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General comments on this forum
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07/02/02 02:37
Eddie 
07/02/02 02:37
Eddie 
General comments on this forum

Since I had surgery (about 13 months ago) I am an almost daily visitor at this site, and also regularly searching the net for info on dupe (I have to admit, before the surgery I didnt know a thing about it). I also had some conversations with orthopedic surgeons.
I am sure I am not telling anything new when I say all the available info is very confusing, to say the least.
Nowhere I can find any statistal data, meaning, how many people are having problems, recurrence or not, after surgery or the needle treatment. There is a vague figure of 50% stated in many articles, but to me that seems a rather arbitrary figure.
Why dont we see any comments or inputs from medical professionals in here ? Dont they know the existence of this site ? Or, dont they have a 'meaningful' input?
Without doubting the professional abilities of those surgeons, or practitioners of the needle treatment, I tend to think it is that last one.
So, I guess we will just will have to wait until a really new treatment (collagenase injection?) is proved useful and comes available, and meanwhile, hope we take the right decision about having surgery/needle treatment or not.
As I wrote before in here, the only thing sure about dupe, is that there is nothing sure about dupe.

07/02/02 02:08
Meg 
07/02/02 02:08
Meg 
Dr. Rappaport

Eddie,

Dr. Rappaport from Europe regularly posts on the board:

www.dupuytren.org

He usually answers a lot of the questions. Try looking there if you have specific questions. He also performs the needle aponvrotomy and encourages it. Ive corresponded with him via email and he seems like a rather good doctor to me.

Meg

07/05/02 02:31
Teemu

not registered

07/05/02 02:31
Teemu

not registered

Why quiet, opinion

Eddie,

I'm from Finland and had surgery for 1 month ago. My Dr. is a nice man and talked a lot with me about DC. But, it seems that for medical professionals DC is not any "real disease" like cancer etc. "This is a routine surgery which takes a lot of time and there is no no quarantee of final help".
In many cases DC does not cause eny pain to the patient, but is more a cosmetical problem. Maybe this is why professionals "keep low profile".

Doctors dealing with needle are "agaist the main stream". They are giving more information but also advertising their method and services. It seems to me, that those with knife will not discuss with those with needle.

07/05/02 02:24
Jan

not registered

07/05/02 02:24
Jan

not registered

cynical, yes

The hand surgeons would lose some patients if the needle became the popular method of helping DC. Also, if the collagenase injection becomes available and also becomes popular, there goes more money from the hand surgeons. This is my most cynical view.

07/05/02 02:03
Gary Evans

not registered

07/05/02 02:03
Gary Evans

not registered

General

My surgeon charged $1332.00 for my surgery. Not really a lot for a 1 1/2 hr. surgery and a check-up. The biggest cost was for hospital $1914.00.

This was for little finger at 90 degrees contraction. Finger is totally "normal" at this time (6 1/2 months). Can't even see scar from 4 feet away and continually getting better.

I don't think surgeons get rich from DC. My surgeon was one of the best.
Gary

07/05/02 02:51
jimh 
07/05/02 02:51
jimh 
Another cynical comment

Maybe we're being a little tough on the hand surgeons. Dupuytren's corrections are just part of what they do. A lot of their attention is focused on serious - sometimes devastating - injuries. When a surgeon is looking at your DC, he may have just seen a patient who has been in an industrial accident, is in excruciating pain and is going to be lucky to have a barely functional hand after months of recovery.

I agree that they tend to minimize the downside of surgery for DC in terms of recovery time and incidental damage, and are uninformed about, and unreasonably dismissive of, needle aponevrotomy.





07/07/02 02:40
Teemu

not registered

07/07/02 02:40
Teemu

not registered

Another cynical comment

Jan,

Doctors will keep low profile on pages like these,because some people consider everything from their mouth "as a word from God". I agree what you said about collagenase -if it comes true, but needle method is not any real "cure" for DC. The same "short time help" without any risks of nerve damages can also be given by hand Drs. but they prefer to remove DC as completely as possible. Doctors will not use any "tricks". This is a cynical opinion ,too.

07/07/02 02:52
Jan

not registered

07/07/02 02:52
Jan

not registered

opinions

it's okay if we friendly disagree. For all i know, there may even be doctors within this forum, not revealing that they are hand surgeons. we are all curious to find out more about DC experiences. my own conviction is that trauma, and genes, are not good for DC. I do realize the needle may be only a short term deal for some. my experience in california with 2 highly recommended hand doctors was very disappointing. i prefer to search out and learn what i can....if liver is not making collagenase, then i want to learn about that. i still swear by eating papaya every day, altho it's definitely not my favorite fruit, i've learned to just eat it every day. palms and fingers are stiffer if i go without more than 3 days.

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