Other members of my family had the same lumps appear at the same time as mine. Has anyone else had experiences like this? How can we form a national organ to educate and gather data to find a cure. The disease that Dudley Moore just died from is very rare (Progressive Supranuclear Palsy) yet their webb site and knowledge and help is awesome.
This disease is also in my family! Our numbers are greater
let's get going. Thank goodness for this forum.

In addition to my passion to learn and inform about D/C, I happen to be the family genealogist and historian.

I queried members of my far-flung groups and have not located anyone that admits to having or knowing any family member with our affliction, BUT do not take their replies as gospel.

My father’s maternal side blessed us with an unrelated genetic ailment. When I queried the family many years ago, I received the same response as with D/C. No one knew: No one has such a problem and it is not in the family. I doggedly pursued my congenital theory and have confirmed 9 instances of the disease among my clan.

Having said the above:
I am absolutely certain that my D/C was derived from trauma. Everything fits together like a jig saw puzzle. It stems from an injury to both hands at 17 and followed by the formation of nodules.

In my case it appears that I could have lived my life without a further advance if it weren’t for another foolish accident to my left hand, followed closely by the now infamous crunching handshake that destroyed my right.

To some extent I was fortunate to have ceased my use of Glucosamine and C prior to the damage to my right. I therefore did not suffer much curling in that hand, however: the OAF caused serious encapsulation to 2 ½ fingers.

You all should know the rest of my story by now.

If you haven’t as yet responded to my survey you may be doing yourself a disservice. The gathering of D/C data is vital to our well being and hopefully will allow us to present a large study group to the medical profession.

Looks like you have a well-documented family history that could be interesting. I'm about your age and DC also showed up in my 40s, but I have no family history to draw on. How did it go for your father, and your other relatives - did the DC continue to progress as they got older?

My father passed away fifteen years ago i.e. before I showed any signs of the desease. He had surgery about 2 years before he died,I recall him being pleased with the outcome but do not recall any re-occurrance. My one aunt had surgery for carpel tunnel and this seems to have helped the dc, I will get an update from her and post it here.

Martin

In my right palm about 1" from the base of my ring finger, I have a small bump which is the start of DC. Having said that, I have no contraction of the finger (yet), slight pain if I press on the bump, but otherwise no loss of functionality. Your's may not be DC at all, my advice would be to see a doctor if it is bothering you in any way.

Martin