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07/14/2004 23:05
Johan Vandersandenot registered
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07/14/2004 23:05
Johan Vandersandenot registered
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How fast will the disease progress?
I was recently diagnosed with Dupuytren'disease in my right hand.I can still lay my hand flat on a flat surface but can feel the tension in my fingers when I do.
I am 57 years old and wonder if anyone knows how long it will be before I need surgery?
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07/14/2004 23:40
Randy H.not registered
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07/14/2004 23:40
Randy H.not registered
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Don~sq~t you read the Posts?
Well, with any luck at all, and (currently) a willingness to get on a plane.......the answer is "Never"!
See: http://www.handcenter.org/newfile11.htm
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07/14/2004 23:30
paulettepnot registered
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07/14/2004 23:30
paulettepnot registered
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surgery
agree 100%...hand surgeons are in the business to operate and they do not tell you what has been proven...Surgery escalates the disease, it doesn't cure it...the recovery period is endless usually resulting in scar tissue. I had two and both were horrible mistakes..
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07/15/2004 23:21
Tom Mnot registered
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07/15/2004 23:21
Tom Mnot registered
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Exercise
Johan:
Diagnosis does not mean that you will have rapid progression. I developed a nodule about 25 years ago. I'm now 63, and while I have more nodules and heavier cords, I have been fortunate in having no contracture. You may be one who progresses rapidly, or very slowly. This is a very individualistic condition. Don't fret... the options today are substantially better than they were a few years ago. I would urge you to continue to watch this site and stay informed. If and when the time comes that you need to take action, you will then know all the options available to you. Best wishes.
Tom M.
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07/16/2004 23:38
Johan Vandersandenot registered
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07/16/2004 23:38
Johan Vandersandenot registered
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Exercise
Randy, Paulette and Tom,
Thanks for the rapid response, do you know if there is a way to slow down the progression, i.e.stretching exercises or something like that?
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07/16/2004 23:09
paulettenot registered
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07/16/2004 23:09
paulettenot registered
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slowing disease
be very careful with supplements that fertilize the disease such as g/c and msm...you might check with Dr. Eatons office if a splint is called for in your case...good luck..
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07/17/2004 23:15
Johnnot registered
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07/17/2004 23:15
Johnnot registered
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Surgery
Paulette,
"Surgery escalates the disease". That is not considered true. If anything, according to Dr. Eaton, there is less recurrence with surgery than with NA.
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07/17/2004 23:01
paulettenot registered
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07/17/2004 23:01
paulettenot registered
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surgery
Hello John, several hand surgeons and orthapedic surgeons told me that disturbing the fascia and causing scar tissue can escalate the disease...with NA you may need to do the procdure more than once but at least there is little recovery time and you don't have the risks of surgery..I'm certainly not an expert, but after the first and second surgery with very bad results, I certainly wouldn't go through it a third time nor if I knew then what I know now would ever have had the first surgery.
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07/17/2004 23:33
Tom Mnot registered
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07/17/2004 23:33
Tom Mnot registered
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NA
Johan:
To my knowledge, there is no proven way to prevent or slow the progression, other than avoiding those actions which anecdotal evidence suggest are likely to accelerate it (trauma to hands, glucosamine, etc.) Personally, I avoid vitamin C supplements, but take vitamin E, as well as lecithin. As I noted previously, my condition has advanced very slowly -- and I believe I can tell a difference when I depart from my routineof lecithin and vitamin E. However, since none of us knows how our condition would have advanced with or without certain elements in our lives, it is impossible to know cause and effect. That will require a large, longitudinal study. For now, I will avoid those factors which I believe to be triggers, and will employ those which I believe to be helpful. Best wishes.
Tom M
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07/18/2004 23:42
Johnnot registered
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07/18/2004 23:42
Johnnot registered
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NA
Paulette,
I'm not arguing that NA is a good alternative with less recoup time. I will probably have NA on my other hand when the time comes. I had a very good outcome from surgery 3 and a half years ago with no sign of recurrence yet.
I'm just saying that from Dr. Eaton's information (and others), recurrence is less for a fasciectomy than for NA generally, but not always. I have never read where surgury has a higher recurrence rate.
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