have dupuytren's in both hands and feet.only have the index
finger and thumb open on each hand. had to have the small
finger on right hand removed it was almost through the palm
one toe removed on the left foot. now have two more toes
under on the left foot. two under on right foot. groths on the arch of the feet the size of your thumbs.the left wrest
now has a swelling the size of an egg.have had total of 5
operations. takes about six months to close the fingers
again.soon as they close they want open.would like to get
this out to the world. if it would just help one person
from going through what i have.i came up with an idea i
took 3/4 pvc slip it over the fingers open them little at
a time takes about one hour each morning and evening.then
slip the pvc into the hands.some say no pain i havn't been
without pain from the age fifty.i am now 74.from experince
tell anyone with this try to keep the fingers open a little
it hurts but it is better than letting the hands get sore
from no air between the fingers and the palm.use water as
little as you can. water makes the hands soft then sore.
let me know if there is anything new on this.
thank you james gillum 2205 martin road dover,florida 33527
phone 813-689-9117 fax same email jgillum@tampabay.rr.com

OVER THE PAST 5 YE4ARS I HAVE DEVELOPED A GROW (THICKENING) IN THE ARCH OF MY FEET. WHEN 1ST DETEDTED THE LUMP WAS PEA SIZE. MY RIGHT FOOT NOW HAS A LUMP THE SIZE OF A PING PONG BALL. I'VE SEEN ORTHAPODS AND PODIATRIST WHO HAVE DISMISSED IT AS UNIMPORTANT. I NOW HAVE TROUBLE WALKING OR STANDING FOR LONG PERIODS OF TIME. NEED SUGGESTIONS AS WHO TO SEE FOR RESULTS. I LIVE IN THE BOSTON AREA.

In the early stage of Dupuytren nodules on the foot (also called Ledderhose's disease) radiation therapy has very good results. If the nodule already reached pingpong size shock waves might help (we have heard of some good results). A good choice might also be injection of collagenase. Currently the phase III trial of this therapy is on and as far as we know patients can still participate.

The link for patients is
http://www.clinicaltrials.gov/ct/show/NCT00014742?order=2

Wishing you good success

Wolfgang