirked well for me. The key is to avoid putting much pressure on the growths. Spend lots of time standing around the shoe store to make sure they feel good for more than a few minutes to avoid having a closet full of shoes you can't wear. I use rubber sandals around the house, but have to remember not to stand/work for hours in them because that makes my feet sore.

Using this strategy, I've lived with this for many years. I've worked lots of trade shows, standing on concrete for hours, and had no more visible discomfort than my 'normal' coworkers. But perhaps I've grown used to living with some constant pain, and I've never had cramps or strain from this.

Dr. Badois told me the cortizone injection softens the nodule so that it flattens out some. I haven't tried that yet, but will when mine becomes unbearable. I've got some growing under my toes for the past few years that will be trouble if they get larger.

I'd like to hear others' strategy for living with Ledderhose. Maybe if we share tips we can get by until something that really works comes along.

02/09/04 01:14
C. Adams

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02/09/04 01:14
C. Adams

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Arch lumps - Acupuncture-it works

Finally, after 4 years of looking for alternative ways to treat my plantar fibromatosis I have found something that reduces the lumps in the arches of my feet besides cortisone shots. For the last 3 years I have being having cortisone shots in the lumps to keep the size and pain under control. In Jan. I asked my acupunturist to see what she could do and after 1 session the lumps and cording were smaller and softer. Since then I have had 2 more sessions spaced a week apart and I am very pleased with the results. She also recommended that I gently massage my feet every day which I try to do and I started doing 20 minutes of beginner yoga several times a week. She thinks it is all of these things which is improving my condition but I know that I had immediate (within a day or two) results from the first acupunture where she concentrated on the lumps (she had successfully treated me for gastro-intestinal symptoms caused by chemo this summer).

I do not have the genetic version of this problem (Ledderhose) but exercise/stress induced lumps but the lumps grow very big and are painful unless I get the shots. I am so pleased with the acupunture that I plan to go once a month for a while to see if I can control (or eliminate) the problem with cortisone shots. I have her permission to post her name and telephone number if you live near southern MD. If you want to try an acupuncturist close to you, remember you should see results from the first session. I tried another acupunturist 2-3 years ago who supposedly was on the problem but never saw andy improvement so don't waste your money on someone who doesn't give you results. Her name is Kathlee Tucker and the number for an appointment is: 410-414-4507.

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