| Lost password
82 users onlineYou are not loggend in.  Login
How fast will the disease progress?
 1 2 3 4
 1 2 3 4
07/21/04 02:42
John Thomas

not registered

07/21/04 02:42
John Thomas

not registered

NA

Is it true that Dupuytren's Disease can also lead to a distortion of the penis? My DD is about 4 year's old, and in the last year my trouser snake seems to bend alarmingly to one side. Any suggestions?

07/21/04 02:02
John

not registered

07/21/04 02:02
John

not registered

NA

Steve,
Thanks for the information. I wish I had access to a medical library. The PubMed excerpts are interesting. It also shows how much research has been done with Dupuytren's. I'll keep reading.

07/21/04 02:08
steve 
07/21/04 02:08
steve 
pubmed

its not cheap but if you find an occasional article that looks good, they can usually be bought for $20-30 per article...

07/22/04 02:41
Stage one

not registered

07/22/04 02:41
Stage one

not registered

Trials and tribulations

Steve, I think that the "real" beneficieries of the
collagenase trials will be the Leddehose and Peyronies
patients. To date, they lack favorable outlooks; Collagenase
treatment may change that. The bonus for DD patients might
be an increased interval between re-treatment when compared
to NA. The trade-off will be the cost and time involved in
multiple visit injections. I am curious about the extent
to which the cord is "dissolved;" just enough to sever,
or is it eliminated? Either way, it will return. I suspect
that it is just a slower, chemical version of NA. Perhaps
it could be called EA (Enzyme Aponevrotomy.) Alas, I am
just guesing; we all await the final trial outcomes sometime
in the distant future. Then we can wait for the training
period while Doctors learn the technique. Eventually, the
procedure might be comparable to Botox injections. I will
tell my progeny to follow the progress. Fortunately, they
already speak French; should the autosomal dominant genes
manifest themselves sooner rather than later. they can go
to France for a few days, (or Italy, Belgium, Switzerland,
Florida or Tennessee.) The procedure takes 20-30 minutes
and currently costs about $250.00 US per sesion in Europe. Hotels, airfare, meals, museums and bateaux mouches are extra. Florida is an option and whilw more expensive,
might be more "handy."

07/22/04 02:31
Kristen 
07/22/04 02:31
Kristen 
Articles on Dupuytrens

This refers to the discussion a few messages back between Steve and John. When you find articles of interest in the medical journals, you don't need to have a nearby medical library or to pay $20-$30 per article. Take your information to your public library and tell them that you'd like to get the article through the interlibrary loan system and I doubt that it will cost you a nickel. Kristen (DC sufferer and librarian)

03/10/05 01:22
Quicksilver

not registered

03/10/05 01:22
Quicksilver

not registered

Progression of the disease

The middle finger on my right hand has just started to come down after having DD for 8 years. I have had two lumps in my palm and a raised band running from the lumps to my finger. Some fingers bend slower than others.

 1 2 3 4
 1 2 3 4
interphalangeal   metacarpophalangeal   recurrance   disease   full-thickness   technique   surgery   individualistic   synthesis   recurrence   procedure   Dupuytren   contracture   progression   patients   information   degrees   contraction   Collagenase   decreased